My appointment isn't for another month

That's so sad to hear that he doesn't understand  I wish I knew what to do.. all I can say is that I'm hoping for the best when you get your next phlebotomy. Maybe one day you can punch him in the nose lol.  

If only you could transfer it on to him !!!

Hi Mary. That's awful! Get him to read up a little about our condition...the many symptoms we have to suffer, the fact that this condition can be fatal if not treated. Ignorant man. Makes me furious to think how unsupportive he is being. Well, know this...we are ALL here for you! You keep in touch with us regularly...I hope the treatment starts soon...so you can get your strength and energy back...and then punch him in the nose!! Chat soon. Mike.

You poor soul.  I wish I was there to punch your husband on the nose for you!  I wish I could help you and somehow speed up yout phlebotomy appointment.  We are all here for you Mary, any time, day or night and we know what you are going through if your insensitive husband doesn't.  You aren't alone though  it feels like it sometimes.

Sending hugs,

Ruth

So sad to hear about that :-(. Had to remind myself that I'm not qualified to give relationship advice before giving my initial response ( Time for a change of husband?!!!!!). Seriously, you are going to need someone a little more sympathetic over the coming months. Maybe he needs to go along to see the consultant with you? Think about joining an association so that you are getting some understanding & support. Does your husband realise that your children may also be affected?

Hi. Mary. Sorry to hear about your maritual problems. There's little understanding about this condition... I'd never heard of it until I was diagnosed a few weeks ago!. I can totally relate to how tired you are feeling. I am also in constant pain and am all I want to do is sleep. It's the looks people give you, no one really understands what it's like living with this condition. I thought it was just the stress of bringing up 2 kids on my own ( my wife passed away) that was making me feel so ill, so I'm relieved to finally have a diagnosis now and just want to start treatment now. Your husband needs to step up and support you! If he can't then you are better off without him. If I can do it alone then so can you.

Terry

Morning Mary how often are you having your blood taken and what is your reading and how long have you had it , so many questions, take care

 

Ethan's you all for your support was having a very very bad day and so frustrated!! My husband is not good around illness of any sort he tries for a while and then looses patience. I have had so many problems due to this condition and and he doesn't understand.  

I had had to laugh at the thought of punching him on the nose!!

thankyou all for responding when I'm at such a low point. 

Hello Mary, sorry to hear that you are waiting so long to start treatment.  And, the lack of support is unfortunate because with this illness you do need support and help and most people manage to get that.   Perhaps your husband could go with you to see the Consultant and maybe get a better idea of what you are dealing with and perhaps be a bit more understanding and less critical.    How would he feel if it were him dealing with a debilitating illness and no-one showed him any care and understanding.    There will always be support for you Mary on this forum and everyone I am sure wishes you the best.    Take care, Glyn

The whole "iron" family is here for you Mary.

This forum is great...helps me along....all here for you. God bless...

Mike.

sometimes people can be completely thoughtless idiots. I want to punch him in the nose too. Not just for saying it but for saying it to your kids. Having said that sometimes people say these things not because they are thoughtless but because they are scared. I'm not making excuses for him he should be supportive, he has no idea what you are going through and no one seems to be aware of this condition, it's symptoms or consequesis. Hang in there and don't let him get you down.

Thank you all so much your suggestions and support I'm glad I expressed how I feel it helps to know some great people are out there and they care! THANKYOU