My B12 is 167ng but I have been refused treatment - what should I do?
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Hi,
I am wondering if someone could please help. I have been back and forth the doctors for years with tiredness, headaches etc and have been fobbed off. However recently its become worse and I’ve been having heart palpitations, numbness and pins and needles in feet & hands as well as other symptoms and I requested to have blood tests done. My results follow:
b12 - 167ng
ferritin - 21ug
folate - 10.3ug
Vit D - 35
I have done a lot of research on both iron and b12 deficiency and from my understanding anything below 200ng b12 is extremely low? My doctor has advised my b12 is normal and that the symptoms I have would not be related to b12 deficiency.
My doctors have put me of 200mg of ferrous sulfate tablets and vit D tablets which I have been taking for the past month but I haven’t noticed any benefits from taking them. I am also a vegetarian and have been my whole life.
I am unsure what to do as I have read b12 is hard to diagnose - any comments would be appreciated.
Many thanks,
Sam
2 likes, 24 replies
bluemaran samantha32055
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samantha32055 bluemaran
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Hi Bluemaran,
Thank you very much for your prompt reply - Sorry to hear about your experiences too.
I will continue to push for the injections for the b12 as I know nothing will improve without them. The GP did try and give me anti depressants before I had my blood tests done which frustrated me even more as I am very happy with my life! I agree it is down to pure ignorance.
Many thanks,
Sam
marion29181 samantha32055
Posted
as you are vegetarian and have been for a long time this will have maybe caused the deficiency, but certainly made it worse.
There are supplements available that can be absorbed under the tongue, and lots of us use these to top up our levels because we often only get three monthly injections.
Please see if you can get a second opinion from another Doctor, your levels are too low, and will be doing you harm. Good luck Marion
bluemaran marion29181
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marion29181 bluemaran
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There was a lady, I'm not sure if it was on this site, or on Health Unlocked, who was a mental health nurse. Because of her own experiences with B12 deficiency, and what she has discovered about the neurological effects, she is now pushing to get new patients tested. They had discovered several with severe deficiencies! I feel I'm becoming a bit obsessive about it too, but I get so angry to think how easy it is to test for, and inexpensive to treat. People are being sent for costly other treatments, diagnosies, etc...and filled with other drugs that are probably doing much more harm. Also, we musn't forget that if B12 is low, there is a strong likelyhood that other vitamins are too!
I hadn't read the book you recommended, but have read "Pernicious Anaemia, The Forgotten Disease" by Martyn Hooper. This contains case histories, including his own. I felt like crying when I read some of them.
Keep up the fight to get this recognised by the general public and the medical profession. Best wishes Marion
bluemaran marion29181
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marion29181 bluemaran
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samantha32055 marion29181
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Thank you very much for your prompt response. I will continue to push to have these injections or if not will have to get a second opinion/change GPs.
I had my bloods done 5 years ago and my result for b12 was 200ng and they said I was normal then so by not treating it, its only making things worse. My GP said it was impossible to get symptoms at 167ng and said you only start having symptoms around 90ng which I know isnt true from reading forums of peoples experiences.
Thanks again for your help and kind words.
sam
marion29181 samantha32055
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Blue_dragon bluemaran
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bluemaran Blue_dragon
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vicky15724 samantha32055
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samantha32055 vicky15724
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Hi Vicky, Thank you for your response. Its so nice to speak with people who understand how it feels. I feel so angry that my GP have turnerd a blind eye to this, I spoke with them this morning and they have refused treatment as they say i am within normal range despite the fact I have all the symptoms. They are fobbing me off and I have no choice but to take this further and make an official complaint. I am also worried that it will also affect my fertility if left untreated as I will be wanting children in the next few years! I am glad to you hear you are being treated and feeling better in yourself! All the best and take care
ian61067 samantha32055
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marion29181 ian61067
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ian61067 marion29181
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marion29181 ian61067
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