Posted , 4 users are following.
Hello guys, my recent blood test that show my total bilirubin 28,2mol/l higher than the average ( < 17mol/l). Is some drugs cause my bilirubin higher ? Because when i went for my bloodtest i take 1 dose of Lomac 20mg, mucosta 100mg. Please help. Thanks for anh reply
0 likes, 32 replies
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Careful1 Rogerop
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I am unsure if certain meds cause it to rise. What did your Dr say??
Rogerop Careful1
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My doctor said that i need to track it and wait 1 month then test my biliburin again. Is 16mg/dl is high ? I have ulcerative colitis and i'm afraid that i have psc
Rogerop Careful1
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My doctor said that i need to track it and wait 1 month then test my biliburin again. Is 16mg/dl is high ? I have ulcerative colitis and i'm afraid that i have psc sad
Careful1 Rogerop
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According to my results yes it's high. My lab said normal was 0.3 to 1.2 mg/dl mine was 0.2 mg/dl..
I don't know much about liver problems so I'm sorry I can't be of much help. I am going through some problems myself and won't have answers until I see specialist on the 25th which feels like forever away.
I personally would seek out a liver specialist. It's been my experience that regular Drs. Don't seem to know much when it comes to the liver and brush off even plain as day symptoms although that's just been my experience. I even saw a gastro who didn't seem very knowledgeable.
oliver92 Rogerop
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Is there confusion re units here? Do you mean 28.2 umol/l not mol/l? And yes, some drugs can probably increase billirubin (see an example below).
My last reading was 30 umol/l which is 50% over the top of the relevant range 3 - 20umol/l and represents a significant increase in the past 2 years from a stable value of ~17. In my case, I have had no gall bladder for ~25 years which might be relevant.
What am I doing about it? I am currently taking liver and digestive enzyme supplements before retesting in a few months with a subsequent plan depending on results. I have no confidence in GPs or pharmaceuticals - after all, the GP arranged the Biochemistry Profile test (including billirubin) 6 weeks ago but has done nothing despite the increased value!
It has been reported that statins might increase it http://www.jlr.org/content/early/2011/06/23/jlr.P013193.full.pdf - I was on a (different) statin for a year came off it ~11 months ago.
Footnote: You will note from the above reference that high billirubin may protect you from cardiovascular disease so that may be a bonus!
Dervla50 oliver92
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oliver92 Dervla50
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No symptoms that I am aware of.
The liver supplement is Taracyn and enzymes Now Super Enzymes . Not recommended by GP - he hasn't even reported results to me (I got them myself online from Patient Access after he arranged Biochemistry Profile).
Dervla50 oliver92
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oliver92 Dervla50
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Hopefully my raised billirubin is not a problem but nevertheless I hope that it is lower (or at least no higher) at my next test, probably in September.
Dervla50 oliver92
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So you know well what I'm talking about! Can only see the NHS getting worse to be honest. Will give the Taracyn a try, can't see it doing any harm. Hope our Bilirubin levels will improve for all of us. I'm also going to ask for another blood test in September.
Dervla50 Rogerop
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Slight raised bilirubin doesn't always mean something is wrong. LFTs fluctuate all the time, I've noticed how mine fluctuate since having copies of my blood tests. My bilirubin fluctuates slightly over and under what's normal for the last couple of years and I wasn't even aware of it. My GP told me they look at all the lab results, rather than one slightly out, although I am keeping an eye on it. The best thing to do is have another test in a month or so and see if it's increased further, that's all you can do and try not to worry. Try not to concentrate on the numbers, sometimes we can have too much information, not always a good thing, what's normal for one person, may not be normal for someone else. Googling is not the best thing to do, as it will only frighten you into thinking the worst, especially if you're a worrier. I used to google all the time and all it done for me is gave me more anxiety and anxiety is very bad for the liver. You have to trust in your GP, and get your follow up test in a month's time, try not to worry.
oliver92 Dervla50
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Not sure if you got my reply but I queried what you mean by "slight" changes....10%, 20%, 50%? Otherwise I agreed with most points you made.... except for trusting the GP!
Dervla50 oliver92
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Not sure if you're in the UK or US. In UK on my test it's 0 - 21. Labs differ. Mine was 22, but it has gone up and down before, so my GP told me when I questioned her about it. I've also noticed that other blood count can fluctuate too, and apparently this is quite normal. Understand about you not having faith in your GP, but they see blood results all the time, so they will know if something is well outside of normal. I think we all have to be proactive if we're worried and make sure there is a follow up in case something is missed.
Careful1 Dervla50
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Do you have liver problems?? Curious 😄
Rogerop Dervla50
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Careful1 Rogerop
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My CMP is completely normal or within normal ranges.... cat scan without contrast showed liver enlarged and ultra sound showed hepatocelluar disease likely caused by fatty liver. I have every single skin symptom of advanced liver disease. Palmer erythmea, spider angionomas, telangestic veins in my face and others that all showed up around the same time... I am now having really bad pain in my right side and pain on the right side of my mid back. It's very painful and hasn't went away since it arrived a week ago.
I don't know if blood work rules out liver problems but it hasn't in my case.
Rogerop Careful1
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Careful1 Rogerop
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My Dr doesn't say, he refered me to a heptaologist and I don't go until the 25th of this month. I am not on any medication for the liver. I won't know anything till I see the specialist and in the mean time I just worry...
Dervla50 Rogerop
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Roger, I know it's easy to say, but please try not to worry. If it's stressing you very much, go back and see your GP and explain your fears re PBC, I presume you meant PBC and maybe he can do a blood test to rule this out.
Rogerop Dervla50
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My doctor asked me to test my GGT and it's normal too. So far my AST, ALT,GGT is good. But my doctor told me wait until i finish my sinusitis medicine. And now i still have to waiting for 1 month. My doctor said maybe some daily drugs is the cause for this. My daily drugs are 2g Pentasa, 3 mucosta. And before this i had allergy with gentamicin. Doctor said all of that can be the cause. Thanks for your imfirmations guys .
oliver92 Rogerop
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Dervla50 Rogerop
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Rogerop oliver92
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Dervla50 oliver92
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Sorry pressed sent by mistake, doing this on my phone. Your GP sees blood panels all the time, so take his word that it could be due to medications. Try not to worry, know it's hard, but stress is bad for your liver and that in itself can cause fluctuations.
Careful1 oliver92
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Dervla50 oliver92
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Statins are well known for causing liver fluctuations, that's why I won't go on them.
oliver92 Dervla50
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I think Address message was for Roger who appeared to be worrying and whose doctor suggested drug side effects. Following Careful's comment I think we all agree that the respective prescribed drugs could be the problem and time may confirm.
Seems that GPs keep themselves in demand by prescribing drugs and are then asked to correct subsequent problems!
Dervla50 oliver92
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You're right it was for Roger. Was using phone, always find it difficult. Yes the doctors are great for handing out pills, no thought that it may harm you long term, health wise, causing more lethal problems.
Careful1 Dervla50
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Totally agree with that.... Drs don't even know how to be Drs now a days. They just want to hurry you out the door and get to the next patient, more patients they see, more money they make. It's really sad
oliver92
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I got my new test results yesterday and the bilirubin has dropped back down to 16 umol/l (from the 30 previously reported here) so back to normal. In my opinion, this probably confirms that the cause for its increase was the statin I took for a year and my GP now agrees. The only confusion is whether or not the Tarcacyn supplement Ive taken for the past 7 weeks or so has had an effect. So we agreed to stop that and re-test in a few months' time - if bilirubin goes back up, this would indicate that the Taracyn has been beneficial otherwise the blame is probably solely with the statin.
Careful1 oliver92
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oliver92 Careful1
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Indeed. You may recall near the start of this thread my comments to Roger which included:
It has been reported that statins might increase it http://www.jlr.org/content/early/2011/06/23/jlr.P013193.full.pdf - I was on a (different) statin for a year came off it ~11 months ago.