My boyfriend has Crohn's and I need some help with this

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Hello. I've been dating my boyfriend for a year now. He was diagnosed with Crohn's about three years ago. In the beginning of our relationship he used to get flare ups but it wasn't something that happens consistently. Lately, he has been having terrible pains everyday for the past two weeks plus. It's rare that he doesn't have any abdominal pains now. His doctor prescribed him Humera (Sorry if I spelled it wrongly) and he has been taking those shots. I would like to know what can I do to help him? It is so hard to see him in this pain and I wish I could take it away. It is also taking a toll on our relationship. I just want him to get better and idk what kind of treatment or anything would ease up the pain? I need some advice in this, any advice would do. I'm lost here.

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  • Posted

    Hi there

    This must be very difficult for you as it obviously is for your boyfriend.

    Your support emotionally and physically will be very important over the coming weeks and months si be guided by his needs  and try to make allowances for his moods when in pain.

    If he has been on Humira he should be having monthly  blood tests and the treatment will be reviewed every few months.

    However if he is in so much pain the Humira is not enough and he must contact his IBD nurse or specialist to see what additional medications he might need to bring it under remission.

    They may need to do a colonoscopy to assess what is causing the pain unless he had one recently.

    Hope that helps

    regards

    Pete

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  • Posted

    Hi,

    He sounds very poorly, see if you can get him on a liquid diet for a few weeks. It will give his bowels a rest. Drinks such as fresubin or ensure can be prescribed by doctors. If he doesn't improve within a few months of being on humira, he may need to change meds. There is no perfect formula of how to fix it, it's very individual. The best thing you can do is show him your with him no matter how long it takes and don't let him feel he's under pressure to get better. I just had a terrible year and thankfully my husband stood by my side. He encouraged me to follow up with docs. I had to have surgery in the the end. Chill with him at home where he is comfortable and make sure he is hydrated. It's down to trial and error with meds.

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  • Posted

    I have it as well and there are times when things get rough. His doctor could get it under control with Prednisone. I get it when things are bad. It works fast. Ask the doctor about Entivio as well. If it were me that is what I would want as far as a biologic is concerned. Most will eventually go into remission, so it wont always be like this. He probably needs your support now more than ever. He will get better, but it takes time.
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    • Posted

      Yes, I agree. It is definitely going to take time. Slowly but surely. Thank you so much Craig. Appreciate it.

      Best,

      Sasha

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    • Posted

      He is very fortunate to have you in his corner. It is a tough illness to battle with great support and even tougher when one is alone. Be his rock and he will get better. I wish you both well.
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