My Cataract Journey

Posted , 11 users are following.

I write this with hopes of helping someone else, as I'm a firm believer in Knowledge is Power.

Twenty two years ago I had Lasik surgery, at the time my best corrected vision after Lasik was 20/30 in my left eye and 20/25 in my right. I was seeing great (compared to before) and I was glasses free so I didn't question why they couldn't get my vision to 20/20 with correction. Fast forward to 2013, I was sitting in hospice with my mom who was dying of ALS. I started to notice myself attempting to blink things into focus, readers were helping with my close up work (I was in my 40's after all so I knew readers would be necessary) But my distance vision was not clear and crisp as I was used to. 

My husband was seeing an opthalmologist for cataracts so after one of his checks with the doctor I decided to make an appointment for myself. This doctor confirmed, that I too had cataracts but they weren't age related cataracts, they were congenital or aka Posterior Polar Cataracts, not as common and far more risky to operate on. I sensed he was not comfortable doing the surgery when he told me I should wait for possible better technology. His words were....I'd hate for you to end up worse than  you are now. So I left it. But I was prompted to look things up on the internet as most of us do when we get a diagnosis of any kind. I found very little information on PPC but what I did find confirmed that they are far less common and far more riskier to remove. 

I was not happy with the way I was seeing so I scheduled another appointment with my then, opthalmologist. He gave me a small prescription, hoping that maybe eyeglasses would help. They didn't. On yet another visit he put me on Restasis, hoping that would give some relief. It did not. He scheduled me with a specialist at the University of Michigan for a second opinion. He confirmed the posterior polar cataracts and sent me on my way. I even went back to Dr Tayfour in Windsor, Ontario who performed the Lasik. He too confirmed the cataracts and said he would be glad to remove them but this was a long way to go for me since I now lived 2 hours north in Michigan. I wouldn't have minded going to him but my insurance would not have paid anything and the follow up appointments back and forth would have been diffiuclt.

So time went on and I didn't do anything. On one of my next check ups with my then, opthalmologist I mentioned to him......Dr Tayfour said he would feel comfortable doing the surgery.......at which time he got up from his chair and said.....then I suggest you go see Dr Tayfour. 

He obviously was not comfortable performing the surgery and I'm grateful he let me know. I mean who would want to have an already risky surgery at the hands of someone who was not at ease performing it.

I had a neighbor who had almost lost her sight due to an accident and she referred me to her doctor, and in talking to someone else who had shingles in his eye, he happened to have the same doctor. Both of them raved about how this doctor saved their sight. So I decided to go see him.

On my very first visit, I felt comfortable that I would want him to be my doctor. Still years went by with him monitoring me annually to see where I was with the cataracts. He said on top of the posterior polar cataracts I had the beginning of the age related clouding of the lens. After Christmas this past year, I wasn't seeing well enough to drive so I went to him and he said, I think its time we remove the cataracts. I agreed. And we moved forward with the testing etc. I was able to provide them with my pre Lasik numbers which would help with choosing the correct IOL power, although they still couldn't promise me they could achieve the distance vision I wanted. And, because they have to, they explained to me the risks involved with removing this type of cataract. The biggest risk being the capsule at the back of the eye could rupture (tear sounds so much better) This weighted heavily on me. I could just live with the cataracts that would in time just get worse or I could take the risk. Very tough!!! 

So, I had my right eye done. Surgery itself was successful but the distance vision was not achieved. I'm at 20/40 in that eye. He said he would tweak things to achieve a better distance result in the left eye. I put off having the left eye done until 6 weeks later. I had my left eye done on April 19th. This cataract was more adhered to the capsule and resulted in a tear of the capsule. The first day of surgery I could not see anything out of my left eye. The next day, everything was hazy but I went in for my 1 day follow up and my pressure was up. He used the forceps to relive the pressure and put me on glaucoma drops. My vision is better but Dr told me a piece of lens fell back behind the capsule so he sent me to a retina specialist. Retina specialist got me in quickly and he said the piece that fell back is the outer part of the lens and will likely be reabsorbed by the body. He said if it had been the central part of the lens my body pressure would likely stay up and I would have far more inflammation than what I do have. He wants to see me in a week but advised me to call him immediately if I see an influx of floaters or experience any pain. At which point he said a vitrectomy might be needed.

It pains me to write all of this, but is also  therapeutic. Not many people understand. I hope to educate/help anyone who has this form of cataract. I would have given anything to talk to someone all those years ago when I was first diagnosed. 

Most people consider cataract surgery to be uncomplicated and in most cases for traditional cataracts, that is the case. 

But I'm here to tell you not all cataracts are created equal.

God Bless,

3 likes, 11 replies

11 Replies

  • Posted

    Thank you for sharing your experience. I wish you the very best for your recovery. 

    What did they do when the capsule tear happened?  Did they put the IOL in the anterior capsule or stitch it?  How is your vision in that eye now?

    • Posted

      When the capsule tore he said he had to perform a vitrectomy in the anterior part of the lens. Remarkably he was able to put the IOL in place and that’s what they are staying on top of..... the IOL STAYING in place.

      The vision in that eye is not horrible but it’s not great either. I’m guessing a lot has to do with the nanny drops I am on.

  • Posted

    Hi Diane, so sorry to hear of all your complications and issues.  My name is Charlene and I agree not all cataracts are created equal.  I have had lots of issues and lots of different eye drops and very costly ones at times.  My right eye was done on June 14, 2017 and my left eye on Aug 16, 2017.  Both having lots of scar tissue and having then laser surgery.  Then the floaters began (huge ones, felt I was being attacked by wasps, my husband said there are not wasp; then I had realized they were floaters).  I then in October 2017 started seeing a cornea specialist up until Feb 2018.  I have progressed some, but still not what I was hoping and praying for my vision.  (Also, I've known at least 8 others having cataract surgery and NO Problems, THANK GOD---I told them I took all their problems and not to worry).  I am now waiting since Feb to see another specialist and can't get in with him until July 2.  I've heard lots of good and he is extremely busy.  So hopefully after my initial visit things will go quickly and smoother.  I know sometimes GOD does test us. I have been very faithful with Believing and Trusting I will see better some day.  It is my testimony to give someone some day if they go through what i've been through.  My left eye sees pretty well distance now, but my right eye is still blurred and nothing clear.  I have to use readers to read.  I always need my sunglasses when outside in the brightness. 

    I just feel bad when I hear of things that don't go as well for some as so many do have good results.  I am so thankful for this site.  It has encouraged me to know I am not alone. 

    Prayers for you that all goes well and you get some good results soon.

    God Bless  you Diane.  Hugs of love. 

    • Posted

      Thanks Charlene, I’m trusting and praying for better eyesight in my future...... and yours too.

    • Posted

      I am so sorry for you and your problems.  I pray that it gets better for you soon.  I had no idea that I would get so much information on this site.  I am thankful that I joined.  If I had joined before I had my Cataract surgery, I probably would have decided not to have it!!  Everyone says how safe the surgery is but they don't say that the results are not always good.

  • Posted

    Thanks for sharing.  It's surprising to me that we don't hear more about complications that could arise from cataract surgery or that there are different kinds of cataracts.

    Best wishes to you.

  • Posted

    I'm so sorry for all your issues. I fully understand what you are experiencing.....and, no cataract surgery should never be taken lightly! I had it done in Feb...with trauma resulting in a bleed & edema in back of the eye..." Irvine-Gass Syndrome". Ketorolac& Prednisone drops for 6 weeks, The vision has been horrific......like looking through Saran wrap...horizontal & vertical objects have sections missing....everything is hazy, unclear. Wish I had never had it performed...but have to deal with what is. My retinal specialist sees things clearing up some. So praying! Be patient & be faithful taking the drops as prescribed. I pray you can regain your vision! I am happy for all the folks on here that have had a positive experience. My first one went off without a hitch.

  • Posted

    Thank you for sharing. You sure have been through a lot!

    What I’d like to know is in a regular cataract surgery such as mine , I believe the lens sits  inside the capsule , so how do they repair the capsule ? I haven’t read anything about that but I wasn’t told I had any stitches .

    • Posted

      Did you have a capsule tear? It depends on when the tear takes place. My Dr told me the tear happened right at the end of surgery. The IOL was in place. They are watching this closely (for I don’t know how long) to make sure the IOL stays stable. 
  • Posted

    Hello Diane,

    Thank you for sharing your experiences along the cataract highway.  More like the highway to hell according to some of the posts on this forum.

    As you are probably well aware from my earlier post on my posterior polar cataracts, I am in a similar situation as you and it is good to hear about others experiences.  Although, it's sometimes scary to hear about some of the horror stories that go along with cataract surgery, and especially surgery for the type of cataracts we have.

    Sorry to hear about the problems you had with your latest surgery, hopefully everything will eventually turn out well.

    My one doctor in Pittsburgh told me there was probably a 99% chance that I would be looking at a rupture/tear in both eyes when and if I have the surgery.  Not very comforting, huh?

    Anyways, if you wouldn't mind me asking you a few questions?

    How exactly was your driving affected?  I know I have problems driving at night and even during the day it's getting harder to see, especially at a distance.

    Is the driving issue what convinced you to go ahead with the surgery, or was it something else?

    You mentioned that the cataracts would only get worse, and that's what they told me as well, so is that what convinced you?

    I really don't want to do anything yet, but I'm afraid I will wait too long, if that's even possible.  Did the doctors ever tell you to not wait too long?

    Is there a tipping point in which you will lose vision and never regain it if you wait too long for cataract surgery?

    Also, you mentioned going to a retinal specialist.  How quickly did you get to see a retinal specialist?  The next day or weeks later?  I thought that a retinal specialist would be on hand the day of cataract surgery to deal with any of the problems you mentioned if there would be a tear/rupture.  That bothers me that the retinal specialist wouldn't be available that day?

    Anyways, I'll take a breath now and let you up for air.  LOL!!!

    Thanks again Diane for sharing your experiences,

    John

    • Posted

      Hi John,

      It was such a hard decision but yes, after Christmas this year I realized I was not comfortable driving. I haven't driven at night for years but then even during the day I was no longer comfortable. My doctor thought things would be better after removing the cataract. I remember reading years ago that these posterior polar cataracts become more problematic at middle age because that is when the age related cataracts also start to surface, even though the I only had the beginnings of the age related cataracts, in combination with the posterior polar cataracts my vision was being compromised.

      The retina specialist was not on site at the time of my surgery. My doctor performed an anterior vitrectomy (at the front of the capsule) and sent me to a retina specialist within the first week. The retina specialist confirmed that there is a lens fragment floating around but because it wasn't causing inflammation and/or eye pressure problems he said he was going to leave it alone and check me again this week. I go back on Thursday. He said there are different parts of the lens that make up the lens we are born with. If it had been the central part of the lens it would have been more of an issue with infection. BUT he said it appears to be more the outer part of the lens fragment. 

      Ugghhh. I've had to learn more than I ever wanted to. But I figure since I've been through it, I would share because as you know there are so few of us with this type of cataract. My doctor did tell me that a capsule tear can happen in any cataract surgery, But yes more apt to happen with PPC.

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