My Costo and Tietze symptoms

Posted , 19 users are following.

Hi everyone,

I wanted to share my story as I find it impossible to get any information specifically relating to what I have gone through. Im Nick, im 28 and here is my story. My hope is that some people out there sharing the same symptoms can breathe a bit easier knowing they are not the only ones

It started about 4-5 months ago with a persistent twitch in my chest. Didnt think much of it untill I started getting chest pains a week or so later. As with most people suffering from this condition I ended up in the emergency rooms thinking at was heart related. After tests such as chest x-rays, blood tests and an ecg I was given the all clear and told it was "a-typical" chest pains. This basically means your not about to die but we dont know whats wrong with you.

After a few days the pains hadnt subsided so I went to my GP. She too did not have an answer and put me on xefo rapid (an anti inflammatory) and cortisone thinking it was some form of inflammation. These meds did not help at all. It was only a few days later I ended up going back to the emergency rooms with heart palpitations and chest pains. Same tests and same results. This time however the doc on duty said I may have costochondritis. He took me off the cortisone immediately and changed my anti-inflammatory to Celebrex 200mg. (This I must say has helped to a certain extent).

The pain seemed to be subsiding untill about 2-3 weeks later (+- 1 month since first symptoms) I suddenly felt a bulge on my left ribs. The bulge/swelling is under my left pectoral and extends from my abs to my side. I naturally panicked and for the 3rd time ended up going to the ER thinking the worst. The doc had a feel around and after poking and prodding around said he did not think it was anything serious but just swelling caused by costochondritis.

I have condensed my story as to not write an essay, but I will list all my symptoms below. These symptoms come and go and some are more common than others. The swelling however has not changed or gotten better.

Swelling - bulge on my left ribs from my sternum to under my arm on the side / soft bulge in front but hard (almost like cramping without the sensation of cramping) on the side. Swelling in my back on the right side.

Muscle twitches throughout my body.

Chest Pain - short stabbing pain in any area of my chest / long periods of pain in my sternum / sharp pains with breathing.

Back pain - Mild compared to chest pain but similar symptoms.

Heart palpitations - two or three times so far total.

Pain when I sleep on my sides

Abdoman pain - not common but extends into my stomach on the surface. Almost muscular in nature.

Stess pain after eating too much - not very painful, but a dull pain when the ribs are expanded.

The Celebrex has helped as well as gentle stretching. I am seeing a specialist in 2 weeks to hopefully get some answers and direction as this is really getting me down. Its frustrating not knowing what has caused or how to fix it. The one thing that does help when the panick from the pains sets in is to just breathe and remember its not life threatening. Its annoying but you will be Ok.

Please share your stories with me and I will keep you all up to date with my progress.

Thanks

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  • Posted

    I have alot of the same symptoms and also have ear and jaw pain in my right side. I was also dizzy and felt disoriented at its worst, been threw all the testing for heart and found that rest and going to the cranial therapist helped I know the inflammation is still there and have still had a few spikes in heart rate and BP but going way better just about back to my full work again. I feel from what I ve experienced and and what I've read on here is this is a condition that's going to come and go with stress etc so good luck to everyone that is dealing with this and enjoy our good days

    • Posted

      I also have the neck/throat pain up to my ear left side though does it feel like a burning cooling sensation?
    • Posted

      No it's a throbbing pain they thought it was from my teeth so they sent me to the dentist for a panoramic scan which was clearance the ear feels like a ear infection but no infection so weird

  • Posted

    Hi there!

    Was hoping I could get some answers as to whether this is going to be an ongoing thing for me. Last year I had really bad chest pain that spread to my right arm, went to the doctor and he right away said it was probably Costo/Tietze but I’ve read online that they are different? Anyway the pain went away after a few weeks and ibuprofen like he said it would but now I’m feeling similar(not as bad) tightness in my chest and pain in the left arm this time. I’m 23 and while I used to be more active before my first bout of this, I’m still healthy and get sufficient exercise. I remember when I was 17 getting a really bad pain on the side of my chest under my right breast but my mother, an RN, told me it could be a pleurisy and to lay off the smoking. I did, it went away and no real concerning chest pains until last year. I still smoke here and there but not nearly as much and am wondering if this could be a trigger? Or if I should head back to the doc and have further tests done. I see some people have had heart palpitations which I sometimes get too but never accompanied w this pain and just chucked it up the being born w an abnormal heart beat. Should I be keeping more an eye on this?

    • Posted

      Hi nharo,

      Firstly I think it is important to never brush off any medical condition before understanding what is causing it. I too have had pain in my left arm, however I think it is always important to rule out anything serious especially when we are discussing areas with vital organs. I strongly recommend going to the doctor as soon as possible to make sure the tightness in your chest and pain in your left arm can be attributed to costo symptoms and nothing else. I know this seems frustrating but unfortunately it is the safest move.

      I too have had heart palpitations. They seem to have disappeared for the most part on their own. As mentioned I have been for numerous ECG'S etc and nothing was ever picked up. I am not sure of the cause of these but I do believe they are one of the many symptoms one can experience with this condition.

      I have found that light exercise and stretching really help this condition.

      I would again recommend working through this with a trained medical professional. Symptoms and severity will most certainly differ from person to person and it is best to follow their advice ahead of advice found online. The advice online should be used as an investigation/supplementary tool in your recovery process.

      I wish you the best and I hope you like many others can get this sorted out soon.

      Nick 

       

  • Posted

    I can totally relate to almost every one of your symptoms. Mine started after having my second baby. I got up to feed her in the middle of the night and thought I was having a heart attack.   After that I had a few other’s initially and to date it has been a year without any major flare ups! I am able to live a normal life in every way except I cannot sleep on my sides.

    Anyway...  I spent hours surfing he web for ways to cure this awful condition. In the past year I have found stretching, working out to strengthen the muscles around the area, keeping hydrated, occasional chiropractor and keeping my essential oils on hand have been the key to maintaining comfort for me. I cannot even tell you what a difference the essential oils have made. They work so fast, so I don’t have to use them daily but whenever I feel even the slightest tightness or hint of a flare up coming I immediately put Cypress essential oil on my chest and layer with Deep Blue Rub from Doterra

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  • Posted

    UPDATE * I have received the backpod which I ordered online. It really really helps wow. I have used it for a few days now and it has given a lot of relief. I highly recommend it. Much better than the foam roller I have been using (although this did help).

  • Posted

    Hi there

    Have been using BackPOD since December stay persistent with it and you'll see results. Steve August is also very helpful.

    Best

  • Posted

    Hello Nick and others, This is my first time on this discussion and I just had to send you somethings that have helped me over years, yes I'm sorry to say I have had this condition for over 10 years but please read on as I'd like to share some of the things that have really helped me and the signs I recognise so I can act quickly and get it under control so it doesn't get really bad. 

    None of this is medical its just what works for me. just like you guys my first experience of the pain was unbearable, I felt like I had broken all my ribs on my right side and nothing seemed to help. Overtime I was diagnosed with costas. Great got a name but how do I deal with it in a physical job Im 54yrs now and at times its stopped me doing some of the things I wanted to do.

    Overtime and rest it did start to feel better and here's what I did and now do at any signs its inflamed. I get a dull ache in my back, then pain in my sternum moving to my ribs on my right side, but now I know the signs I acted quickly.

    I wear a wrap around back brace day and night, take ibuprofen for anti-inflammatory only about 3 a day as I've heard there not good on your tummy and 8 paracetamol spaced out over 24 hours and voltarol massaged in my sternum morning and night laying on the bed to get it rubbed in as close as I can to the area of pain I also support my ribs while in bed with a cushion, it sounds a lot but I only do this for 3-4 days and every day it gets better. If I don't treat myself like this it gets really bad, this works for me but of course I'm not a doctor and I'm not recommending it to anyone but I hope it gives you some ideas and you find some relief as I feel your pain.

  • Posted

    I have a very similar story, which I’ll share I suppose. Be advised it might be long, and unfortunately I have no answers.

    I’ve been on google looking up everything about chest swelling and chest pains tonight, and I stumbled onto this (I have been making myself crazy thinking I have some kind of chondrosarcoma or something).

    Anyway. I’m 31, male. About six months ago I began feeling dull chest pains (but stabbing in nature, namely very specific/localized pains, intermittent in nature as if being stabbed in a sense), right in the middle of my chest, but they quickly began to affect the left side of my sternum and the nearby rib cartilage most of the time. Over the next month to two months, the pain gradually became more noticeable, more common, and more severe. It had a wider area of effect as well, although it mostly stayed on that left side of the sternum (also felt aching in my armpits). I didn’t think I was having heart issues, but I went to the ER when I realized it was not getting better.

    At the time, I had no idea if this was my ribs or something deeper inside. I suppose I wasn’t much help for the doctor in determining my issue, in that light. Either way, I was diagnosed with “atypical chest pain”. My EKG/ECG, blood work and X ray we’re normal. Great, no answer and no help.

    As time went on (it has been 4 months since the visit which was on Jan 30, and about six or so months since it began), it got worse. I began to not only have pain which was on and off, but I started to get a feeling of pressure and tightness in my ribs (this was clearly a rib issue, I realized at some point). The pain was not constant, I’d have good days. However the pressure sensation was almost always there, unrelenting, and on the worst days I would get a fluttering feeling in my chest along with the pain, which basically happens on my entire chest (I’ve had palpitations, however I can’t be sure if this was the cause, as I’ve had them, very rarely, before this started). I have days with pain, which are usually followed by days of unrelenting pressure and tightness.

    Well I still have no answers, except now I have swelling as well. Oddly the swelling is on my right side, not the left where the pain began and where it was for most of this time period overall (that side doesn’t bother me much now).

    I think it is my third rib (I’m unsure of my ability to count ribs). I have a noticeable lump that I can feel by touching of course, but also I can feel it in terms of pain. It feels just like the rest of my pain, but at times I can really notice that lump is hurting or sore. It’s not  huge, but it’s certainly there. It started only a week or two ago, or at least that’s when I noticed it. It is 2-3 inches (1 inch = 2.54 cm) horizontally and about an inch vertically in dimension (thicker than my ribs normally are), but the middle is a defined lump that is fairly hard. When it was very swollen, it felt like a lump with a hill or mound type of contour. Tonight it feels more like an abrupt round-ish lump, after the swelling went down a bit. It seems to change in size/swelling, at least over the last couple days, ibuprofen seems to help to a degree, and simply having a “good day” (last night it felt smaller for example, like it was getting better. and this week was a great week where I had several days of feeling fairly normal, although it flared up again today).

    Around the time I noticed the lump, I also had a morning where I woke up with pain upon breathing deeply. This had not happened in the previous six or so months. However this went away. It only happened on one day, and hasn’t happened since. It was odd. It felt like my chest was healing. It’s hard to explain but you know when you have an injury that is healing and it has a certain kind of soreness? It felt like that. But it got worse again today so, yeah.

    Anyway, I’m sure I’m forgetting something. Sorry I have no answers for you, but it helps to hear similar stories for me, so I figured I’d share this. I know it helped me mentally to see your post, knowing I’m not alone. This is the first post I saw. Hopefully I’m not breaking any forum rules. Good luck and keep us posted.

    • Posted

      Also, I wanted to point out that oddly enough (given what others have said), I tried sleeping on my right side instead of on my back like normal, and it felt so much better for me. When I started to sleep like this, I noticed that the pressure subsided a lot while on my side. I also had a few good days recently after this change. I guess everyone is different.
  • Posted

    I’ve been dealing with this for over 2 years. I think it’s just became so inflamed it’s going to take time. I take 200 mg of Celebrex each day and try not to over do it.  The less I wear a bra the better off I am (sorry guys)  it just makes it so much worse.  I believe I’ll get there just takes a bit of work daily. 

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