1. Community
  2. Bones, joints and muscles
  3. Complex Regional Pain Syndrome

My crps has spread new doctor thinks it's not related . When it's exactly the same pain

Posted , 5 users are following.

michelle79685
michelle79685

I have crps in my right hand and arm. I have problems with my shoulders as well. Since Christmas my left foot has been aching extremely bad , is burning like the skin is melting off and I have lost some sensation in it as well.  Saw a different doctor about it yesterday and he thinks it's not related at all. I'm so frustrated with getting the run around from this hospital. My previous pain specialist retired. So depressed , so angry , it's my body why don't they listen . HELP

0 likes, 5 replies

5 Replies

  • carol91733
    carol91733 michelle79685

    Posted

    Hi Michelle you poor thing, your sounding low, I hate this illness too, everything is a battle to get any help at all isn't it?? How long have you had crps for? Where do you live for me to be able to give the little knowledge and advise that helped me a little? Talking to people that have crps helps greatly, as you feel no longer alone? Tc Luv Carol
    • michelle79685
      michelle79685 carol91733

      Posted

      Hi carol , thanks for commenting. I live in brisbane au,  I have had crps since an accident in march of 2014  . I was diagnosed In march 2015. 

      It started in my wrist ,right arm and has effected both my shoulders. 

      Now after nearly two years I feel like I have it in my left foot. I'm sure it is but the pain specialists just said oh it's probably from when I used to work as a hairdresser 8 yrs ago . So dam frustrating , dam doctors don't know what it's like . Neither does my husband or family . I just hate my arm and I wish I had the guts to cut it off myself . I would rather nog have it and learn to,get on with my life .

      its hard it's really hard 

       

  • DebbieO
    DebbieO michelle79685

    Posted

    Hi Michelle, I also have CRPS in my left arm, head and left side of face. It's now moving to my left leg.  My leg is like ice to the touch but feels like it's burning all the time.  I finally got an appt at Stanfors hospital with  a CRPS specialist next month.  I'm so excited.  I too have had to fight to make people listen to what I had to say.  We know our bodies and it's just so frustrating when our feelings aren't heard. Keep searching out doctors who will listen and be sure to document the pain.  That seemed to help me when I walked in and had a timetable of issues written down.
  • linda12166
    linda12166 michelle79685

    Posted

    Hi Michelle, I also have CRPS in my hand and arm and also now have in my shoulder. I also was convinced I had another broken bone in my top arm and shoulder but an X-Ray proved me wrong, i couldnt believe it. My consultant says it is just through stiffness, I have to now believe him. Stick with the Physio; I had a similar condition in 1995 and was told I would never use my arm again but my Physio got me 70% use back but it took many, many years and now I realise that this current problem may take years too. I have had 30 physio treatments and do everything she tells me...your injury will come I promise, it will just take time. Try to keep positive and strong. Linda
  • UnbrokenSmile
    UnbrokenSmile michelle79685

    Posted

    Hi Michielle, CRPS does spread and it sounds like you doctor needs to do a little research. Maybe printing out some information and bringing it to your next appointment well help. I'm so sorry your going through this. I'm not sure if I can add links to this forum as I am new here but if you look up Dr. Swartzman  "Systemic Complications of CRPS" it gives a ton of info about this and other related spreads. I hope this helps and keep fighting! ((Gentle Hugs))
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.