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My Dad with PC Bone Metastasis Gleason 7

Posted , 5 users are following.

dealwithit
dealwithit

Firstly, please pardon my English (not my first). I have been following and reading this thread for awhile, found it very informative, often entertaining in this difficult time (Thanks to you both Carl n Dudley). My Dad is 72, had prostatectomy in Jan 2015, now he is bed rest in hospital for the last two weeks, unable to walk, receiving RT (3x so far, recommended 10x) with Prednisone, and Physiotheraphy twice a day; starting training with Medi Spinomed spine support for sitting up as we speak, however it's a big relieve for him at least for now. He is an independent bloke in nature, played tennis for 25yr, travelled the world in 60 countries, bet he can't wait to run smile

To my understanding, he should have had RT straight after operation in Jan, no wait and see action. Stubborn old man, there you go.

I haven't come across any serious PCBM in this thread, I would like to hear more about the life span in this stage, management, follow up treatment; as I was told by his oncologist 2 years but in wheelchair. Any advice would be very much appreciated. Many thanks.

3 likes, 33 replies

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  • dealwithit
    dealwithit

    Posted

    Correction: 2x 500cc blood transfusion. 
  • elementalist
    elementalist dealwithit

    Posted

    I posted a rather lengthy response to this post, and it appeared to be posted in the thread, but now when I return it is nowhere to be found. Can anyone explain what may have happened? I am new here and I think that fact, in and of itself, may be the reason? Do you need to have a graduated point level to be able to post comments? I know some forums are like that. I am more of a driveby commenter in some forums, and I don't always read over the rules very closely. Mainly becasie I do believe I behave in a manner that would very unlikely be looked down upon by anyone. Can anyone answer this question for me?
    • Dudley71081
      Dudley71081 elementalist

      Posted

      Sure can Buddy.  Your Post is there.  And what a Post !  Admiration and Respect to you.  Anyway,  what you might have done is just clicked back one stage too far.  If you go forwards from the point where you think you posted but it does not show,  you will see you are on the next page.  And no,  don't ever think there is someone who would bin a Post such as yours. 
    • Dudley71081
      Dudley71081

      Posted

      It got posted under ' Advice for Prostate Cancer for my Dad ' by another contributor.  This should should show up in your email inbox from now on but I think you have to click on  ' follow this thread ' for anything where you want  automatic follow-up.  Welcome to my world where everything is as clear as mud !
    • dealwithit
      dealwithit elementalist

      Posted

      Dear Elementalist,

      Have found your post and replied.

      Good luck to you and keep it going for many years to come.

      Best Wishes,

      Miki 

  • dealwithit
    dealwithit

    Posted

    Result from prostatectomy Jan 2015. Hp 253/0115. Solid tumour nodules in the right + left lobes.

    Radical prostatectomy specimen. Prostatic acinar adenocarcinoma, Gleason 7 (4+3), pT3bpN1. 

    Right obturator lymph nodes. Metastatic prostatic acinar adenocarcinoma in three (3/10) lymph nodes.

    Hope this helps. 

  • dealwithit
    dealwithit

    Posted

    Bonjour,

    Back to hospital holidaying today for another week also, feeling quite exhausted myself. I just want to update that my dad is responding well to RT so far (another 3x to go - unlikely to add more according to his oncologist), gaining strength day by day, but seems to losing weight anyone knows why; started Zoledronic Acid (Zometa) drip today (once a month). He was told he can be discharged if he want, but we would like him to stay till the end of his treatment for convenience reason. In term of his PT, he did walked 20-22 metre with human support wearing Spinomed, impossible otherwise. Can't wait for a review at the end of RT, so to say I'm feeling impatient right now. Has anyone experiencing with Zometa, any personal side effect or advice to share will be appreciated. Many thanks. 

    • dealwithit
      dealwithit

      Posted

      Just want to update reg my dad PC treatment so far.

      He has completed his 10x RT last week, and now on Abiraterone Zytiga 2 tablets a day (I don't know what to think in terms of Zytiga price, mad), so far only 2 tablets, but there is a possibility to increase to 4, don't know yet. As I said before we were told by his onco he will be unable to walk even he completed the RT, but now he walks with stick but slow, at least given him a slight normality in which we are grateful. The problem he is having now is low Hb and Trombosis, so he has been back to hospital nearly every week (every Tuesday be exact) for blood transfusion for the last two weeks. Im not sure whether this is an on-going thing for this stage of PC or will his Hb stabilised over period of time? I wish I know...

      You can imagine how frustrated he is to be in and out of hospital, and also its difficult for all of us to experience. We will find out soon whether Zytiga works or not when he has his PSA test which due next week. Its hard to remain optimistic in situation like this. x

    • dealwithit
      dealwithit

      Posted

      Just to clarify, he takes Abiraterone 2 tablets + Prednisone 2 tablets. He finds it easy taking it in the evening, 2 hours fasting after dinner. He is experiencing joint pain, muscle weakness, worst in the 1-2 week taking it. When thinking about Zytiga, makes me feel like its nearly the end of journey, my poor old man. He is still finding it hard to come to term with his PC, I don't know what else I could do as I have tried my best in explaining all of this to him. At the same time I really want to see whether he will exceed 2 years limit as were told. Lets see.
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