My daughter had it last year and I'm 44 and just diagnosed

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sad The only bonus about myself being diagnosed with PR is I've gone thru the horror with my daughter (21) of not knowing much about the skin disorder. I guess I'm not the \"norm\" as I'm older than the age categories listed on any website that I've visited in regard to PR. Just as devasted mind you as summer is almost here and I do like to wear my bikini and shorts (not looking too bad for an ole' lady as of yet!). My daughter's ordeal lasted approximately 6 weeks from beginning to end and it was scary! :shock: Spots did appear on her face but her body looked horribly inflamed for the most part. Toward the end it disappeared as quickly as they had appeared on her. The dryness is definitely a part of the healing process. I have had the \"herald\" patch for approximately 4 weeks and am just starting to see other small spots appearing only on my stomach and am wondering if there are people out there who only have had to endure a mild case...perhaps I'm older and a little luckier than most??? I'm grasping at straws here so if anyone can give me some encouragement please do so. If this is the worst of it for me I'm fortunate as I hardly even itch. Anyway, to all of you out there, rest assured the nightmare does end and I too believe that stress is the negative feed to this particular outbreak...Hang in there knowing it's not forever...

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  • Posted

    Hi abbey ,

    well not sure if im in the same age catchment at 41yrs but maybe i can help a little . Im five weeks into the lurgy now and never noticed a herald patch , just 3 big spots dead centre of my back . Two / 3 weeks later .. kabang !!! my whole back was covered !! . Then i got out in the sun and that really helped , as did sea water , however i had a few stragglers (3) under my trunk line which kept itching . When i returned , almost overnight my whole bum and lower back errupted !! . This is where im at at the moment . Sunbeds / sun are the answer to supressing it Abbey , at least for me , they seem to dry up , almost zap them .. it does not cure the illness but goes a long way to supress the illness before IT decides to vacate your body. Also a short Steroid course 5 days really clears them up .. hope your okay and hanging in there girl .. it'll all be over in a mon th ( I HOPE !!!)

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  • Posted

    Hi Abby, My 10 year old daughter is now 17 weeks and 1 day into this terrible condition. And counting....

    We really did think it had gone this time, but to my horror she developed another patch last night.

    We have seen approx 7 doctors, and 3 dermatologists. We now have another appointment on 13th June, Friday!!!!, no-body seems to know what to do with it.....

    Using creams from the dr seems to help with the dry patches but most of her rash is under her skin, almost like bleeding, so I suppose it must be difficult for them to know what to do.... poor things!!!!

    Myself and the rest of the family haven't had any signs of it yet so I do hope it is not contagious.

    Reading and talking on this web site does help, just lets you know your not alone.

    Keep smiling

    Jayne[/b]

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  • Posted

    :? Boy...you hear so many different stories that just when you think you got her beat you hear about the \"almost gone\" and then \"Whammo! She's Baaaack!!!\" :cry: Developed the Herald patch on my belly mid-April...broke out in about 8 to 10 spots on my stomach only and then they nearly vanished and today they look a little redder but no newbies...I don't know...you scare me Lumpy Bum...you said you thought it was gone and then \"surprise!!!\" they're there with a vengence 2 weeks later? Hmmm....maybe I'm not out of the woods yet like I thought I was (mind you 4 to 5 weeks is a long time). I guess there's nothing to do but wait to see if I'm attacked in my sleep. Maybe the fact that I've been fairly stress free lately is the reason they haven't taken over my body yet. I'm stressing over the fact that they might which is not a good idea. I really believe stress is a factor. I also think that there should be a Doctor out there who shows a little more compassion as to the ordeal us PR people go through - it is not just the fact that it's plain ugly and uncomfortable, but what it does to your mental self-image when not much information is out there and what is available is mostly frightening to say the least. As I said I'm not quite as in the dark as my daughter had it and managed to get through it but not without alot of tears and uncertainty. Anyway...this site is a bonus to all of us who can share and find encouragement...thanks for responding. Sure puts the kabosh on the \"children and young adult\" theory uh Lumpy Bum? :lol: and Jayne...I don't believe it to be contagious I just think it's a coincidence that both my daughter and I have it...it's been over a year since she had it so highly unlikely...possibly genetic? Never heard of the disease until my daughter was diagnosed...wierd one for sure. Thanx for sharing!
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  • Posted

    I am 48 years of age and i have all the signs of PR sad i have the herald patch with the rash now appearing on my trunk and arms. I know what the rash is like because my husband who is 47 has just got over PR having lasted about 3 months. So much for not contagious or a young persons disease!!

    My husband was told there is no treatment and just to use emolient cream so i dont think i will even bother going to the doctors!

    I am itching like crazy at times and with the fact that i get bad hay fever i am dreading the next few weeks sad my plan is to dose up with antihistamines.

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  • Posted

    :P

    Abbie , see my latest posting !! \"the cure\" - ive got my baby's bum back - yipee !!!! .... laughing

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