My daughter has been suffering with glandular fever symptoms

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My daughter has been poorly with glandular fever symptoms for over a year now and had a test back in May which was negative ,she is getting worse.she was admitted to hospital last weekend with chest pains but now think it's where her glands were swollen!all tests came back normal.she is suffering exhaustion and her limbs are in constant pain!she has had an ultrasound on her lymph nodes in her neck and it shows she's reactive lymph nodes!ent have told her there is nothing else they can do!i am worried beyond belief as we can seem to get to see the right specialist!she has another Paul bunnel test tomorrow (for glandular fever)has anyone had a negative blood test for glandular fever and then been diagnosed with it !thanks Alison

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5 Replies

  • Posted

    Hi Alison. I was told by my GP that I had glandular fever 10 months ago and I've been ill ever since. I have been sent to a heart specialist, lung specialist, dermatologist, ENT surgeon and I am seeing a rheumatologist this week. It's so frustrating, all I want is a diagnosis. Hope you get one soon
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  • Posted

    She had blood test yesterday and we saw the dr again to get new referral !back to hospital to see a haematologist !but the appointment isn't until November,how ridiculous, I feel so sorry for her,has anyone got any other ideas?

     

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  • Posted

    Alison,

    I fear that the Paul Bunnell test will not show positive if your daughter has been ill for a year the virus may not be still active in her system although the immune response at fighting off the illness will still be very active.

    The virus effects people in many many different ways, I can only describe my experience. My experience with the virus lasted over a year too initial effects did not bind me too my bed for two weeks then recover like alot of times.

    It hit me over months and months and made me tired and effected my mental health bringing great health anxiety and still effects me nearly 3 years later, tired days/get ill more often. 

    Positives:

    If the haematologist is not wanting to see your daughter urgently then they probably dont think its sinister.

    She will gradually get better, her immune system will pick up and she will fight this off.

    My General practicioner doesnt know much about what Mono can do to a persons body they just know what tests to do and tell you they can't do anything. So hopefully she can consolodate others who will go through the same thing.

    My number one piece of advice is keep your daughter away from google, its a scary scary place where self diagnosis is not only ridiculous and a fuel for mental health deterioration.

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    • Posted

      Hi,my daughters blood test came back negative but now she has another appt with ent again next Wednesday and she also has an appointment with haematologist in two weeks time!lets hope we get to the bottom of this horrid thing!

       

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  • Posted

    Hi again. The rheumatologist examined me and thinks I have fibromyalgia.
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