1. Community
  2. Bones, joints and muscles
  3. Hip Dysplasia and Disorders

My daughter has just been diagnosed with SUFE/SCFE.

Posted , 10 users are following.

Cle
Cle

Hi to all, We just found out 1st Feb that my daughter has SUFE. I am almost speechless at this situation. I will admit while speaking to the specialist I was completely done in. I think shock took over and that was that. He talked about 2 types of operation and all I can remember is the small one and the big one. We couldn't make any sort of decision right there and then. I told him we will have to come home and do some research on this subject and will confirm by friday what we are going to do. We have talked about it and she will have the big one which means bigger cut. You may think my gosh she doesn't even know terminology, but hearing this news and seeming to be not very nice outcomes, with more problems or worse. IT WAS SO SHOCKING. I will be finding out exactly what the op entails. She is having the MRI scan next week. Anyway I am prob waffling and I'm trying to keep a brave face on for my baby, trying to be positive but then I go into think think think mode and feel like OH MY GOSH. Any help, advice from anyone would be fantastic.

0 likes, 20 replies

20 Replies

Prev
  • nikinaki
    nikinaki

    Posted

    please please reconsider getting your daughters hips pinned. read my story at the blog I have posted here. I have needed a hip replacement since being 12 years old becsuse I wasn't diagnosed and pinned.

    Emis Moderator comment: I have removed the blog details as we generally do not link directly to personal sites like this. If anyone wants to read the blog please use the private messaging service to pass details.

  • arora
    arora

    Posted

    Thanks nikinaki. I checked your blog but couldnt get your history of first symptoms, whether it was diagnosed as mild scfe or severe. kindly brief me here if possible. thanks.

    the main reason why i am holding back on getting surgery done for my daughter is coz i have gone through a research published in an american ortho journal where they found out that in mild scfe cases 80% of the patients didnt have any complications in future life even when they didnt go for pinning. main condition/precaution is not to allow the slip to progress. hence my objective to minimize her activities for 3 months and then do another xray to compare the slip. it was measured at 24.8degree in early dec12 and i want to measure it again in march.

    • trolly-dolly747
      trolly-dolly747 arora

      Posted

      Hi

      I just wondered how you got on with your daughter?  My son had an acute slip nearly 2 years ago and he is still on crutches.  I know that you tried to minimize your daughter's activities to prevent the slip from progressing, but in my son's case, he did minimal activities (because I told him to), but his did not stop him from tripping over on a couple of occasions, and the action of tripping over caused his SUFE to become ACUTE, so you should not just leave it, as if the child has an accident it will become worse.  Anyway, there is a UK charity called STEPS, and they can give out phone number's of other parents who have been in the same situation as we try to offer help and support where we can. 

  • nikinaki
    nikinaki

    Posted

    hello again. it was mild to moderate when found 12m later. the damage done had caused the bone to die and some areas to begin to form bone spurs. Osteoarthritic already too. No previous problems before the fall. bexuase it has tried to heal in the slipped position is the reason it xaused so many issues. having said that I also know other sufe sufferers who have had pins and still had hip replacement by their 30/40's. Good luck I wosh you the best.
  • jeannette53134
    jeannette53134

    Posted

    Hi people I'm very happy to have found this my son is suffering really bad with pains started in left knee as cramp like pains den to hip & groin so bad dat he couldn't walk up r down stairs now 3 weeks on he is complaining if back pain ESP if running plz help??? R any of these symthoms familiar to u??
Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.