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my daughter is 3 and keeps getting pancreatitis what could be wrong with her

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jennifer72602
jennifer72602

my daughter was 1 when we found out she had pancreatitis and been seeing doctors for 2 years now and still have no answer on what is wrong with her. Her pancreas enzymes are always elevated and the doctors have no clue what could be wrong any suggestions.

0 likes, 3 replies

3 Replies

  • stuart13
    stuart13 jennifer72602

    Posted

    Hi jennifer

    So sorry to hear about your daughter.

    Although I suffer from pancreatitis, in view of your daughters age, it would be wrong of me to draw any comparisons.

    She really needs to be under a pediatric doctor with specialist pancreas knowledge. 

    I presume that she has been tested for CF. Even if she has not got CF it might well be worth you contacting a charity forum associated with this disease as they may well be best placed to offer very specific advice. 

  • paul55625
    paul55625 jennifer72602

    Posted

    Hi Jennifer, has your doctor checked for divism, thats where the major papilla (or main outlet) doesnt have a complete path to the sphincter which is the outlet to the intestine. I was part of a study to try to find the gene which causes divisum.
  • paul55625
    paul55625 jennifer72602

    Posted

    Hi Jennifer, has your doctor checked for divism, thats where the major papilla (or main outlet) doesnt have a complete path to the sphincter which is the outlet to the intestine. I was part of a study to try to find the gene which causes divisum. Also how many ERCPs has she had, and have they done a sphincterotomy?
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