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My daughter is 5 weeks and has TOF. She's getting a heart surgery next month and I'm scared

Posted , 16 users are following.

gretchen_08
gretchen_08

Please someone shed some light on my situation. I'm so scared of losing my babygirl

0 likes, 27 replies

27 Replies

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  • mercebernardo
    mercebernardo gretchen_08

    Posted

    Hi, My daughter also have the same heart condition. She was alao diagnosed with TOF, shes now 2weeks old. I just can't help but cry the first time I was informed about her condition. The Pedia Cardio said that shes still a "pink" baby since she still appears as a healthy normal baby but later on she will be "blue". Im sacred as you are since my baby also need to undergo heart surgery. We were advised by the pedia cardio to go back to him for check up after 3mos.

    Please update us about the surgery of your baby. I will also pray for her successful surgery.

    • gretchen_08
      gretchen_08 mercebernardo

      Posted

      My daughter just got the surgery on the 9th of May. She was healthy right up to her surgery date. I breastfed to make sure her weight was up. There were some unexpected complications but she's in recovery now. I'm still living the nightmare but thank the Lord she's recovering well. I'm here if you need to talk.

    • mercebernardo
      mercebernardo gretchen_08

      Posted

      Thank God for your daughter's successful operation. Im also praying for a successful one for my daughter too when that time comes. We will go back to the pedia cardio after 3mos and we'll see what will be done next. Honestly, im really scared as a first time mom. I want the best for my baby. Im lifting everything to God. Will pray for the fast recovery of your baby.

    • gretchen_08
      gretchen_08 mercebernardo

      Posted

      I pray the same for your daughter. I felt the same, I would always cry just by looking at her and not knowing how it's going to go but it's all for her well being. I'll pray for your daughter but continue with your faith. God is in control of everything and he won't leave your baby's side.

    • mercebernardo
      mercebernardo gretchen_08

      Posted

      Thank you Gretchen. I hope your baby will get well the soonest. I know it will really be scary when the surgery time comes, but I know God will take care of my baby during the operation. I hope we can exchange personal emails too for updates regarding this. Im from the Philippines. God bless your family.
  • jamie_28719
    jamie_28719 gretchen_08

    Posted

    Hi! I know that your daughters' probably already had the surgery, but maybe this can help with what comes afterwards. Use the advice as you wish, I'm not a medical expert! I'm 14 and I have TOF (type pulmonary dinosis) and I am a completely normal functioning teen (though I find cardio a little difficult, not impossible) The years after the main surgery can be a little messy as your daughter will probably need frequent check ups. I know that its important to keep your daughter healthy. Most of the reason I'm here without too many problems is the strict (vegetable rich) diet and foods that I ate. As your daughter gets older she might need a few more surgeries (I have needed two ballooning & stent operations so far) but with the right care she will recover quickly. I hope this helps in some way ?

  • wayne04151
    wayne04151 gretchen_08

    Posted

    I had Tetrology of fallot surgery in 1965.  That was back in the Stone Age of open heart surgery.  I’m now 56 and until last year had no problems except when exercising would get out of breath easy.  Last year I finally had to have my pulmonary heart valve replaced.  I’m doing great and for the first time in my life am not out of breath when I exercise.  Today’s technology makes these procedures a lot safer and with greater success than when I had it.  Get good advice and learn as much as you can before proceeding.  I will be praying for you and your daughter. 
  • Guest
    Guest gretchen_08

    Posted

    Hello, nice to meet you!

    My name is Sasa, and i'm 21 years old right now, a college student. I was diagnosed with ToF when i was 2 years old. But, at that time, my parents still didn't have enough money to paid such a big surgery. My doctor said that more earlier the correction are, the result will be more good. So my parents kept fighting to saved some money, until in 2002, when i was 6 years old, i had a total correction surgery. I feel very grateful that finally i had a total correction that time, so i could be here right now. Thanks to God, my parents, and all the surgeon team who could make this happens! :"wink Pray and have faith! i hope all the best for your daughter and family.

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