My daughter is six and has had HSP for 8 weeks. She has ...
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My daughter is six and has had HSP for 8 weeks. She has not had any kidney involvement, thankfully, but has had swelling and a rash that just will not quit. I was told that this was a 4-6 week thing and the doctors are very casual about it outside of insisting that her urine be checked. It is very much a no blood in the urine, no worries kind of scenario. This is so distressing to me because she has suffered tremendously with the only words of advice is motrin and benadryl. This rash has ravaged her legs, her elbows, her hands. Just when you think it is clearing, another round begins. I haven't seen her normal skin in months. It starts off like little bumps. It gets very itchy and swells up like hives. By the next day, it is flat and look like purplish red bruises under the skin.
I swear there is something more going on. My daugher has been a zombie with no immune system while this is happening. She has gotten several colds, the stomach flu, and now another flu with relatively high fever. Each time her body has had to fight some other illness, the HSP symptoms disappear altogether. As soon as she is on the mend from whatever was ailing her, the bumps come back and it starts all over. I have made an appointment, and she is going to be seen at a children's hospital next week. None of us can take much more of this.
[i:5197abd5e6]This message was automatically imported from the original Patient Experience[/i:5197abd5e6]
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lesley_18765 Guest
Posted
DadinTX lesley_18765
Posted
Now she is able to have regular activities with her siblings.
You have to give him fluids to keep him hydrated and clearing the kidneys.
Please do not use ibuprofen because it can increase bleeding in the stomach and kidneys.
Avoid germs because fever or other heat factors bring the rash back.
You have to consult a pediatric rheumatologist.
If the appetite is poor, use pediasure.
Like I said it will take time but it does subsite and go away eventually. Main focus is in the meantime avoid anything that can increase his body temperature and keep him naurished and hydrated.
Hope he gets well soon.
lesley_18765
Posted
shazia55803 lesley_18765
Posted
Hi! My 6 year old son just got diagnosed with hsp. Please tell me how your child has recovered. Did you see specialist? Any recurring of symptoms. Thank you so much
MKTK Guest
Posted
Hello there,
can you please tell me for how long did your daughter had the HSP rash?? when did you start seeing the end of it? My daughter is 6 and has had HSP for 4 weeks. and the rash is getting more agressive. please let me know how was the end of this terrible disease.
THANK YOU