Hi Guest, and everyone with DI. I am a 52 year old male, was diagnosed with DI at 19 yrs, and since then being on DDAVP spray.
For the passed few weeks I was getting headaches, dizziness (feeling like I was going to faint), double vision, and my face became very bloated.
Since then, I am monitoring how often I used the spray, which I noticed that I was over dosing myself, I begun by decreasing the dose, doing this all my problems got fix.
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Has anyone ever try getting off the spray/pills? Since I started monitoring how often I take it, I have noticed that I can go for long time without taking the spray.
For example, I take the spray at 9:00pm, I start getting the "feeling" (drinking water and peein) at 4:00pm, then I noticed that if I eat something, fruit or crakers, the feeling decreases by about 20% -When I have supper at 6:00pm, the "feeing" decreases by another 20%, by then I am not as thirsty and I don't pee as much either...but I do feel a bit dry though. I take the spray againg at 9:00pm, just before I go to bed, that is a whole 24 hrs with just one spray.
I am thinking about just quitting taking the DDAVP spray, do you know of enyone who has done it before? I want to do it, but I am scare.
Also, how much water DI people should drink, I know I was drinking to much water, that is why I had all the symptoms that I mentioned. I am hardly drinking water right now, maybe that is why I can go 24 hrs without the spray.
Also, has anyone try both the pills and the spray, are the pills any better? I know the spray can damage your nasal passages.
If I decide to quit DDAVP, I will let everyone know.