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Hi i have been diagnosed with diverticlar disease nearly 2 years ago.
it all started one day after work i felt run down for around a week and come home from work exhausted with a slight belly ache that became increasing painful i thought to myself ill have some dinner get to bed and try and sleep it off (how wrong was i) my partner come home later that night finding me in a cold sweat doubled over in pain i cant really remember much as i was in so much pain and fevered she dragged me to A & E against my will as i got in the door i collapsed thats all i can remember for 2 days i woke up in a ward with a drip there was a few doctors asking about my symptoms and i had to go for a CT scan had the scan they come to the conclusion i had acute diverticulitis i stayed in hospital for 2 week almost 2 weeks of nil by mouth sent me home patched up with some co-amoxiclav, I come out that hospital feeling brand new going back in a few weeks for a colonoscopy. i never felt so fresh full of energy i felt great, it didn't last long soon the pain come back only slightly as a dull ache and bad bowel movements and bloating constant horrible bloating, including constant exhaustion.
leading me to this month my exhaustion becoming a new level not having the energy to work coming home tired, i woke up on a Saturday morning in crippling pain, i thought in my ever wisdom i would ride it out (how wrong was i) woke up Sunday morning with literally no sleep, back to A & E managed to last to the first doctor before i collapsed with pain this time, next thing i remember is a doctor telling me i will need surgery for a colostomy bag and they would tell me in due course whats coming next Ive had another colonoscopy CT scan, patched up and sent home ready for a letter for a consultation, since this point I'm still in pain hardly eating and been reading horror stories of the colostomy bag how its very easy to be given but they are very reluctant to remove it and the complications of removal are worse than your original symptoms. i have since seen my local GP to be sent to a specialist I'm still waiting for a referral Ive also seen people being prescribed medication rather than the operation.
I had a horror of a hospital visit this time round with missed medication many people unable to take blood the drip feeds left in too long causing horrendous pain resulting in me having to take them out myself because they either refused or took hours to do it Ive got huge lumps under my skin where they was Ive been traumatized by the whole ordeal. i was told my diet was key in my first flare up 2 years ago i was told i was being referred to a dietician that never happened, my second visit Ive been told diet has nothing to do with it and i would not be refereed to a dietician.
only time will tell whats gonna happen to me I'm trying to get a second opinion as i they contradicted themselves constantly saying i cant have diverticulitis only being 28 (now 30) my hospital has been on local news for years for poor performance and huge internal issues, so I'm not overly sure they have diagnosed me properly.
All i can hope is other people have had a better experience in a bad situation than i have and maybe made them think about there own situation in more depth from my story.
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