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My name is Courtney and I’m 22 years old. I’ve been dealing with lower back and hip pain for about 5 years now and it’s been getting progressively worse. I’m not exaggerating when I say that I’m in pain every single day. I’m convinced that I have Ankylosing Spondylitis but none of my testing shows inflammation. So far I’ve seen my regular PCP, the spine center, the pain clinic, and rheumatology and none of them can figure out what’s wrong. I haven’t injured myself or had any change in mechanics, NSAIDs help outside of my flare ups, light walking helps a lot but once I stop moving the pain comes right back. Some of my symptoms include nightsweats (during flares), increased all over joint pain (mostly knees, elbows and shoulders), costochondritis (diagnosed Jan 17), extreme fatigue, pain induced insomnia, and early morning stiffness. My symptoms can be very debilitating, they impede my daily life including my job and it’s decreasing my quality of life immensely. I’m just tired of trying to get answers when my doctor don’t even seem to be trying. I send them messages every so often to give them an update on my pain and/or symptom changes and they’ve been getting slower at replying. Any advice (or words of encouragement) would be greatly appreciated. Feel free to ask question. Thank you!
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