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My Dr doesn't know what's happening to me

Posted , 5 users are following.

Bexwarnke24
Bexwarnke24

I've had migraines since 13, I am now 30. Two years ago I was diagnosed with vertigo. Only it's not vertigo and it's been getting worse. I will feel fine one minute, then the next thing I start getting extremely dizzy. My face starts to tingle and get a cold sweat. My arms and legs tingle and ger very heavy. I can't move. I can't lift my arms or legs. Sometimes I shake. Not alot. But it's all uncontrollable. I get very nauseated and extremely dizzy. While all of that is going on, I can't talk. My speech is so slurred and my vision blurs and doubles. It's almost like I'm very drugged up, but I'm not. Dr says it's aura symptoms from my migraines. Why would it change so suddenly? Why am I experiencing paralysis when these attacks come. It gets so bad I can't hold anything, or even look around with my eyes. Otherwise it gets worse. These attacks have always lasted no more than 3-5 hours at a time but they are becoming more frequent. My blood pressure has been checked, heart, I've had MRIs, cat scans.......the doctors don't know what causes it. Please help. I can't live like this anymorw.

1 like, 21 replies

21 Replies

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  • tanya05870
    tanya05870 Bexwarnke24

    Posted

    That is the same thing that happened to me! I have had migraines since i was  13 as well and one day out of nowhere i got a horrible episode of vertigo with the same symptoms you describe. And the dr i see just keeps telling me it is because of my migraines but i cant make sense of it since i had migraines for all those years and never had an issue with vertigo.
    • StevenRose
      StevenRose tanya05870

      Posted

      The thing is Tanya, they do evolve.  Mine started off as cluster headaches, I would get a horrible bout about once a year, then I started getting them all the time, until I got better meds, then I developed hemiplegic migraine as well.  The problem is the meds that treat my clusters, make the HM worse!
    • tanya05870
      tanya05870 StevenRose

      Posted

      Its so frustrating!!!! I was so scared the first time it happened and now I take nortriptilyne 10mg which does not help 100% but it takes the edge off but I wish I could find something better to take...
    • StevenRose
      StevenRose tanya05870

      Posted

      Migraines are so tough to treat as they have so many varients and so many treatments.  I would definitely see about Botox and Flunarizine,  These are good for migraines.  If the nortriptylene works to a degree, ask about increasing dosage to see if it makes any difference.  Or whether the side efffects out weigh the benifits.

      But if your symptoms get bad and you have weakness and slurred speach, call an ambulance straight away

  • nancy35879
    nancy35879 Bexwarnke24

    Posted

    Vestibular migraines are triggered by movement and light. I would also add that you started migraines once you had your first  same happened to me. I am 40. I have been symptoms free for 10 years thanks to an hormonal treatment to have constant oestrogen levels. Try progesterone pill without interruptions and you might see a big difference. Allow 3 months of intake to see the difference.
  • nancy35879
    nancy35879 Bexwarnke24

    Posted

    I had to see a vertigo specialist to finally know what was the problem. Most doctors had no clue
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