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Hello. I started having weird symptoms early august, with weird off balance issues, weakness in legs and leg muscles, went from one leg to the other, followed by arm weakness, nerve pain, weird vision issues, head aches, stiff muscles, joints, tingling, twitching all over body wide, the twitching can be non stop at times, chest tingling, night sweats, cough, dry eyes in morning, facial muscles weakness, sore jaw, sore throat, swollen lymph nodes. I mean you name it. My nervous system has felt like its been a wreck for 4.5 months.
Ive been through the ringer for neuro exams, MS, ALS, EEG, EKG, EMG and Nerve Test, MRI's, CTS of my brain, CT of my chest and pelvic region, spent thousands of dollars, only thing that has been positive so far is EBV blood test. Literally thats it. The twitching is what set off my severe anxiety though, thats what set off my severe anxietyabout ALS. This made me a wreck, started losing weight, not eating, slowly not interacting with my wife and kids, the fatigue, pain, weakness, all of its so debilitating. Not to mention i have to still work a full time job because i have a family to provide for. How are some of you coping? I'm 4.5 months in and i don't even recognize myself, my personality is not the same. Outside of my PCP saying just much rest, it could be CFS, what are some of you doing to treat? Just vitamins and eating better? Does anyone have a story like mine with nerve/neuro symptoms? I cant do a year or two of this, im struggling at 4.5 months.
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