My ETD experience & myringotomy no tubes
Posted , 8 users are following.
Hi all, first off let me tell you that I've been stressed about ETD for almost 2 weeks.. Ear problems started on July 2 while showering, a little water got in my ears & stayed for a good week. I got frustrated & stuck a q-tip in my ear & finally came out the water. After that, a throbbing pain kicked in a few days later which I ended up going to the Hosptial (it was night time & the weekend had already started). I was told I had swimmers esrs cause my canal was inflamed. Was prescribed antibiotics ear drops & was to use it for 5 days. After about the 3rd day, my ear suddenly clogged up (like a vacuum had sucked it). Didn't think too much about because I thought it was just the drops that got stuck.. After about a week I ended up making an appointment which I had to wait 2 weeks. By then, pressure built & muffled got irritating. Finally at the clinic, was told I had ETD and was prescribed mucinexD. I was confused because doctor was "assuming I had a cold or suddenly had allergies" (which I didn't have a cold nor do I suffer from allergies). After sbout a week I was literally going crazy.. Endless research online, crying, anxiety, hearing loss & feeling hopeless, I finally went back to the Hosptial. Was then asked by the doctor to forcibly get the tubes open by doing the valsalva maneuver which nothing helped. He then told me thst I had ETD & was prescribed prednisone, naproxen, afrin & mucinexD. After about a week, nothing was working, it was as if things were getting worse not better. I did not have any pain but only severe muffle & a whole lot of pressure.. After informing the doctor at the Hosptial that I fly out in 2 weeks, he then sent in a referral to an ENT specialist to help me since my anxieties were at that point, getting worse. Had to wait another week & finally scheduled my ENT appointment.. At the ENT clinic, doctor did all routine checks in my ear & found nothing but a retracted eardrum meaning negative pressure. Since I had no time to schedule a hearing test, he uses a tuning fork & believed that I had a middle ear problem. He then stuck a microscope into my nostril to see if there was a blockage but nothing. Checked my ear again & found nothing. I kept asking if he could cut my eardrum but he kept putting it off... I told him that it's driving me insane & I can't go on the plane not knowing if there's something seriously wrong... He kept saying afrin nasal spray will help before & after my flight but I was desperate for anything.. Finally my persistence paid off when he said ok I'll perform a myringotomy with no tubes but don't expect a miracle. I guess my desperation made me feel a tiny pinch as he was numbing my eardrum (he did mention that patience did complain of pain when he numbs the eardrum), finally he went in & cut.... He used a suction which didn't hurt much (heard it hurts a lot) & said I only had a little fluids. After the procedure, the pressure was gone but still muffled.. I was confused & disappointment. I felt like it was useless but he assured me that it was just my tubes swollen & that in time it will go away.. Besides, he said, I told you don't expect a miracle. At least the pressure was gone... Left happy because I told myself that if I fly out next week, at least I won't be in pain because of pressure since I'll still have a hole in my eardrum. He prescribed me afrin to take before & after the flight & another mucinexD. After about a few days, I started to get a nasty cold which I haven't had in years. I was beginning to get worried because every time I did the valsalva maneuver, my left ear would clog & ENT doctor did tell me to do it 3x a day to keep the hole in my right ear open as well to allow air to equalize. I was beginning to feel frustrated that the muffleness was already 100% & I could literally hear myself so loud in my head............. Finally, a few days later when I told myself I'm tired of having this affect my life, I'm not going to care anymore, it happened... MY DAMN EAR HAD A SOFT POP & it wasn't as muffled.. I didn't want. Jinx myself so I told myself, nah it's going to muffle up again... So the next day I woke up & I couldn't believe that it was actually gone... I don't know if it was the myringotomy, me giving up, meds or perhaps all of it but one thing is for sure, it has been gone for a few days now
0 likes, 10 replies
shaivin85010
Posted
carmel83758 shaivin85010
Posted
shirley_94642 shaivin85010
Posted
I'm experiencing that same problem now. I have had it for 7 months. First, I went to an ENT who prescribed medications which didn't work. Second, I went to an an acupuncturist and that didn't work. Third, I tried the Eustachian Tube Conditioner machine which didn't work. It sounds like I need a myringotomy without the tubes. My insurance terminated, I can't afford to pay out of pocket for a myringotomy? Any other suggestions?
shaivin85010 shirley_94642
Posted
Sorry to hear about what your going through. I definitely understand how frustrating it gets especially when it gets to the point that your going insane. Unfortunately, I don't know what else you should do. I guess if there's any way you can contact an ENT & have them evaluate it. Ask them what would it cost just to get them to check it & hopefully they can work something out for you.
shirley_94642 shaivin85010
Posted
Thanks. I will do that. It is definitely a troubkesome problem wuth hearing ALL of your muffled sounds in your head! I can't even sing to myself or even hum!
dawson28 shaivin85010
Posted
That's great your ears are better im 14 and got a cold and sinus infection but 2 weeks ago but right sfter it cleared my ears now feel a little clogged and sometimes hurt and they are ringing when I swallow or yawn they pop and click im not sure what to do I can't get to a ENT for a while and im going on a plane in 2 weeks im taking nasal spray but it hasn't done much if u could help I would appreciate it thanks!
ann5678 shaivin85010
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tammy5673 shaivin85010
Posted
Hi - this is so frustrating and scary! My story is that i had a nasty cold ended in an ear infection. Primary care doc said it was the worst infection they'd ever seen. Was put on antibiotics and drops after a week i went back because iI still couldn't hear anything and ears were ringing. Infection gone and I was then sent to ENT. Freaking out bc I still couldn't hear anything and terrible ringing. Worried about hearing loss. ENT put me on steroids, Still no relief. Went back and they said they would perform Myringotomy surgery. Doctor said you'll have immediate relief. I did not . I asked her what her definition of immediate was ? She said most people have immediate relief, but some can take longer. That did not sound good to me, you told me beforehand that i would have immediate relief and that is NOT what happened. She should have said that you MIGHT get immediate relief. but may take longer. Anyway she said don't worry its just going to take time. Well I'm going insane with hearing myself talk, ringing and a feeling of something stuffed in my ear. I'm not going back for 6 weeks! Will I ever be able to hear again? I'm so dizzy and uncomfortable!! I want my life back!! Is there hope to hear normally again? They did do a hearing test and said hearing loss was caused by a blockage but they removed the water in middle ear so what else could it be?? I'm so worried!!
tammy5673
Posted
well it now looks like i have MRSA in my sinuses that are causing the problem. This would also explain why the antibiotics are not working. Going on my third round of antibiotics.
denise36896 tammy5673
Posted
hi @tammy5673 can I ask how you are feeling now?