My experience of huge complex ovarian cyst
Posted , 52 users are following.
More of a story than a question in case it helps some of you get through the scary waiting time. I know that it is really hard as if you have this problem you will be looking for information and realising at the same time that your situation is only yours. I am telling you so that you can hope for a good outcome rather than expect the worst.
I am 50 years old and was still having regular periods.
I noticed my tummy looking a bit humpy on the right side about 3 months ago. I pushed the lump and the hump moved to the left. Trapped wind moving I thought. However it started getting bigger and when I tapped it sounded like a watery whump. It grew up and over to the middle so I looked pregnant. My insides gurgled, I was constipated and had bad backache every morning. My whole back was sore andI felt a bit out of breath. It got better when I stood up.
I could not get an appointment with my GP. Rang many days but missed the available slots. Called again and said I would have to use A&E, which I would rather not, if I couldn't see someone. Pain!
I had a total hysterectomy and removal of my appendix.
After surgery the consultant told me he felt the cyst was benign. I know he would have to feel confident to say that and he does expect the pathology to confirm.
It was a mass of mucus filled chambers with very thin walls and he had to scoop it out as it had become a mush. The appendix was also filled with mucous.
So here I am 5 days post op, gone through the fears, made a will and died many times in my head. Now I just need to get the confirmation of pathology and get the HRT. I will make sure I get testosterone as well so that I do not lose all my pubic hair.
9 likes, 178 replies
Regina777
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clareyscarey
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Regina777
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was was filled with liquid. I am now confused and really worried/upset. He is trying to get me an appointment next week I did say I was willing to go privately but he is not convinced this is the right option. He did say he
would speak to consultant he knows. I am desperate to get things moving. So worried, why did the ultrasound technician say it was a cyst?
clareyscarey
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Regina777
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can feel something. I too have heard what you say about fluid filled cysts, but who knows.
Everyone says not to worry but I am sick with worry. It's the not knowing.
In emotional turmoil but really appreciate your support.
Emis_Moderator
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I've removed the duplicate posts. There is an issue with the site the developers are looking at now.
Regards,
Alan
Emis Moderator
F1SH
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I too have been diagnosed with a humongous complex cyst - some fluid filled, some solid. I'm awaiting my consultation with the gynecologist oncologist this coming week.
I'm caught in between feelings of wanting it out yesterday and dreading the great discomfort I know will be ahead of me post op. I've been told to prepare for a cut from sternum to pelvic area to remove the cyst and have a total hysterectomy. I remain positive that it will come back benign as that is a bridge to cross when I hear otherwise.
As I'm 51 I'm not too fussed at loosing my reproductive organs, however am a little nervous about all the HRT as I've not yet approached pre-menopause. I'd be very interested to hear your experience of it or if anyone else could share theirs. What can I expect?
clareyscarey
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shanda
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How long is the recovery if I have surgery? Does any one know. Anyone that has talked to a gynelogical oncologist know their thoughts...is the wait and see approach really practical?
Thanks!
clareyscarey
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julie2510 clareyscarey
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Regina777
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The period between the ultrasound, blood tests, CT scan and the meeting with the consultant to discuss the results has been been an emotional roller coaster ride and now getting through Christmas another challenge. I just hope the cyst is benign.
becky39113 Regina777
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Hi, I? know you posted a while ago but what was your outcome?
donna89362 becky39113
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Thanks for asking. I had a biopsy which came back good. I also had a DandC and now bleed and cramp worse than before. My cysts haven't grown nor moved thankfully, but my fibroids are growing. I'm afraid of having surgery for fear of making it worse and having a 36 year old friend pass last week due to a clot after surgery. I'm just going to try to deal with it as long as I can.
deanomatino
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I have just been through this scenario - you are right , it is very scary - I am 65 (just) and it is now appx 5 weeks after my surgery which was the 11th of November. My cyst was 25cm and weighed just under 4 kgs. The surgeon removed everything. The worst part was leading up to the surgery, and like you I had not been in hospital since my early 20's. Also not knowing the outcome was a worry.
Once you are in theatre, and are anesthetised , it seems like seconds later they are waking you up. I had a morphine drip, catheter, drain and breathing apparatus attached which was not too bad - I can barely remember it now. The nurses were amazing and I managed to get up the very next day and have a shower (with help). There was hardly any pain, but I was not well, unfortunately I am allergic to metal (which I did advise them about), and they had stitched me up with staples, so I had to have a further operation a week later to remove the staples and be restitched. I recovered very quickly after that and was home two days later. I was lucky and they advised me the day I was leaving that my cyst was benign. I should have only been in hospital for 5 days.
Five weeks later I am driving, doing general housework, walking easily (with care) and am due to go back to work on the 5th Jan. I am being careful about reaching up and down as don't want to strain anything. I am feeling a lot better than I did before the op.
I have actually lost weight (which is good), my CA count was 7, I am sure that as you are 10 years younger than I am you will breeze through the whole thing. I do hope this helps. Apparently the bigger the cyst, the more likely it is to be benign. ie. it has been there a long time.
Regards Carol - New Zealand