My experience of huge complex ovarian cyst

Hi JennWAg and Denny

I totally understand your worries, and no matter how many people tell you not to worry about it until you have to, you still do. It's human nature but I tried to force myself to concentrate on the positive and not allow myself to think of the negative.

Our bodies are funny things, and it doesn't do to compare what you are experiencing with the next person as we are all each individual. JennWag, In my opinion the doctors should be concerned until they have opened you up and its all been to the labs for testing. There are too many horror stories of doctors who haven't been concerned enough here in the UK, so don't let that scare you too much.

I also was in two minds about whether to tell my mother before I had the surgery, etc., but I thought to myself it it were my child I'd be so hurt if they didn't allow me to offer my support at a time when my child probably needs it the most. The same with your friend/s. Let them support you, they would want to. I know I would want to support any friend of mine. I found my family and friends to be wonderful when I needed them earlier this year, even my work colleagues, everyone kept me positive. I couldn't have gone through it on my own.

Sending you both warm positive thoughts and pray you both get it sorted out quickly as the waiting is the absolute worst.

Lx

Good morning ladies, well I had my operation on the 3rd March and have returned home after 7 days in hospital. It turned out that I had 2 cysts one huge one 17cm and a smaller one on the other ovary. The large cyst had shoved my bowel down into the wrong place and was attached to it. My bowel was also covered in scar tissue which had to be removed and my bowel moved back into place. During the operation they took both my ovaries, plus my appendix and sample tissue. I now have a huge vertical scar running from my pelvic bone to above my belly button. I had to stay in longer than expected as I could not eat for 3 days due to severe nausea and because my stomach was so bloated and distended. Once I started anti- nausea tablets and the swelling went down a bit I was able to eat a little again. It has been a slow, painful road to recovery but I am getting there. Glad to be home now, although still in pain, but I am able to potter around. The doctor has given me strong painkillers Tramadol and Ibuprofen which are helping. I had fantastic care at New East Surrey Hospital and felt no pressure to come home early. They were very keen to ensure that I would be able to manage on my own once home. The scar is healing well, a little bleeding when the steri-strips were taken off, but that stopped quickly. I have a couple of blisters at the bottom of the scar, from the steri-strips (an allergic reaction), which are weepy, but they should heal in a few days. My sample results came back while there, no signs of cancer thank god. Overall I would say it is a painful procedure, but you are well looked after and the first few days are the worse. Every day I feel a little better and I so glad my aliens are gone! Looking forward to the Spring when I will be back to full health ready to enjoy the summer with a nice flat tummy

Jenny - so happy to hear you are home and recovering, and that everything was clear! What a wonderful way to start the Spring! Many blessings and much happiness to you in the weeks ahead!

F1SH - thank you so much for your thoughtful and kind words. I know I would be there for my friends/family in an instant, but it's not always easy to reverse that, especially with my Father. Perhaps after the biopsy Thursday, depending on what the Doctor seems to think, I'll tell him what is going on. I just hate to worry him as even though he is happily re-married and it's been 26 years since my mom passed away, he internalizes all his fears about what I may face in the future and he holds his breath every year when I have my mammo. I just feel like I can't make him worry until there is something solid to worry about. (And even then I hate the idea of scaring him as my mom's death was such a shock).

In any event, I thank you so much for everything you said and I'm trying to visualize only positive outcomes!

Have a wonderful week everyone!

Jenn

Hi all

Have been reading through all the positive and supportive messages and trying to take in the details.

All the Ovarian Cysts seem to be on the right side, the solid mass that I have which has a number of cysts in it is towards the left and on top of my ovaries, has anyone else had any experience like mine? Size I am told is 12.6x16x10cm.

Ultra Sound Scan was inconclusive, had my CA-125 and CEA CA-199 bloods done yesterday and have a CT Scan on Thursday with a Clinic appointment at Gynaecology on 1st April. I do have support but am so worried and scared of what this is going to be.

I just turned 27 and on 3/10 I was told I have a complex cyst with an echo a little larger than a golf ball. I read all your stories and you are all amazing ladies who are going through a lot! I feel fortunate that my cyst is smaller but at the same time it still lingers on my mind. My doctor put me on birth control for 6 weeks to see if that helps reduce the size. I have another internal ultrasound on 4/24 to see if it changes in size. Did everyone here with a complex cyst, even a small sized one, have to have they ovary it was attached too removed as well? I'm still young and I don't have any kids and I worry that this will make it harder for me in the long run. I just hate waiting... I feel that either way they are going to remove it and just wish they would remove it now so that I don't have to sit and think about it every day. I've been feeling nauseous and sick for a few months now. Did anyone else have anything like that happen when they had their cyst? I read that the cyst could mess with hormones causing this feeling. Thanks everyone!

I am from the US but feel this is a great forum for me. I am 29 years old with 3 children's ages 14,12 and 6. I do have anxiety..but I had a routine Pap done on March 4, 2014. During which the PA noticed that my right ovary "seemed a little big" she grabbed it, I think, which really hurt!! I had an ultrasound done the next day, they had told me they were going by the ultrasound to decide if I'd need to see the Dr. or not?! They called back and all they said was that the ultrasound showed there is a cyst on the right ovary and that I'm to schedule another follow up ultrasound for around mid April to see if it has shrunk or gone away on its own. Since then I have had several issues, my GP says is my anxiety. But, I will have some pain around the ovary area in and off, not severe though. I'm also dealing with my bladder will sometimes feel burny, I'll feel like I have to pee more and sometimes have bubbles in my urine. My GP has done urine dip and sent it away, and bloidwork which all came back (WBC, rbc, liver panel, kidney and creatinine etc.) they all came back normal. Also, having constipation and left back/abdominal pain some days and it will sometimes feel, when sitting, like I'm not getting enough air though I can take deep breathes. They never said how big the cyst was and really didn't say much or seem alarmed. Of, course I am soo worried!! I've had a CT on my chest due to shortness if breathe which came back lungs, diaphragm and heart are great!! Should I be worried? I HATE waiting for this next ultrasound!! I'm not having anymore kids but am still so you g, can I request they just take it out?! Should I?

It sounds like they think it is a literal or functional cyst?.which is just fluid. I don't think for a minute it would be left if there was another possibility. These cysts do not cause a danger cancer wise but can get big and need removing. They can cause pain.

Luteal, instant spell check?!

I have read the posts so far with interest - I only wish I'd found this site/blog a month ago! I' 53 years old and living in the Middle East. It's 11days since surgery to remove a largish cyst (12x12 or so) from my right ovary - which had adhered to my bladder - along with the right ovary. I'm still waiting for the results of the biopsy on my left ovary and the cyst etc. which have been sent to the US for a third opinion. My surgeon and gynacologist tells me that means it probably means a borderline malignant situation. My CA 125 results are not overly high. Recovery has gone pretty well - I was back at work for half days three days ago - and stitches came out today. The strangest thing was having a period seven days after the surgery when I hadn't had one for 2 1/2 years and thought I was full into menopause. I'd appreciate any comments on that.

clareyscarey, I honestly don't know what kind it is because they haven't told me. But, I have been having a ton of problems that started just a week before they found it. I don't know how I've gone from fine and healthy to scared everyday because something is hurting or feeling off. I'm not sure if its this cyst but I'm scared something is going on in so many places and that worries me on if its something that spread. But, this all has literally hit me day by day for over a month now where I'm scared to even sleep.

Worrying lights up pain phantoms. Ask you doctor if this is a functional cyst as this is usually quite clear but they may not have thought to reassure you or realise that your mind had leapt to cancer. . In my twenties I had them often. Balloons that go up and down. They can sting. They just need checking in case they twist or may burst. I am over 50 now and my big op around my ovary last summer was nothing to do with that. You may have gone too far with diagnosing yourself and find that if you ask, you might never have worried. Sleep well! X

I thought perhaps an update is due. I was eventually diagnosed with pseudomyoxma peritonei. A low grade version. My scans remain clear, tumour markers in normal range and I may not need further treatment for years if at all. I am fine with that as even if it does pop back, it is even clearable. X yet you would not know that things could look so optimistic if you Googled!

clareyscarey, Thanks for the reassurance as well as the advice. I will call my gynocologist tomorrow and ask. Now for the past few days I'm having issues with my bowels. My stomach feels full and bloated, I can't seem to get my stool out, what did come out had a little bit of red in it. I don't know if its hemorrhoids since I have had constipation issues. But, my stomach and sides will hurt and be gurgly...I have an appt with my PCP on Thursday I'm going to discuss it with him, but he's been saying that everything is anxiety, I don't know, maybe it is!

I may call and see if he can even see me sooner

Also, sometimes u get a quick sharp pain like in a side of my vagina, sometimes on one and sometimes on the other...is this normal?