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My experience of huge complex ovarian cyst

Posted , 52 users are following.

clareyscarey
clareyscarey

More of a story than a question in case it helps some of you get through the scary waiting time. I know that it is really hard as if you have this problem you will be looking for information and realising at the same time that your situation is only yours. I am telling you so that you can hope for a good outcome rather than expect the worst.

I am 50 years old and was still having regular periods.

I noticed my tummy looking a bit humpy on the right side about 3 months ago. I pushed the lump and the hump moved to the left. Trapped wind moving I thought. However it started getting bigger and when I tapped it sounded like a watery whump. It grew up and over to the middle so I looked pregnant. My insides gurgled, I was constipated and had bad backache every morning. My whole back was sore andI felt a bit out of breath. It got better when I stood up.

I could not get an appointment with my GP. Rang many days but missed the available slots. Called again and said I would have to use A&E, which I would rather not, if I couldn't see someone. Pain!

Click here to view image

Click here to view image

I had a total hysterectomy and removal of my appendix.

After surgery the consultant told me he felt the cyst was benign. I know he would have to feel confident to say that and he does expect the pathology to confirm.

It was a mass of mucus filled chambers with very thin walls and he had to scoop it out as it had become a mush. The appendix was also filled with mucous.

So here I am 5 days post op, gone through the fears, made a will and died many times in my head. Now I just need to get the confirmation of pathology and get the HRT. I will make sure I get testosterone as well so that I do not lose all my pubic hair.

Click here to view image

9 likes, 178 replies

178 Replies

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  • june77782
    june77782 clareyscarey

    Posted

    Post op not mop and thr 60 was 60 pound for the transvaginal scan whereas the health screen hospital was 180
  • Keeks8
    Keeks8 clareyscarey

    Posted

    I've been reading everything I possibly can on Complex Ovarian cysts and the like.. this discussion has been a good read. 

    This past thursday I had went into the doctors b/c I felt I had a UTI (never had one before)... I had severe gripping/pressure type pain when I urinated.. no burning, just that weird pressure. I also had a constant dull ache in my abdomen. 

    So I went in, they did a urine sample-- came back "crystal clear".. so my doc had me lay down and palpitated my abdomen which (near my belly button) produced a gasp of pain from me and immediate tears in my eyes.  She carefully checked the rest of my abdomen, then my back. She started to rattle off everything it "couldn't be" and wanted to get me in for a u/s immediately. It was unavailable (it was 4pm at that point) so she sent me to get a full hormone panel and scheduled me for a u/s down in the city at 8am sharp the next morning.

    Apparently the U/S tech wasn't supposed to tell me anything, but she felt bad for me and knew I was in quite a bit of pain. She showed me a complex cyst on my left ovary which she told me was probably causing the general dull ache I've been feeling in my abdomen and back. Then she found a "Fluid filled mass" below my uterus, but pushing up on my bladder, not allowing it to fill completely, which she said is likely causing that pressure/pain when I urinate. It was quite large looking, but she gave me no measurements.

    My docs office would tell me nothing-- saying she couldn't read the results b/c it wasn't her speciality.. and referred me to a specialist and sent all images over. The specialists office then called me later that day and got me in for tomorrow (5/29) at 2pm for repeat U/S and appt at 2:30pm.

    I'm feeling really nervous and anxious as all I have to go on is what the tech told me... how likely is the tech right? could she be wrong? 

    I've been experiencing this pain for about 2 weeks now, I've also gained 5 lbs in just one month and I am NEVER one to gain weight unless I'm pregnant (and obviously not pregnant!).. the urinary issues are really annoying as well-- I'm going almost ever 30mins, seems like I'm going A LOT..but the pain of going is driving me crazy. 

    What can I expect at this appt? Will they tell me everything? I've never had cysts of any sort before in my life! I just had a pap smear back in Oct 2013 that came back clear.

    • clareyscarey
      clareyscarey Keeks8

      Posted

      Hi there. You will get a lot more infomation tomorrow, although they won't be able to be definate about anything without pathology.  They may be able to say what is suspected and ive a timetable for surgery. It is good that you will be seen fast because of the pressure on your bladder and internal organs. Will be thinking of you tomorrow. make sure you get back to us.

       

  • june77782
    june77782 clareyscarey

    Posted

    Hi ladies

    I got my ct report the day I had it as I had paid for scan to speed things up. Although your surgery sounds fantastic getting you in for tests so quickly . I have

    My op on 9th june. Initially dizzy all the time then lower back pain but in the last six weeks

    Been getting a pulling sensation where

    The cyst is but also pain on the opposite side but more scarily under my ribs and pains in my leg. Not sure

    If it pressing on nerves as

    Well as pushing it up but I'm really scared. Had two hours sleep last night where was so uncomfortable which then panicked

    Me. I feel

    Like a right baby but one day I'm fine

    Next day I'm

    Emotionally all over

    The place. For any post op ladies, did you have morphine or epidural? Have

    Been told may

    Be offered either and not sure

    What

    To do!!! Xx

    • monicaincanada
      monicaincanada june77782

      Posted

      June they moved my surgery up a week so I will have it on Monday.  If at all possible I will check in and let you know what to expect.  I will be post-op before you.
    • june77782
      june77782 monicaincanada

      Posted

      Hi Monica, you lucky thing (I have my bag packed already, you'd think I was going on holiday). I am really pleased for you, this time next week you will be on way to recovery. I hope al goes well and I will be thinking of you xx
    • june77782
      june77782 monicaincanada

      Posted

      Hi Monica

      Thinking of you today. My very best wishes for

      Tomorrow and your op. 

      Make sure you look

      After yourself and rest

      June xx

    • monicaincanada
      monicaincanada june77782

      Posted

      Oh, June, that is so sweet of you.  If I can I will definitely post back here afterward and let you know how it went.  

      I can tell you this much:  While I am very nervous about what lies ahead, as everyone else here says, I want the alien out more than anything else.

    • clareyscarey
      clareyscarey monicaincanada

      Posted

      All power to you! hugest of positive thoughts coming your way. X

      Out with the interloper! x

       

    • june77782
      june77782 monicaincanada

      Posted

      Monica I'm so with you on that one. One week to go for me and as you saying apprehensive but think as my aches and pains getting worse I'm more afraid of when I wake up and find out exactly what they take and what it is. 

      Click here to view image

      june xx

    • june77782
      june77782 clareyscarey

      Posted

      Clare

      not seen any updates from you for a while, I hope you are continuing to recover well. I followed your discussion for a while, as well as some of the others, it was really helpful to hear so thank you for posting, I'm a born worrier and to be able to relate to others with the same problems has been a  great comfort.

      Hope you don't mind  me asking (sent this the other day but not sure where I posted it)' were you offered an epidural? They mentioned to me this would be offered instead of morphine (which I've had years ago) not sure I like the sound of it but just wondered if it was more beneficial . I also have six energy type drinks to take over the eve and morning of op, not heard anyone else mention these and was just curious if you had them. could be just different health authorities 

      thanks 

      June

    • monicaincanada
      monicaincanada clareyscarey

      Posted

      Clare thanks so much.  Once in the operation things went a different direction than they foresaw including needing transfusions so my experience won't fit with others here.  What I will say to June or anyone nervous about the operation is that you don't have to DO anything,  Nurses and doctors take care of everything.  You just follow instructions and you can do that, right!!

      Look for my private message.

  • joan34059
    joan34059 clareyscarey

    Posted

    Surgery all done! Consultant happy that there was nothing else other than the cyst there - and that everything is ok. Just got 2 weeks off to recover now. Will be happy when the bloating goes down and I can wear my clothes comfortably!!
    • clareyscarey
      clareyscarey joan34059

      Posted

      Now that is good news Joan. Really pleased for you. All in time for Summer, have a great one. Clare x
    • bev14365
      bev14365 clareyscarey

      Posted

      Hi clare just to update you im booked in for surgery on the 17th of june 😀 hope your ok.    Bev 
    • clareyscarey
      clareyscarey bev14365

      Posted

      That is good news. My health in relation to my op is fine. you will feel much better soon then! Let me know how it goes. x

       

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