My experience with a chronic anal fissure

Posted , 107 users are following.

Hi all

I thought that I would post this as a lot of people appear to be going through the same agony that I was going through for over a year.

Anyway, I was at uni and going through a bad time in my life, whenever I get stressed my guts go into turmoil. As a result I was off uni for a week with severe rectal pain and feeling lower than a snake's belly. I booked an appointment with my GP as I had experienced similar symptoms before.

My GP recognised the symptoms immediately, I thought I had piles, she said I was too young so had a look. The digital examination wasn't fun, in fact she said she had never seen anyway change colour so quickly but it was worth it because I was refered to a colo-rectal surgeon.

I took my sick note back into my tutor and as I was doing a clinical degree, he said straight away that fissures were worsened and sometimes caused by stress. The penny dropped.

As I said I was going through a very very bad time in my life which necessitated me going on antidepressants (Cipralex) for my emotional state. When this was added to wall climbing agony due to fissures I was near breaking point. I remember after one bowel movement almost fainting with the pain, I was lying at the top of the stairs at my mum's house and clawing at the wallpaper with my fingernails - I have had a broken leg and in terms of pain that fissure was far worse, trust me.

I went to see the colo-rectal surgeon a few weeks later, I was terrified, but he was a lovely man, very very considerate. He told me that I had a large fissure that could be helped with an ointment. I told him my background so he talked a bit more openly and said that fissures are an incredibly debilitating condition. He once had a 16 stone rugby player openly weeping on his consulting couch with the pain - I can understand why.

I was prescribed GTN ointment and started using it as directed. I had a slight headache which I could live with, but this was far better than the agony of the fissure and this headache was pretty much gone after the first week. After a week of use the pain from the fissure had also subsided to nothing. After six weeks I went back to the surgeon and I was healed.

I wish that was the end of the story but it isn't, I have probably had four or five bad flare ups since and dozens of other twinges, spasms, bleeds and itches since but I am nowhere near as bad as the first time - I can live with this now. I have seen the surgeon twice since and he has offered surgery but my frame of mind precluded me from that, I was simply terrified.

My GP is very understanding and I can get GTN on prescription whenever I need it. I was prescribed Anoheal by the surgeon as well but this didn't work as well as GTN for me, but I have seen cases in work where this has been incredibly effective.

As I said earlier, I was doing a clinical degree, which I have now passed, so I feel that I am pretty well qualified to offer a bit of advice, so here it is.

1. Go and see your GP. Don't be embarrassed, your doctor has seen dozens of these - they are very very common. If you get fobbed off or feel that you haven't got anywhere, go back and tell him/her that you are not happy and you will go elsewhere i.e. change your GP. Changing your GP hits their bank balance, and as GPs are notoriously greedy, they will do something. Nobody should have to suffer with this.

2. Take something for the pain but NOT codeine. Ibuprofen worked best for me.

3. Drink plenty of fluids and lay off the alcohol while you are healing.

4. Eat lots of fibre and fresh fruit and veg, switch to brown bread and have something like Weetabix for breakfast. This softens stools and makes them easier to pass - less pain and less damage to existing fissures.

5. Use a stool softener, one Movicol sachet daily really really helped me. You can buy these over the counter from your local Pharmacist but tell them what it is for. Alternatively get them on prescription from your GP.

6. Lay off the red meat, there is some science to this as meat increases the residence time in the gut and predisposes to harder stools. This really helped me and I have seen a few accounts here where sufferers also say that.

7. Try to relax, easier said than done, but try simple things like having a hot bath instead of a shower. If anything helps you, no matter how crazy or off the wall it may sound, carry on doing it. Going out for a drive helped me. Staying active also helps constipation and makes you feel better. Don't stay in and stew - stay positive.

8. Stick to the doctor's directions of any drugs you are given. If you are told to apply a cream for 6 weeks into the anus, then make sure it goes into the anus for 6 weeks. And into the anus means into the hole - not nice, but a lot nicer than the agony from an untreated fissure.

Remember you are not alone, these things can be cured. You will feel terrible and you will feel like nobody else understands what you are going through but believe me, these things are very very common.

And if all the above doesn't help there is a simple operation that can be done on a day case basis that has a 95% chance of curing it for good.

If you are reading this you are no doubt feeling horrible but believe me, there is light at the end of the tunnel.

Good luck with your pain in the ass.

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  • Posted

    I fully sympathise with your report. In my case the fissures have not responded to botox injection, followed by GTN and (new not yet licensed in this country but allowed for colorectal surgeons to use in their clinics) Diltiazem. I am doing regular camomile sitz baths. I meditate and do, when possible gentle Yoga exercises. I ised to be very active: cycling, swimming, running but had to give this up now. I am not in stressful situation in my life - apart from the persistent anal pain. Bowel movements are only mildly uncomfortable for me but I suffer agonising pain when walking or bending down.

    The only pain killer that gives me temporary relief is Codeine. Paracetemol or Ibuprufren are useless, so is Tramadol.

    I know of the addictive potential of codeine, but are there any other considerations why this should not be taken?

  • Posted

    Codeine or any other opioids will cause constipation, which is exactly the most important thing you want to avoid with a fissure, so avoid if at all possible. Softening the stool is the whole aim of treatment - may assist with healing and avoid worsening the fissure. Fibre, fluid & stool softeners all the way!
  • Posted

    Hi, I’ve recently been diagnosed with CAF following admittance to local hospital via A&E. The pain has worsened over the past 8 years. Through embarrassment and fear of something worse (I used to work in the furniture manufacturing industry and can name about 20 former colleagues who have passed away with bowel cancer) I couldn’t or wouldn’t visit the GP. Following surgery, biopsies and Botox 3 weeks ago, the pain has eased but not gone. I experience pain following a bowel movement, extreme pain if I go more than once the same day. I have tried to pin point within my diet trigger foods/drinks and trying to avoid. No pain killer will ease it, paracetamol, ibuprofen, codeine or tramadol. When I was admitted, the only thing what would ease the pain was morphine and that was only after 40ml. That’s a lot from the medical web sites I have trawled through. Anyway, my question to go out there is, food and drink triggers. Who experiences triggers through this and what to avoid. I know were all different but I need to start somewhere. This has seriously affected my day to day life with both work and home life. I am currently off sick due to the pain and this is my 3rd week off, the longest period of sickness since 1993. Thank you for any advice.
  • Posted

    I am currently suffering with my second bout of CAF. The last was 12 years ago and I think was related to stress and exertion. It lasted for around a year and cleared up after using GTN. This time it came on after a severe episode of constipation. This was back in August last year and have been suffering ever since. My trigger for the constipation was popcorn.

    This time around its much more painful (and I mean really painful, so much so that when I had a septoplasty operation last week it helped take my mind off the pain!). I am active, healthy with a good diet and drink plenty of water. I have been eating paracetamol and ibuprofen for fun but not with any success. I have tried paramol sparingly but cautious not to cause constipation. This time around I have tried GTN for months but the condition has been getting steadily worse. I had a very painful examination by the colonic specialist who said there was nothing sinister as an underlying problem but shrugged his shoulders as to the anal fissure itself! I have been back to the GP several times and am now on Diltiazem. I am hoping this works better than the GTN as I have read up that Diltiazem is much better than GTN as clearing up CAF. The Diltiazem is supposed to reduce the internal sphincter pressure and increase blood flow to the area much better than GTN. So far no headaches as I got with GTN but I have mild fecal incontinence and lightheadedness as a result of the Diltiazem. When I mean mild, if I have to go, I haev to go there and then and the muscle tone in that area is "slack" meaning its difficult to "end" a poo if that makes sense.

    Currently off work for 2 weeks following the nose op but I was hoping for some respite from the CAF as well as its become unbearable for me at work. The latest GP I have seen is the most sympathetic of the lot and will sign me off for the CAF if I need it. What I am afraid of is that if I extend my sick leave I might stay off for month the pain and discomfort is that bad.

    Trying to be positive.....

  • Posted

    Hi there, sufferer for over 13 years, my triggers are sweet corn, seeds or seeded bread and also pizza base. Hope this helps. I had a sphincterotomy about 5 years ago and up until recently it had helped, I had a severe infection in my arm( nothing to do with the fissure) but I was on IV antibiotics daily for a week followed by 10 days oral antibiotics which caused diarrhea which has flared everything up again. I have now been suffering for 2 weeks but am hopeful of a recovery from this as was fine up until diarrhea. Hope this gets better:-(
    • Posted

      Excuse me - I was interested in your story. How are you now. 13 years is the longest time period I heard of someone suffering from this.
    • Posted

      Hi I am coming up to 15 years now, I had Botox again in June and this seems to have worked for now, I don't hold up much hope as I know it will come back once the Botox starts to wear off, which is usually about 6 months, if it has work then I'm happy, I'm still happy that I'm pain free for now, but I do still take stool softners as I have a slightly prolapsed bowel which then can't do anything about
    • Posted

      You are a hero to me then - fighting this for 15 years. How many Botox injections did you have. Can you have as much as you want from these. If one is holding up for 6 months this means you can have two of those per year and live pain free.
    • Posted

      I'm unsure how many I can have, it's something I am having to cope with there's no cure just preventative for me X
  • Posted

    I'm so glad I found a group having the same experience like me. I had experience AF 3 years ago when I had a sever fight of constipation due to overdose of drinking of medicine to fight diarrhea. The effect is constipation. By then I had my 1st flair up and believe me i thought I'll gonna die coz it was my very 1st experience seeing blood in my poo. My parents comforted me saying its normal to happen coz I forced it and said I had piles.

    Went to doctor, told me i had piles, gave me medicine, but nothing helps. Its that feeling when you poo something like is tearing your skin underneath. A friend of mine told me why not try Papaya and eat vegies first for a few weeks. Papaya is a natural bulking agent and helps digest foods. Believe me, it really helped to easy up my bowel episodes until the Piles and AF healed after few weeks of being religious in my new food diet.

    Well now recently, it flaired up again. Last week I don't know why but suddenly a huge poo of mine came out and i think it caused a small cut in my anal. I can feel it coz the same old feeling I felt before. By the way, I dont have worries of drinking water coz I'm really a water addict. I consumed an avg of 3Litres a day. But then recently, I went to europe for vacation and stayed seating in the plain for 13 hrs I think it triggers back my Piles and AF. When I went to toilet, got constipation i guess because of very cold weather and yes, my AF got back.

    Now I'm suffering for a week which I'm fighting to get back my bowel mood to soft it up again by drinking Prune Juice. Well luckily its very soft now but before it happened I had 5 days of fight of painful, bleeding AF when doing my daily business. I hope now that is very soft again it would start to heal and calm down.

  • Posted

    I have CAF and another month sick note (total 7 weeks off work if I return then, what a mess!!) and a referral to Colorectal out patients for additional support.

    However, after 10 weeks I have made a small breakthrough, seeing some improvements. I have had a CAF for 10 weeks, had and still occasionally have debilitating spasms and would quite like an epidural at those times (I had two natural births with no pain relief!)

    Here is my step by step guide to get things improving:

    1) GTN ointment 4% used morning, mid day and evening as well as after any BM's (I'm lucky enough to not get side effects) the GP was okay with my useage at this level as it mildly helps relax the spasm.

    2) Really hot baths. not warm - Gawd Damn Hot ones - they REALLY kick out that spasm.

    3) Ensure that you are getting 25-30g of fibre per day eg- (I discovered that my 'healthy diet' only contained 18g after entering my meals into Weightloss Resources online, it breaks down nutritional values for you.) Eg of how to get 30g fibre:

    Breakfast: fibre cereal (Weetabix or Oats are both suitable with soluable and insoluable fibre) with probiotic yogurt and a piece of fruit.

    Lunch: 2 decent slices of wholegrain bread with vegetable or lentil type soup or

    veggie chilli / curry (mild for the CAF)

    Dinner: brown rice, 2 portions of veg and a small piece of fish or white meat (slowly introduce red meat back in after healed CAF)

    Snacks: Wholemeal scones, fruit, nuts.

    4) Introduce Movicol into your life. Lactulose did nothing for me and I have relied on stimulant laxatives for way too long) Movicol along with the good level of fibre will help things move as painlesslessly as you could hope for with a CAF. I have had my first BM without stimulant laxatives in 15years (honestly, I was worried about the fibre bunging me up but at least with Movicol it really didn't I PROMISE on this one). I took at night to avoid the chance of unpleasant bloated tummy and bubbling during the day. here's what I did with Movicol:

    Day 1 = 1 full strength adult sachets at 8.30pm mixed with water as directed.

    Day 2= no BM so increased to 2 sachets both at night (lots of wind, deal with that as you wish).

    Day 3= still no BM so increased to 3 all at night (LOTS of wind, hoping for BM tomorrow or hitting the Dulcolax again)

    Day 4= perfectly NORMAL poo at 10am with no forcing or urgency. To give you an idea, it can be rated as a number 4 on this link: http://www.movicol.com.au/file/Movicol_Stool_Chart.pdf PERFECT and the first normal poo I have done without Dulcolax in about 15 years!! It's also the first time in 10 weeks that I have not had a painful BM. I'm very pleased that my patience has paid off, even if it is very early days smile

    I plan to take 3 sachets again tonight and if too loose tomorrow I will reduce to 2 and half sachets then maybe 2 etc to get things settled at the right level for me.

    I will keep on top of the diet and bowel habits and see how this helps in the long term. In the meantime I will continue the GTN / Sitz baths and see the specialist in a couple of weeks.

    Good luck you poor people - we are an unlucky bunch!!

  • Posted

    Ianee the majority of pain relief medications all cause constipation. I have been going to the toilet more easily since giving up on pain relief via meds and just focussing on eating 30g fibre each day, 2 litres of any fluid except alcohol and using GTN as regularly as possible. Also, to protect the CAF inbetween doses of GTN I coat it in vaseline which is surprisingly more comfortable (must prevent drying out and protect against irritati ok n / rubbing)

    Good luck!

  • Posted

    *irritation. Oh and very importantly HOT baths to kick the muscle out of spasm.

    Regards

  • Posted

    3 days post Botox after A&E admission to hospital due to being unable to tolerate pain which was off the scale. So far so good, I'm finally feeling human again!
    • Posted

      hi how is your pain and when u had it out of 10 what was ur pain like ?
    • Posted

      your lucky a&e allowed you fast track botox treatment

      I went to accident and emergency in uk and they turned me away saying they cannot do anything for me as they are a&e doctors and not colon specialist. and more over they said it's not emergency

      I have had botox 10 days ago but but experiencing burning sensation. weirdly mine is not during bowel movement its just generally during the day . no idea why I get this sensation .

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