Posted , 16 users are following.
I hope you are sitting comfortably as it is time for me to share my experience of Globus on this sensationally helpful site that I stumbled upon that has helped me so I just had to join as even if my story helps just one person to relate to it then it has been worthwhile..
it all began November 2009 when I got an odd sensation in my throat and at the back of my toungue after eating too many apples (I have an orchard)..
Off to the doctors i went and was diagnosed with Globus, the feelings of there being something causing discomfort when swallowing got worse, I also had night sweats, pains in lower left of jaw and more recently a clicking in throat when swallowing.. Over the past 18 months I have been sent for a chest/throat xray, had 6 nasal endoscopies (the last two without anaesthetic as it made my throat sore for 2 weeks after and numbed it so much at the time I actually couldnt swallow at all), I was also sent for a Gastroscopy (camera all the way down my windpipe whilst awake to assess my esophageus) , I have had at least 6 bloodtests to check for lymphocites, thyroid , liver, kidney issues white and red cell counts and anything else abnormal in the blood All of which came back clear. I also got a coating at the back of my toungue that has been treated several times but still returns.. I have had lots of different doctors/ consultants feeling my lymph glands.. All results fine
The feeling of globus is as you know very worrying and often frightening, for me it caused major health anxiety as I had just followed the step by step daily blog of a close friend who ended up dying of oesophageal cancer, so that worry has always lived in the back of my mind. I am on Citalopram and Diazepam when the feeling gets bad and the doctor is now trying out Lorazepam in case GERD is causing my globus. I also started hitting half a bottle of strong wine a night to ease my worried mind as the only time i got any peace from my worries was when i was asleep..
I believe that it is most definately made worse by the vicious cycle of worry that it perpetuates ..
My tips for surviving GH are..
1. Cut out as much worrying as you can
2. Accept the feeling GH brings dont fight it
3. Relax as much as you can
4. Get plenty of sleep as my GH seems to get worse later in the day and a lie in helps
5. I Dont gargle with chemicals / mouthwashes as it makes my throat feel worse the next day.
6. This works for me try it if you like at your own risk..When GH strikes try stretching your neck by tilting your head back and stretching your lips forward as though you were trying to kiss the roof whist at the same time lightly massage your neck muscles around the tightness affected area i do this for around five minutes.
7. I use a distraction technique by diverting my thoughts to listening to some music or doing something i enjoy..
8. I have had 9 months of CBT which helped me to manage and understand my worries ( ask your doctor for Cognative Behavioural Therapy to help manage your GH worries and anything that may be underlying causing your other worries)
9. Always see your doctor and get checked out if you have any unusual symptoms in your throat, neck, mouth or oeasopageus or any issues with swallowing.
I believe that as there is no known cure as such the best and only plan of action is to manage the symptoms when they come on and as you get used to managing them you should worry less because you will be in control..
I wish each and every one of my fellow GH sufferers my sincere best wishes and good luch on getting to grips with this mentally destructive illness..
Enjoy each moment of the good days and control the negative thoughts of the bad days
5 likes, 34 replies