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If you are reading this then welcome to Hell, well at least until you get properly diagnosed and are given a script for tegratol...
Three years ago it was just a normal morning, brush your teeth, have a shower and towel your hair dry, except that vigorous towling resulted in an “electric shock” type of pain that I (wrongly) attributed to some overdue dental work.
Over the next few days it worsened to the point that the pressure of the water in the shower could cause excruciating pain. I had booked a trip from Australia back to England to see my family so I decided to get my “dental” issues sorted out when I was there but the symptoms went away.
A year later they came back so I went to see my GP, he recommended exploring possible dental issues but was clued up enough to bring up the possibility of TN.
The dentist could find no issues that could be causing the pain I was describing (left side of cranium) but while I was there I started experiencing “random zaps” that had nothing to do with touching my face and were F..king EXCRUATING ! Never experienced pain like it before in my life. The dentist was brilliant and after a series of phone calls established that he was able to write me a script for tegratol. We had previously discussed my GP’s opinion so he knew TN was a possibility and told me that if tegratol worked then I could be pretty sure my GP was right.
Tegratol isn’t a magic bullet and takes a few days to kick in fully but my GP and dentist saved my life. After about a week I was pain free apart from minor “Zaps”
Subsequently I went back into remission for about a year (ie drug free) but my TN is now back and I’ve had to double the dose of tegratol to keep it in check. It’s a great product but (in my case causes extreme lethargy)
If you are unfortunate enough to suffer from this dibilating condition then you will quickly learn that you will have periods of remission but they will shorten and the drugs that help become less effective over time unless you increase the dosage therefore also increasing the side affects (tegratol is also bad for your liver apparently)
There are surgical treatments but no outright cure as far as I can ascertain. Me? Hand on heart I would have thrown myself off a bridge by now if not for tegratol and I just take every day as it comes.
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