My eyes, I need some support, please reply!!

That sounds awful, although I have never experienced that sort of sensation in the eyes. I do, however, suffer dry, itchy eyes, constant feeling of tightness and pressure, as if my eyes are going to pop out of their sockets. Not pleasant at all. That said, I was diagnosed with Blepharitus before the Sjogren's, which causes inflammation of the eyelids and small cysts to form under the eyelids and corner of lower lid. I have lost most of my lashes due to scratching.

I would also like to say that I have swollen lymph nodes in my neck and groin. I had an ultrasound 14 months ago and was told not to worry as everyone can experience swollen glands of some description. Like most patients, when your doctor tells you not to worry, you don't question them. After all, they know best.

However, the problem persisted, albeit I had no pain, merely discomfort due to tightening in the area around the glands.

Before I was finally diagnosed I had been to my doctor on numerous occasions, complaining of one symptom or another and had had several tests at various hospitals all coming back normal. Despite this, I refused to give up as, like most individuals, we know our own bodies, we know when something is not right. For the sake of my own peace of mind, I had to pursue it further, even though I was beginning to feel that my doctor had me down as a hypochondriac, wasn't taking me seriously.

That said, if it wasn't for the intervention of my wonderful optician, I might still be wondering, waiting and being palmed off with pills to ease the symptoms and not treat the underlying cause.

I would advise you to keep a diary, noting down when you experience these sensations and how long they continue.

It is all very well for doctors to attribute every new symptom or issue as being related to Sjogren's but I would also discuss the issues with your rheumatologist and ophthalmologist. After all, you are the one feeling these dreadful sensations and I am not in the least surprised that you are, "frustrated".

I wish you good luck.

Do let me know how things go in the future.

Mermaid1962

but, like yourself, any time I have questioned this, I have been told it is the Sjogren's.

In animal and human hosts, infestation by Thelazia may be asymptomatic, though it frequently causes watery eyes (epiphora), conjunctivitis, corneal opacity, or corneal ulcers (ulcerative keratitis).[1] Infested humans have also reported "foreign body sensation" – the feeling that something is in the eye.

Diagnosis involves simply examining the eyes and nearby tissues for the worms. Adult Thelazia are very active, one author described T. californiensis as a "short lively piece of nylon fishing line about 10 mm long."[5]

Maybe you should get a second opinion, its easy for Dr's to explain away every symptom with an already diagnosed condition. Failing that it may well be damage that has caused nerve problems and what you are feeling is nerves misfiring combined with dryness. I get all sorts of wierd sensations and pain all over my body with no reason as to why. I get sharp, stabbing, burning, crawling, cold sensations in different places and i can only imagine its nerves as there is no logical or visible reason for them.

Good luck I hope you find some relief.

Another site says:

 the most common predisposing factors are unhealthy living conditions and the surrounding environment. 

Cattle rearing, contact with stray dogs, mountainous terrain, and rainy season make the humans vulnerable to ocular Thelaziasis. Conjunctival and cornel injuries, traumatic conjunctivitis facilitate the introduction of the larvae into the sub-conjunctival space and vitreous cavity.