My father has just been diagnosed with Vascular dementia.

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I'm not sure what to expect, he is in a care home as has lost his mobility and refuses to get out of bed, he is getting a bit forgetful as when I went to visit him on the Monday by Weds he couldn't remember if it was me or my sister that went to visit him, I found that quite upsetting, I know things are going to get worse but I'm finding it difficult to accept as when I went to see him in the care home he was just in bed with no television or radio,  when I told him I would bring a tv in for him or his radio he just kept saying" no I don't want them" so he is in bed staring at the wall, is this part of the dementia? Not even wanting to listen to the radio which he use to love doing.

1 like, 13 replies

13 Replies

  • Posted

    What is the matter with the staff getting him up into a bedside high back chair..staying in bed will give him bed sores, he needs to be mobile and encouraged.  It would appear he is unhappy being there and is demonstrating this to you by his actions, .how advanced is his dementia? Is he on medication for it ?  does he talk to you is he aggressive ?

    He would be better at home with you in a wheel chair with your care and medical support ..that's my view! If he is left in ther he will slip away. 

     

  • Posted

    Your Dad will have short term Memory Loss..Take in some old photos  and talk about the past and his wife when they married..happy times most elderly remember thier live at their happiest around 30..We all get forgetful at times and if he is not happy he wont want to remember.. I would take the TV or radio in anyway ..just in case, I am afraid sometimes when patients are like this you have to think for them, a bit like a child, take in foods he likes..give it to himhelp him with his food. Its not easy, but if you have a sister, the caring will be halved.

    Best of Luck.

     

    • Posted

      Hi DawnRegina thank you for your reply it was very helpful,  I am going to dig out some old pics for him. I think if I take the TV in and radio he is not going to use them as he can get a bit stroppy if you do things that he doesn't like..He has always been like that ever since I can remember. I have questioned the care home about not getting him out of bed and they say they cannot force him as they are not allowed,  he said he likes it in there and the staff are very pleasant. I live 80 miles away and me and my sister visit alternate weeks and I call the home every other day, I wish I could see him every day but it's not possible,  it isn't possible for him to live with me as he needs 24 hour care, he refuses to use the commode so he has to use a diaper, he would be stuck in bed at my house all day while I was at work at least in the home someone is there all the time.
    • Posted

      Ok I understand..it is a hard time when you parents become a responsibility an I am sure you are doing your best.. I know they cant force your father but it is good to be encouraged.. This will make him sore staying in bed 24/7 make sure if he is in bed they have a proper mattress and which ventilates air or a proper mattress to avoid bed sores.. a Synthetic Sheepskin for his heels and bottom.. If he looses weight he will end up sore with broken skin.. The staff should encourage him to sit up for his wellbeing.If he has Dementia he will refuse, that is normal for the condition .. check his meds/ treatment for the condition.. Make sure he cant fall out of bed.. Surgical spirit is good to rub on heels to make them more resilient and may help avoid blisters which is the first steps to a pressure sore..If he sit up in a chair he will be able to eat better and the Heels wont break down.. he can sit on a chir spnge to avoid pressure on his buttocks..Care homes are not geared to Nursing sadly..and dont understand the Physical principles of caring for someone in bed..RGN/Dip He/ENB941(Geriatric Nursing Cert)
  • Posted

    How long has this decline been in progress? Such as how long since he could remember the names of someone he should remember? 
    • Posted

      Hi Ron Texas,  when I think back to how he was when he living in his own home which was the beginning of this year, he was getting a bit forgetful like for instance..He would call me one day then the next day and kind of act like he hadn't spoke to me the day before. It was only when he kept falling over and was in and out of hospital on his last admission to hospital which was last month it was then that the doctor said he had Vascular dementia and where I looked at the symptoms one of them is falling over, as for him remembering names it was only last week that he couldn't remember which of his daughters came to visit, he did ask me about my children though so he remembers them. 
    • Posted

      Sharon, it may not be possible in your father's case but I'm 76 myself and I know how important strength in your legs is as you grow older. I have never fallen as I 'm in good condition but I have to work at staying that way. For the last few months my wife and I have been walking five miles every other day very regularly. Before we began this routine we attended a health club and used a stepper and tread mill.  I found that when I got a bit tired I would just quit and go work on another part of my body. With the walking we do we head out a country road for 2.5 miles then we have to get home and by the time we are back we are exhausted. My legs are in the best condition of the last 20 years and I can't recommend this routine strongly enough for anyone who may have balance or leg-strength difficulty. I had both problems before we hit on this forced solution. It works wonderfully. I know this is a bit off-topic for your father's condition but maybe he would benefit by something like this.  If you can get him to walk it will help his balance.  
  • Posted

    Vascular dementia is similar to aschaemic episodes is not chemical imbalance ie lack of Dopamine but circulatory and with the right meds he will improve.. Vascular dementia is like a blockage to the brain via the blood vessles..This very common dont give up on him ..xx
  • Posted

    NINDS-AIREN criteria for the clinical diagnosis of PROBABLE vascular dementia (VaD)[6] - as recommended by the National Institute for Health and Clinical Excellence (NICE)[7]

    Presence of dementia - cognitive decline from higher level of functioning. This can be demonstrated as memory loss plus impairment in two or more different cognitive domains (see 'Diagnosis', below). This should be established by clinical examination and neuropsychological testing. Deficits should be severe enough to interfere with activities of daily living - not secondary effects of the cerebrovascular event alone.

    Cerebrovascular disease, defined by the presence of signs on neurological examination and/or by brain imaging.

    A relationship between the above two disorders inferred by:

    Onset of dementia within three months following a recognised stroke.

    An abrupt deterioration in cognitive functions.

    Fluctuating, stepwise progression of cognitive deficits.

  • Posted

    Oh dear, this sounds just like my Dad.  We took him in a radio and books and he just wanted to sit in bed.  The staff did get him up and encourage him to be as mobile as possible, but not always successfully.  Sadly, depression is often part of vascular dementia (we were told), so I would continue as you are - encourage him as much as you can to do a few things.  We used to take in Reader's Digest magazine as there are short interesting articles, which don't need a lot of concentration.  I would also speak to his doctor about assessing whether he is clinically depressed and whether anything can be done.  One thing which did work with my Dad (and may or may not be allowed in your Dad's Nursing Home) was to take him in a couple of cans of Guinness (his favourite tipple).  He didn't seem interested when we were there, but we were told he did drink it afterwards and would ask for it with his lunch.  I also think, with hindsight, that it's understandable to opt out of things which were previously enjoyed.  I didn't think that at the time, but if you're anything like we were, you're reeling as well.  Take care of yourself and keep trying things - just do them, don't ask first - would be my suggestions.  Good luck and apologies for going on for so long!
    • Posted

      Hi Sally,  thank you for replying, I am finding it hard to try and help him, I took his radio in even though he said he didn't want it and when I left he told me to turn it off and take it away, he doesn't read anything we have taken in newspapers and some magazines but he just not interested in anything,  I am going to speak to the care home about him being depressed, I also read that it can be part of the Dementia. When myself and husband went to visit him on Tuesday he looked filthy as he wouldn't let the staff wash or shave him he tells them to F off, that isn't part of his Dementia cause he has always used bad language ever since I can remember. He won't get out of bed either and I can't convince him like you could your father, he does sleep a lot, even when we visit him he keeps drifting off. The care home has a nice feeling to it and the staff are very patient with him, they couldn't apologise enough about him looking dirty! Thank you for your advice it is good to speak to someone who is going through the same thing . xx
  • Posted

    Hello Sharon

    Glad I helped.  Your Dad does sound a lot like mine - even the bad language.  That was why it took a long while (and was after my Mum was sectioned with Dementia - a horrible experience) and he was on his own, that it was clear there was something apart from his usual behaviour.  It's all behind us now, however, as Dad died in May 2013 and Mum died in January this year.  Her dementia took a very different form than Dad's did and she was putting herself and others at risk, so we very very reluctantly had to agree to her being sectioned. Luckily we eventually found a wonderful Nursing Home for her (apart from Dad) and one which suited Dad's needs, with staff who cared but could be firm when necessary.  That's how they managed to get him up and into a chair.  However, even that tailed off and his last few months were in bed.  Have they got your Dad on an air mattress?  Both my parents had one - not sure how they work, they're electric and it's a very strange sensation because you can hear and feel the air going in and out.  Neither off them had bedsores in their Nursing Homes though, so they must be good.  As I say, we are through it all now, sad, but less traumatic.  I really hope it all works out for you, your family and your Dad, but please offload to me (or anyone else) if you need to.  Hugs.

    • Posted

      Hi Sally,sorry I have taken a while to reply. I didn't realise that your father had died, I hope I didn't bring back too many painful memories for you, how awful that must have been for you to have to have had your mum sectioned I couldn't imagine what you and your family must have gone through. My dad is on a special bed that let's air in and out and they are turning him quite a few times a day but  they did mention when I spoke to the home that he was getting a bed sore which he refuses to let the nurse look at, I'm beginning to think that he is giving up as he won't do anything they ask him to do, but he has always been a very stubborn man, I wish the home would be a bit more forceful and encourage him to get out of bed like they were at your father's home, one good thing is that he is sleeping quite a bit so at least he is not staring at four walls all day. Thanks for letting me off load, my Husband doesn't quite understand as him parents both died in the late 50's like my mum did so he never had to deal with Dementia and care homes. Take care. xx

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