My fathers Meds have now been stopped
Posted , 6 users are following.
and he is experiencing a lot of pain and stiffness again. can anyone advise what he can do next. thanks
0 likes, 5 replies
Posted , 6 users are following.
and he is experiencing a lot of pain and stiffness again. can anyone advise what he can do next. thanks
0 likes, 5 replies
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Anhaga rachel79056
Posted
rachel79056 Anhaga
Posted
EileenH rachel79056
Posted
Sorry Rachel - bit more detail please. I'm sure you told us all - but we'd have to search to find it and it could take ages.
rachel79056 EileenH
Posted
EileenH rachel79056
Posted
Of course he still has the symptoms like he did at the start: whatever his rheumatologist thinks, PMR does not last for 2 years and then it is gone. The median time to get off pred is 5.9 years
https://www.practicalpainmanagement.com/resources/news-and-research/polymyalgia-rheumatica-steroid-side-effects-new-findings
The idea is not to reduce relentlessly to zero and stop - it is to reduce to the lowest dose that manages the symptoms as well as the starting dose did. Unfortunately there are still far too many doctors who believe that PMR lasts for 2 years and that is it. They are WRONG as hundreds of patients on the PMRGCA forums in the UK will attest (there are 3, this is just one) as will the top rheumatologists in the field - at least 4 of whom I know personally!
Is this the same consultant or might you be lucky and he's moved on? Whereabouts are you, at which hospital will you be seen?