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my fibro is annoying and v painful at the moment is anyone elses flared up

Posted , 6 users are following.

gillian81509
gillian81509

Developed fibromyalgia 1992 but it wasn't really recognised until 1998 then needed prednisone for years because as soon as I cut down pain increased

Developed cushings and other problem Inc severe anxiety over a series of traumas so now limited as to what I can take any ideas

pain is worse in shoulders and down arms

1 like, 9 replies

9 Replies

  • sha1271
    sha1271 gillian81509

    Posted

    Thats where my pain is. Its been really unbearable lately. My symptoms started in 97 but they only recognised my carpal tunnel back then. I finally got a fibro dx this year only because they thought I had RA. I take gabapentin and it only helps withthe headaches. Ive tried meloxicam and wven tramadol but nothing helps with the shoulder and arm pain. Ive increased my vitamins hoping that will help.

  • chris11339
    chris11339 gillian81509

    Posted

    Sorry 2 hear your fibro is playing up just now mines is the same and it's times like this that you just feel at your lowest

    My whole body feels like I have been at the gym and over worked but I can assure u that ain't the case I have just had a bad few weeks my left hip is so sore I have been taken Co codamol but it does nothing 2 touch the pain

    I have to start some type of physio on Monday that will be fun as right now I am walking like an old lady with doing nothing but I am at a stage I am willing to give anything a try

    Gentle hugs to you all. 😕

  • deirdre._03652
    deirdre._03652 gillian81509

    Posted

    Hi to all, I can totally sympathize, I have gone for three weeks and only been dressed three times. I hate the exhaustion and constant aches all over... however on a good note I take 300 mgs pregabalin, 400-500 mgs of tramadol, 8 _500 mgs co-codamol a day and sometimes also 4-6.paracetamol a day.. sometimes it does help me to be able to function.. I am lucky in as such, I have absolutely no side effects whatsoever, even though I only weigh 7 st... I believe that the Best treatment is to take medication simply to keep mobile... if I miss them at night, I fall asleep easily, I feel stiff and also feel like I have been hit by a bus..... I keep hoping that I will wake up one morning, and it will be gone... I wish all of you well and BIG HUGS.... take care all... DEIRDRE Anne xxx
  • deirdre._03652
    deirdre._03652 gillian81509

    Posted

    Hi to all, I can totally sympathize, I have gone for three weeks and only been dressed three times. I hate the exhaustion and constant aches all over... however on a good note I take 300 mgs pregabalin, 400-500 mgs of tramadol, 8 _500 mgs co-codamol a day and sometimes also 4-6.paracetamol a day.. sometimes it does help me to be able to function.. I am lucky in as such, I have absolutely no side effects whatsoever, even though I only weigh 7 st... I believe that the Best treatment is to take medication simply to keep mobile... if I miss them at night, I fall asleep easily, I feel stiff and also feel like I have been hit by a bus..... I keep hoping that I will wake up one morning, and it will be gone... I wish all of you well and BIG HUGS.... take care all... DEIRDRE Anne xxx
  • christine26761
    christine26761 gillian81509

    Posted

    Long wait for diagnoses here too, but so are nearly everyone..yes mine goes into a sort of remission the doc tells me, I still have some pain but no where near as bad..I only take one med now for it..prescription that is..I do take vit d and magnesium and others though..non scripts...I've hat for 20years now I take Amitrptlyne I think that's how you spell it..at night 8.30 knocks me out.,stops the pain and gives me a really good nights sleep which is imperative for dealing with anything Fibro has for you..:-) xxxx Australia..
    • gillian81509
      gillian81509 christine26761

      Posted

      THis is a really bad flare up more like pmr can't take many meds as my heart meds don't agree

      not sure why I've had a flare up to this extent it seems different

    • chris11339
      chris11339 gillian81509

      Posted

      Gillian maybe it has something to do with this time of year as we all seem 2 be saying we are having a bad flare up its quite worrying as maybe one of these times we are going think it's a flare up and could actually be something else
  • tootsi
    tootsi gillian81509

    Posted

    Good morning everyone, 

    having just recently been diagnosed i have since being on this realised how so much pain and suffering and how debilitating this condition is, I really thought I was going crazy until I discovered everyone else on here, it makes me sad to think what seems to be so many lovely people suffering so much day in day out. I went back to work on Monday and I have been off sick since Wednesday crying in pain all day Thursday

    Yesterday I did nothing and took my Newley prescribed tramadol, amitriptyline. I didn't cry yesterday but I am still in so much pain. My shoulders arms, right hip / back right calf my neck and jaw are just making me so miserable.. Spent hours filling out PIP form I just hope I can get some money and hopefully get sick pay then give up work, my job is so stressful and I have worked for 28 years through many a tragedy including domestic abuse, betrayal, suffering from post traumatic stress disorder and chronic depression. Bought two children up all on my own and now I I am exhaunted. My heart goes out to each and everyone of you as this is the one thing that is going to knock me off my feet asit is so debilitating. I have always been so strong but I have lost my fight. I want to thank everyone on here for all the help and advice so far, it has been my rock in the last few weeks being able to realise that unfortunately I am not alone in this. I'm at the point of buying every book, and anything that may offer any relief. How do you explain to your boss, hr, friends and family? Any advice.? As unless I have been crying all day I just look like a plumper version of me. People ask me everyday am I feeling better and I can't say yes but they expect me too, I have had 3 days off this week everyone thinks after the rest and new tablets ( only prescribed Wednesday) that I will be better, only all of you know that it isn't the case. 

    • christine26761
      christine26761 tootsi

      Posted

      Really feeling for you tootsi,  as time gies by, you really won't care what others think or how to explain things to them...I found it totally worthless..as people that really know you they will know that this is hard fir you...it dies usually take soooo long to be properly diagnosed, then comes getting the medication right...but it does get better....there needs to be a huge worldwide campaign on this issue and all the other sSyndromes that often come with it..  Maybe then all people will know just what it's all about...including many doctors....keep positive,.its such a help as is vitamin d and magnesium..I've had it over 20 years now and only take amitriptyline at night at bedtime..gives me a good nights sleep, help sooooo much with hiw ii can handle the pain the next day..be blessed..:-) xxx Australia... 
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