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My grandson has Pectus Carinatum

Posted , 21 users are following.

sheila_nan
sheila_nan

My grandson has pectus carinatum and I have tried to find a group helpline of people who have the same problem as him. There is a patient chat line in America but it would be good if he could get feedback from someone in England. Most of their post is from sufferers with pe not pc as well. He will be having the operation this year. He's 18. There must be loads of you out there with no-one to talk to having the same problems.

0 likes, 33 replies

33 Replies

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  • martin35478
    martin35478 sheila_nan

    Posted

    My 13yr old son has pc, I have just contacted Dr hunts clinic to see if he will benefit from a brace, sent them some pics and waiting to hear back. Hoping to go in June for a week for consultation, fitting and then adjustment. Rough cost is £2800

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