My hair loss is getting worse from methatexate !!

I am a hairdresser too , and I'm losing all my confidence day by day !!

How much did or are u losing ?? My nurse advised me to stop taking methatexate for the time being !! I wish this night mare would go away !! I've started taking sea kelp too !! Not sure but worth a try !!

Hope your ok liking your new hair and it feels better ! Xx

I have heard Biotin supplements help.mught be worth a try.

Good luck

Aw thanks never heard of this I'll google !

Alot! Much more so since being on the injections! I don't have any bald patches (yet) just massively thinning. And fed up of people telling me it could be worse blah blah blah! Hair is important to self esteem!

I wish i could say i do but i HATE it and have pretty much had it up since!

What is sea kelp supposed to do??

Really I'm only on the tablets !

I know how u feel I'm 29 I wanna feel nice and want be me ! I like to look nice always have always will , being poorly all this year has taken all that away and now this but I feel the hospital don't really care and nurse was so rude when I was getting upset about it !!

It's soposse to help with skin and hair etc so I thought worth a try not sure it's doing much but I will try anything !!!!

Aw no ! It makes you feel down doesn't it !! Try to keep smiling x

Similar then, i'm 28, got diagnosed in October last year and from then till now i just feel bloody awful! My biggest problem atm is the fatigue. Do you get that? Sometimes its a struggle to do anything which is not really an option when i still have a year of my degree left and being a single mum to a 4 year old!

No i get that, people don't understand - professionals or not and it is harder because for us its so real.

I have found some great people on this site though that are very supportive and don't moan at you for moaning!

Oh really, let me know if it helps i'll try anything!

Am due to start hydroxychloroquine in a couple of days also and app a side effect of that can be hair loss too! 😭

Thanks for your replies xx

Pretty much same ! I had my own hairdresser had to give up got a 3 year old daughter some days I can't get up the stairs when I'm really bad !!

No one understand that I wanna go out still enjoying myself!!

I feel people don't understand and don't know the exsent of it ! I came on here to just to speak to others who are in similar situations!

No I'm ok on fatigue !

The nurse mentioned that to me the other day on the phone but don't think it's as strong of I've got the correct medication ! Is there anything that doesn't cause hair loss !!! I feel like stopping everything ! I'm on steroids too weaning myself of them !! X

Good luck and thanks for replying too

i think it is just so different for everyone as i've come across alot of people that don't suffer from hairloss! same with the medication, everyone is on such different doses and shame there isnt just a 'one size fits all!'

Well i understand - and yoi can always send me a message anytime if you just want to talk, or rant or moan or cry lol.

yeah it does get like that, and we are so young its not fair! and i worry about well what is it gonna be in another few years!

I sincerely hope the sea kelp works for you and that you start to feel better - but remember you are never alone here xx

Thanks Hunnie ! Nice talking to you !!

And same to you !!!

Stay strong !!!!

Xxx

I will take u up on messaging so can moan or cry lol !!! Xx

no problem, support is key! you stay strong too! We CAN fight this! xx

Hua katielou so sad to hear your story I have had very bad hair loss after starting mex injections. It's so depressing to deal with that, weight gain and no energy. I feel like a different person outside and in. I have been on them for about 4 months and now the hair loss has stopped. I take biotin and my hair has improved. I also had to cut my hair it was so striggy and thin. It does improve if that helps you, so my advice is to hang In there and keep tying the different medications to deal with the fatigue. Of everything this horrible disease give us the fatigue is the worst! Take care I wish we could all meet up for coffee!

We so should lol

I live in NSW Australia, happy to meet up!

Haha I am near London, not quite around the corner!!

What a shame I think we could really help each other. In the mean time I get a kick from this forum each morning and it pumps me up for the day ahead! Take care you are not alone

Thanks for kind words !! It's hard and you always think why me and how can my life change so fast ! But least here we can talk to others wish we could meet up !!! And you Sarah lol !!! I'm in York other end of the country lol !!!

This is when I hate morning let's see how much I loose today and lost last night !!!! 😢😢xx

Good luck today, try out a few funky hats!

Hi Meg,

I have the same problem with the hair loss. Mine started long before I was diagnosed, however in hindsight I probably have Rheumatoid (albeit a mild form) since my teens. I'm now on MTX, Plaquenil, Sulfasalazine and many supplements and the hair loss is far worse. I've been looking up Biotin and there are so many different types. I know you are probably not allowed to name the one that you are on but I would very much appreciate if you could somehow drop a hint. Many thanks in advance.

Yes my rheumatoid me it was as much the disease causing hair loss as well as the drugs! Happy to help I have used a few and it hard to say what one worked. One was N..rol but now I use the brand that has a shorten name of a European country! Hope that's helps

Thanks Meg, think I know what/who you mean. They have a one cent sale currently on. 1000 mcg seems to be the strength. Think I'll go ahead and order it now. Many thanks again.

The other one had 10,000 mcg but I prefer a known brand! Best of luck it might be trial and error with this supplement much like our other medications!

Indeed, one can but try. If my hair improves I'll post back here👍