Posted , 3 users are following.
My husband has had heart failure 4 a number of yrs,he's no longer attending cardiology....My question is How do u know,if its near the end stage? He never leaves the house,sleeps til the afternoon & has lost a lot of weight,the least exertion leaves him sweating & breathless...thank in advance 4 any advice
0 likes, 10 replies
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68survivor pauline_64323
Posted
Hello Pauline, The simple answer is we do not know. When I was diagnosed with heart Failure in 2009 I was still able to play Bowls. We all try to face up to our condition and try to gain insight into 'how long' issues. Well, in 2009 consensus was about 6 years. I think I am still here now by dint of having an implant following a near fatal Arrhythmia in early 2010. I still survive and enjoy life as much as possible, although Bowling stopped a couple of years ago. The only religion i have is 'keep taking the tablets' which via superb Cardiology have managed to keep my failing systems responsive. It is very hard to support a loved one when they are suffering from end-stage HF, other than to keep on loving and gently reminding them of good times in the past. Have strength in your journey.
pauline_64323 68survivor
Posted
Hi 68survivor,thanx 4 ur reply,my husband has had many heart attacks & triple bypass bout 12yrs ago,also has 7 stents,he recently had an echo cardiogram,which showed severe left ventricle impairment,he's no longer able 2 have any more ops,as heart 2 weak 4 anaesthetic....Like u its "keep taking the meds" I know they cant give u a "how long" ans....I just tell myself,he's a survivor & we have,so far had 25 happy yrs 2gether......Hope u continue 2 stay in good health! x
anthony51986 pauline_64323
Posted
Hi pauline have a look at D'ribose might help him .
pauline_64323 anthony51986
Posted
Hi Anthony,wot is D'ribose?
anthony51986 pauline_64323
Posted
68survivor pauline_64323
Posted
Hello again Pauline, I forgot to mention that there are other support organisations on the net. I have found it can be helpful to be able to relate to others on-line. All people should access such support as they deem necessary. One such Organisation is: http://pumpingmarvellous.org/ . I access it through its Facebook group. All the best to you both - fight the good fight.
68survivor pauline_64323
Posted
Hi Pauline, simply put, d-ribose is a particular form of sugar molecule thought by some to be of particular benefit in Congestive HF and Fibro-Myalgia.
Medical uses.
D-ribose has been suggested for use in management of congestive heart failure(as well as other forms of heart disease) and for chronic fatigue syndrome (CFS), also called myalgic encephalomyelitis (ME).
The post that awaits moderation, I don't know why, tell you that I forgot to mention earlier the Pumping Marvellous Foundation, (look it up) for lots of useful help and advice. I is a UK based Charity.
pauline_64323 68survivor
Posted
Hi 68survivor,why do docs not mention d-ribose? Thank you 4 the advice...and we will continue the fight....i'm just despondent its bn left 2 me 2 care 4 my husband,he was under house visits from cardiac nurses,but as per,NHS funds r no longer able 2 cover this!
68survivor pauline_64323
Posted
Hello again Pauline, Doctors generally do not mention such as d-ribose because they fall into the class of substances called Health Supplements (Often the type of product you can only obtain by buying them) Sometimes these can go in and out of 'fashion', often linked to marketing campaigns, sometimes linked to astonishing research results that are not always replicable. Back in the 90's I was prescribed highly purified Fish Oil, then in fashion, now not so much. The trouble is that we often react to these and even prescribed mainstream drugs in an individual fashion, You only have to follow the various opinions on Statins to understand. Try the Pumping Marvellous site for quality support but also, if you need practical physical support via other Community Nursing ask your GP's advice. Family and friends can also be of great support at this time. All the best to you both.
pauline_64323 68survivor
Posted