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my husband of 20 yrs has peroneal nerve entrapment .he has,been suffering for 3 months .

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debdom
debdom

Our life has been turned upside .My husband was a,healthy 54 yr old man who started his day at 7am and was out until 7pm .This man never even had stiches or was ever hospitalized for anything in his life.this nerve pain was mis -diagnoised as hurniated disc pain .it took 3 months to find out .My husband received 3 epidural injections in his back that he didnt need but the doctors thought it was his disc. After 3 months of agony he took an emg test and was diagnosed with peroneal nerve entrapment never even heard of this.the doctor told him he needs decompression surgery .Meanwhile it is,hard to even find a doctor that will do this,surgery .my husband has,not sat down in 3 months he cannot drive or stand for long periods of time .he is,on 1800 miligrams of gabapentin, motrin ,and oxycoton at night .please someone tell me how does this happen? He took one injection in his leg at first it helped but in 2 days the pain was back .i am trying to be supportive but it is,so hard since i see him so disabled I literally tie his shoes .my heart is broken as i wonder if surgery will help .wishing i could wake up from this nightmare .my husband was a,contractor by trade and he was a fisherman with a,boat and enjoyed everyday of life until now .still trying to process what happened .he gets radiating leg pain down his right leg with pins and needles and throbing .also his buttocks hurts and at night pain intensifies !!i havnt seen him cry so much in the 20 yrs we,are married .looking for info,input and advice . My name is,debbie

0 likes, 6 replies

6 Replies

  • lisavila
    lisavila debdom

    Posted

    Hi Debbie, you may want to contact Dr Timothy Tollestrup right outside of Las Vegas. He is an expert in peripheral nerve surgery. One of the hardest things about your husband's condition is figuring out exactly which nerve is causing all the pain. Surgery is tedious work but easy to recover from. Wishing you and your husband all the best!

    • debdom
      debdom lisavila

      Posted

      Thank you so much for for your resphonse the entrapment he has is at the fibular head which i believe is knee area .i would defintely contact that doctor if i lived closer ,i am in newyork .at this point i would even consider traveling but my husband would have a,problem sitting for the plane ride too painful .We have an appointment with a neuro surgeon specialist next week at mount sauni hospital who has some experience with this type of surgery and condition .however i dont know how many of these surgeries she performs i will ask that for sure .he also has an mri appt on friday of his leg bc the painmangement doctor is trying to find out which nerve pain is,coming from .he already did mri on bottom part of leg and it didnt show the entrapment so fri they are doing the higher part .Have you had surgery and are you ok now ??i really appreciate your input .thank you soo much .
  • Peonygirl1
    Peonygirl1 debdom

    Posted

    Hi to you both, you have started a journey that is going to require all of the strength you have. My health history is similar to your husbands. I have had every injection, physical therapy known and still required surgery to allow me to get around with some comfort. Many years have passed and I still have these health issues that have so drastically changed my life. My advice is you need to work with specialist that have the extra knowledge of pain and how best to help the patient. A neurologist is a good start and ask for a nerve conduction test that will identify which nerves are causing the problems. I think your doctor is suggesting a stretching type procedure that can open the pinched nerve and might release it for relief. I suggest you seek a pain management doctors pratice they have the capability of offering you your best choices for relief. This is a very difficult journey and you both are going be facing many changes in your life and lifestyle. The best scenario is full repair and back to normal, but it is very possible there will be permanent damage to the nerves involved. If this happens many changes will be coming your way and you will have to face them head-on and fight like crazy for his health. My thoughts are with you two and I send my best wishes and a big hug! Stay strong guys you can do this! 
    • debdom
      debdom Peonygirl1

      Posted

      Hi and thanks for yr resphonse is a nerve conduction test and emg test the same ??because he had the emg test . We have an appointment with a neuro surgeon next week on wed .hoping for some answers then .so you are still in pain and how did they find out which nerve it is ?my husband had an mri on his lower leg they didnt find the nerve on the mri so on friday they are doing the top part of his leg . I dont know if this problem shows up on any mri some doctors say it would and some say it wont .sometimes i feel soo confused .
    • Peonygirl1
      Peonygirl1 debdom

      Posted

      Hi again, I had several mri’s which showed herniated disks, they kept deteriorating and then surgery - fusion L345,S1. The nerve conduction test showed exactly where the problems were. The egg may be that test, I don’t know. This all very confusing and irritating and scarey and exhausting!! You guys sound like you are doing the right things. I went on line and learned as much as I could and that helps me to understand a bit better. Keep your heads down and just keep going you have no other choice. Do not let any of the people you will be working with make small of how you guys feel or your need to understand what is going on. I sure feel for you guys this is such a difficult journey hold on to each other and ask your family for moral support, ask friends too. Hugs are incoming, good luck. 🕊

    • debdom
      debdom Peonygirl1

      Posted

      Thank you so much for your generous advice .sometimes i just dont know who or where to turn still .it seens as though everyones life goes on and my husband and i are fighting to stay afloat its scary and so sad .so i appreciate your comments .i will return with updates.thanks for an ear to listen to . Stay well sincerely ,Debbie
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