My husband suffers from RLS, Is there any thing else besides Quinine tablets?

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I know it very disturbing for him,  but it also affects me to as sometimes his arms seem to be affected too and they flail about as well.  he doesn't even know when this happens.

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  • Posted

    This sounds more like periodic limb movement disorder (PLMD) than RLS. The same medications are available, I believe.
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  • Posted

    Quinine is sometimes used for leg cramps, but quite rarely nowadays, I believe, because of risks with it:

    http://patient.info/health/cramps-in-the-leg

    Make sure he is getting enough iron (Ferrochel or haem iron supplements), have him get blood tests to check his stored iron levels. If iron supplementation doesn't stop it, have him ask his doctor about dopamine agonists.

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    • Posted

      Well, I reduced my iron supplementation down to about 36 mg a day because of my eye problem. The tremors came back, and I needed to take ropinirole early in the afternoon again. However, I've now determined, come to the decision anyway, that my iron intake was not related to my eye problem, resumed taking 90 mg, sometimes 180 mg, of Ferrochel a day. The tremors have more or less gone away again, and it's sometimes back well into the evening that I take ropinirole, often then only as a precautionary measure.

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    • Posted

      A little ropinirole never hurt anyone, but with that said, you would probably need less iron.  The DAs are a drag on our receptors making them worse in the long run.  So I never asked you where your iron levels are at...did I?  Are they low, low to normal, normal, normal to high?
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    • Posted

      My serum ferritin level was 180 µg/L, which is quite high enough for most, though not over the top. However, I just had another look at the results and spotted that my red blood count only just scrapes in within the no action range at 4.51x10¹²/L. I might need to look into that – my mum died suffering from myelodysplastic syndrome.

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