My ilness driving me crazy !

Posted , 2 users are following.

what a year .

it started with pins and needles - brain fog or disconnection - shooting pains - fatigue - overwelmed

then moved to stomoch and chest - acid reflux and chest pain

then lower back pain and bowls - diareah and even blood a few times in a stool

throat tight - then came rhe arthritus in hands and arms

neck rash and swollen

stomoch pain - skin rashes and spots - mouth ulcars

it just doesnt stop

im fighting as much as poss with vits and suppl ( natrual ) to optamize my imune etc

based on a gold standard blood test

cleared for lymes - clear chest xray

doctors have no idea

i feel it might all stem from bowls and be ibd but the throat very inflamed and this arthritus in arms joint and hands

44 year male

0 likes, 6 replies

6 Replies

  • Posted

    JAMES,

    all of the above can be symptoms of ulcerative colitis. i suggest you request a colonoscopy to check and hopefully be put onto some meds that will help. ive been fighting all of this on and off for 7 years, a dreadful condition but you can get on top of it. Good luck !

    • Posted

      it does look likley but iv also been told lyme or cirs

      can you list some symptoms you had

    • Posted

      HI JAMES!

      Among others I have suffered from enlarged red blood cells, diarrhea, passing blood, lower back pain, left sided pain, restless legs, burning sensation in feet and lower legs, abdominal pain, tiredness, no energy, the list is endless. i have a medication review in February and Im seriously considering coming of prescribed drugs. at the moment I am trying cannabis oil and will see how that goes. UC is a terrible condition and surgery may be the only way out. I wish you well.

    • Posted

      James, I see my reply is waiting to be moderated. i guess thats because of what I have listed that I take to help me. I hope the message is eventually printed for you to read.

    • Posted

      thanks

      id be interested on the red enlarged blood cells

      how does that show itself ?

    • Posted

      Im required to have monthly blood tests due to the meds i am prescribed. Often this shows a low blood count but the latest have shown enlarged red blood cells. Apparently that can be down to thyroid or liver problems or even a lack of vit B12. I have an appointment in February with a consultant to have everything checked. Other than extreme tiredness I have no other symptons relating to it, but the tiredness can simply be down to Uc. Who knows. I can only rely on those who are looking after my condition to help me stay on top of it.

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