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My itching commenced in March 2006. It began with vuval...

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Guest
Guest

My itching commenced in March 2006. It began with vuval itching and, thinking it was a fungal infection, I purchased some canestan cream/pessaries. Obviously this didn't help. After about six weeks I visited a genito-urinary clinic since I'd talked myself into believing that I had contracted an STD in my teens and it had waited until my 40's to show up !!!! I know I sound stupid but I am actually quite a sensible, sensitive person! The clinic could find no problem and offered me a biopsy, which, thankfully I declined. Eventually spots developed on my lower back inner wrists and feet and I visited my doctor in June 2006 - she immediately diagnosed LP however, since my feet are so chronically spotty/lumpy/itchy she treated me (and my poor family) for scabies (despite me assuring her that we have no animals and, since I am allergic to animals I haven't even been near any). Needless to say the scabies treatment made no difference whatsoever! I have just returned from a sunny week in Corsica with a nice tan but more itchy patches than previously, including an incredibly sore and 'weepy' groin and itchy scalp. I saw my GP yesterday who actually GASPED when she examined me and kept telling me how awful I look. Great Huh! Life begins at 40 does it? Think I'll try vitamin B6 as suggested by other LP sufferers. Thanks for the site - it's nice to know that I'm not alone.

[i:0ded4cbfc0]This message was automatically imported from the original Patient Experience[/i:0ded4cbfc0]

0 likes, 7 replies

7 Replies

  • Marz
    Marz

    Posted

    The groin is the worse..I can barely walk somedays and the steroid cream burned me there!! I now have had it for 5 years and also did the scabies bit and the VD clinic first!! Plus the nail disease cures for over 9 months before LP was discovered by my DENTIST!!!! Have you any idears on cream other that E45 for easing the groin sores and my ichy Vulva. I am 58 female and now suffering depression from this.
  • Guest
    Guest

    Posted

    Have you tried Caneston which in normally used for thrush and you can get it over the counter. Beware not to buy the one containing hydrochloride which should not be applied to the vaginal area.
  • Guest
    Guest

    Posted

    It's funny (but not really) I've gone through the same motions, I think I may have oral and vulval LP. After going to the doctors for months and tryng creams, she more or less told me not to bother her again and to quote her: [i:a3022ea09f][b:a3022ea09f]'it's probabaly psychological as your husband's had an affair, try marriage guidance, and by the way you should be grateful you have a discharge alot of women your age are very dry down there'[/b:a3022ea09f][/i:a3022ea09f]! - I haven't been back to her since! I ended up at the STD clinic convincing myself my husband has passed something onto me (he has admitted to the affair). I have had several tests for herpes, clamydia all to no avail and because I've also got my dentist trying to sort me out he's now come up with the idea that it might be LP. The STD clinic has referred me to the dermatologist and I'm waiting for an appointment to come through but from what I've read on this forum it looks like I may be stuck with it. Again like another forum user I believe that stress has triggered it when I found out about my husband. Trouble is, while I'm so uncomfortable in the vulval area I don't feel like having sex and I must admit it's proabaly a bit of a turn off for him as well. Does anyone have a discharge with their vulval LP?
  • Venetia
    Venetia

    Posted

    Hi - I am new to forums and I hope this post will work. I also have LP in the vulval area - no itching but sex is extremely painful (awful actually). I sometimes have a slight discharge which can be yellow/greenish or, if really bad, can be slightly brownish - indicating that it contains a little blood. I have found that using Replens three times a week totally alleviates this problem as long as you keep using it - this can be obtained from any chemist or is available on prescription from the doctor. I also use anaesthetic cream called Lidocaine, again available on prescription to help with painful intercourse. Hope some of this helps.
  • Cath201
    Cath201

    Posted

    Can't believe it's 12 months since I last posted here. A lot has happened...

    Finally diagnosed with LP Sept 2009 - vulval and oral. but prior to the diagnosis had to have an operation (2 days in hospital) to open up my vagina that had sealed together inside because of the scar tissue the LP had caused! Doctor can't guarantee it not happening again.

    I use Dermovate at the worst times, trying not to overdo it because it's steroid based.

    My gums are too bad, I try to avoid spicy food, make sure I floss and use mouthwash. The doctor suggested rubbing Dermovate on those as well and I have to say it did settle them down, although it felt odd putting the same cream on my gums as that I am putting on my vulva!

  • Guest
    Guest

    Posted

    hallo.

    sorry to hear that you too suffer with oral and vulvar lichen planus.

    I too suffer from both.

    My mouth is constantly dry, my tongue burns with ulcers.

    My vulva is constantly sore. Makes it difficult to walk or sit. Green/yellow discharge. Unable to wear trousers or lead a normal life.

    Do you also have pain. Did it affect your life. Do you too suffer from anxiety as a result. I developed skipped heartbeat as a result. How do you manage your stress levels. Would appreciate a reply. Every piece of information helps.

    • Cath201
      Cath201 Guest

      Posted

      Sorry only just seen this post, my lp has improved with regular application of the dermovate.i now use toothpaste without SLS and that's helped greatly. I try not to stress over it, just tell myself I've got to get on with life, there's plenty more folk with far more serious things wrong with them. I've accepted that I'll never have sex again, luckily I have a husband who will stick by me.
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