MY JOURNEY THROUGH LS

My journey through LS

I was diagnosed with LS about 2 and a half years ago. I was scared, horrified and couldn't believe what was going on "down there" and what I saw when I examined myself with the magnifying mirror for the first time. My vulva area was ulcerated and raw, the mucous membrane all over was full of white spots, my labia minora were white and dry and chapped and with hard skin, my clit was hidden by a thick white hood and I had lost definition through fusing of everything and the vaginal entrance was very small. The skin in these areas was very thin, and the entire area was very pale, thin and lifeless. The LS was in a figure 8 and had also affect the anal area as well. A few days before this I started feeling a rough hard area during showering and it became incredibly itchy. I thought it was thrush and so treated it with thrush cream which eased the itch. The GP told me it was LS and simply prescribed some steroid cream and sent me on my way. I saw a gynae who also just told me to use the steroid cream and come back for a regular annual visit. I felt as if I was leper as no one wanted to know or help me with my problem and they weren’t very interested at all. I was desperate. The doctor admitted that she didn't want to talk about it because she really did not know much about it.

I began researching as I realised that I had to help myself to recover and beat this thing. The more I researched I realised that my body was lacking certain vitamins, minerals and trace elements for it to function properly. I also found an Holistic Medical Health Practitioner who I consulted along with his referred gynae who worked hand in hand to help me. I have reversed 95% of the labial fusing, my vaginal entrance and vulva area are looking very healthy and my clitoral hood is soft and pink and very healthy looking and I have no white spots, or shiny white membrane, no pain or itching. Everything is looking a lovely pinky, healthy and like new!

The regular steps I take to maintain myself are:

1.Refer to Nancy-K-B's blogs regarding Vitamins and Minerals and trace element supplement and also her detoxing of the body. I researched and found similar articles and discovered that, as soon as I started taking those listed, my body started healing. I also take a spoon of Brewer's Yeast powder everyday with my food. It’s a rich natural source of VitaminB’s.

2.Emuaid First Aid Ointment "Modern Homeopathic Medicine" is the most wonderful ointment - thank God I discovered this. Initially I used it every morning, every evening and everytime I went to the toilet. I apply it with the tip of a cotton bud (so go through heaps of cotton buds as you only ever dip the tip in the jar once so the ointment remains sterile). I like to use the cotton buds that have a paddle shape the one end and a pointy tip on the other end. Emuaid is very effective for treating Bacterial Vaginosis, Lichen Sclerosis, Lichen Nitidus, Lichen Planus and numerous other problems. It works, and works quickly to relieve symptoms and to heal. Once my ulcers had closed and healed along with the other areas I slowly and gradually with the pointy cotton bud tip started to apply pressure to regain my contouring and unfuse the labial skin and gradually stretched the cliteral hood skin. I spend a lot of time rubbing the Emuaid in to the entire area so it can soak deep into the skin layers to allow healing.As the areas healed I continued with the pointy end of the cotton bud applying pressure to stretch and infuse the skin. It all looks great now.

3.I use Eleuphrat 0.05% ointment (steroid) after applying the Emuaid - it mixes well with the Emuaid ointment which I believe helps it to penetrate deeper into the dermal layers of the affected areas. This steroid ointment is very strong and quite horrid so I only use a very small amount morning and night. Initially the gynae instructed me to use it morning and night for I would say at lease about the first 9 months. Now I only use the steroid ointment about 2 or 3 nights a week. I only wear cotton underwear. I wear the cotton undies at night also as I figured that the warmth will assist the ointments to penetrate deeper into the dermal layers.

4.I am 63 years old so am post menopausal. I also had vaginal atrophy. I was prescribed Ovestin hormonal cream to apply 3 times a week - so I use it Monday, Wednesday and Friday nights. When I use this cream I use Eleuphrat 0.05% cream as it mixes well with the Ovestin. I allow the Emuaid to soak in for a while first before using the Ovestin and Eleuphrat cream. I also apply some Ovestin and the Eleuphrat cream on the outer areas of the vagina, labia, cliteros, hood, the anus, and the area between the anus and vulva.

5.The opening to my vagina had become very small. As the skin areas healed and softened with the Eumaid and Eleuphrat I started gently to stretch it to dilate it. I used various size keggels - firstly starting with the smallest size and as the skin stretched I used larger sized keggels. I also do vaginal exercises with the keggels to strengthen the vaginal wall and also pelvic floor. It is important also that the hormones and blood flow reach these areas to keep them healthy, as it would at the time of climaxing. Orgasms are an important part of women’s vaginal health maintenance.

6. I find that with the anal area I get better results by using DermAid Soft 1% cream when required. The Eleuphrat seems to be too strong for it. The opening to the anus became deformed with weird looking things that look like long skin tags - I had these removed as they were uncomfortable and it was hard to clean myself. I also ensure that I don’t get constipated so drink plenty of water each day and from time to time take a few drops of Dulcolax at night to ensure that my motions are soft so I don’t have to strain or tear.

7. I do not eat sugar at all, any type of flour, wheat, cereals, dairy, minimal alcohol. I eat mainly fish, red meat (minimal), chicken, quinoa, steam vegetables or fresh vegetables and salads, coconut yogurt, coconut or almond milk and a variety of berries. This means I have 3 properly balanced meals a day with seeds / nuts in between as snacks. So basically no processed foods. I add a little apple cider vinegar in my drinking water also.

8. I found a doctor who specializes in woman’s problems and also in dermatology, which is great because he covers both areas of LS and I have a “one stop shop”, which is wonderful, as he understands this condition well. I have had the Mona Lisa Touch treatment and found it beneficial especially for post menopausal women as it promotes rejuvenation of the vagina walls. When I go for my next annual treatment he will also work on the areas of that were/are affected by LS as this promotes rejuvenation.

9. If I follow the lifestyle I have set out above , I am able to live a relatively symptom free lifestyle. I am able to enjoy pain free sex as long as I use a water based lubricant.

10. It is not worth deviating from this permanent lifestyle change as the symptoms of LS will return.

11. Exercise is also an important factor. I stay active by doing reformer Pilates, running on the treadmill and doing weights and also swim on a regular basis.

I hope I have been able to help you by sharing my experience of this LS journey with you and wish you well with your road to recovery. It is possible with determination and persistence. Good Luck.

Sent from Fiona's iPhone

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