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Hi every one
and esp hi to ones with similar tumour as mine. :D
I just found this site few hours ago and I really love it. I've been trying to reach others like me for a really long time and now I have the chance I would like you to feed me with loads of information and suggestions.
I'm 19 yrs old male and was diagnosed the tumour at the age of 17. So far I have found myself the youngest among us and thats not good as it sounds. I have very little experience with my life and don't know how to cope with this problem. I act like a normal teenager which is really hard. I drink and smoke socially, I love playing football and play often. current problems with my conditons are
-my left eye that does not shut and gets watery (any solutions? plz)
-my swollen left face which has changed the structure of my face, does it go back to normal?
-when I smile or laugh, i can with only one side of my face and it looks really weird. current solution:cover face or stay motionless
I've had two embolisation till now but I don't think my condition is getting better. my consultant has suggested that I have this embolisation once a year. my tumour is too big to operate and is in the middle of a bunch of important nerves so the only choice I have now is to have the embolisation thingi. I would be really sad if I got worse that this. I am studying A levels and earning grades for uni. at the moment I am deaf with left ear.
anyone with similar experience and suggestions please post comment.
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