1. Community
  2. Liver and gallbladder
  3. Hepatitis

My partner has Hepatitis C and receives no treatment from NHS to date what can he do?

Posted , 9 users are following.

m92307
m92307

My partner was told last year in October that he has Hepatitis C. This was rather strange to him as he has not taken any drugs for nearly 30 years that could have made this happen etc. As we are still not getting any help apart from a further blood test and ultra sound in January this year - our appointment to discuss the results was put further and further back and might happen by end of April - I also phoned the hospital a few time to maybe get an appointment earlier but nobody could help, I put pressure on the GP surgery. When we finally got to se the GP, he apolagized that he had not reacted any earlier and that my partner had apparently Hepatitis C for 30 years while the GP put it down to his alcohol consume. He gave us a number that should reflect the liver damage which was on his last blood result 172 - normal would be about 90. But the results did not come back complete we were told, and the doctor was trying to call the hospital but the rest of the test result seemed not to be found. So all last week were waiting to hear back and then on Friday we were told the hospital will call us. We still have not heard yet and my partner is still not receiving any treatment. This is really frustrating! What can we do? I am scared his liver will get worse and worse until he dies and nobody cares at all! It is hard to keep positive this way!

1 like, 3 replies

3 Replies

  • mike747
    mike747

    Posted

    Hepatitis C takes a long time to do any damage to the liver. Even though it's easier said than done, don't stress over a few weeks.

    I've just gone through 48 weeks of treatment which has cleared the virus and I'm now Hep C free. I can't recommend the current treatment to anyone unless they have serious liver damage or other health conditions.

    There are new drugs soon to be licensed later this year and most doctors are advising their patients to wait until these become available. I didn't have the choice of waiting due to other health factors.

    The best thing your partner can do is to stay clear of alcohol, eat well and chase up the hospital.

    The hep c trust is a good source of information and have a helpline if you need someone to talk to. http://www.hepctrust.org.uk/

    Hope this helps a bit!

    Mike

  • Natividsd
    Natividsd m92307

    Posted

    Go to the GP ask to be refered to a liver specialist and them call the hepatitis c trust line in London for alternative of treatment is so easy just get the rightbinformatiob
  • Zsuzsi
    Zsuzsi m92307

    Posted

    I was diagnosed before Xmas 2014 and I am still waiting for treatment. The new drugs such as Harvoni have been passed by NICE and promised by the government but still not available. NHS England is holding things up. There has been an huge investment of 190 million pounds so far they have only set up regional centres and bought Fibroscan machines.
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.