My Pityriasis Rosea Story; (Picture of healing included)

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Hey guys, I just wanted to create this discussion, as like many of you who are probably reading this, pityriasis rosea has kind of taken over my life the last month or so. But there IS hope.

?To begin with, I think my case is pretty atypical. I had the classic 'Herald patch' which at the time, I didn't think anything of it; I hadn't even heard of this skin condition! One day after I decided to go for a long walk, I returned home, had a hot shower (God I miss those) and I was horrified when a sudden rash covered my abdomen, hip and my legs which were the worst! I immediately began searching the internet and like many other people, I was convinced I had ringworm! A few days later, I visited the walk in centre and the nurse told me it was definitely not ringworm, it was likely to be a viral rash which will 'Go away on its own', GREAT! I thought to myself, at least it isn't contagious. I then asked her if there was anything I could put on it, any creams, moisturiser etc. 'No' she said and I left with mixed feelings. Little did I know until I began to search this condition (I must have spent hours and hours looking this up!) it can take up to three months or even longer to go away! EEE, I spent so many hour crying over this horrible rash.

?You see, I'm quite a healthy person, I've lost a lot of weight over the past few years, I eat healthy, my job means I am on my feet for hours on end, I drink plenty of water, no underlying health conditions etc. So why me? 

?Then I realised, just over a month before I came out in this horrid rash, I suffered from some kind of EXTREMELY painful throat infection which lasted a few weeks. So you could only imagine my horror when I found out this rash was probably related to the throat infection.

?I believe I am one of the lucky ones, as since the secondary rash has appeared (around 5 weeks ago) it has been limited to my hips, my stomach/abdomen and my legs which is still the worst of it. I'm not sure if I have several herald patches as the ones on my legs look different to the ones on my hips and stomach, they're spread out and have merged together over the past month or so, very unsightly! 

?However, the original herald patch has more or less disappeared, and quite suddenly too. I have been drinking a LOT of water and orange juice, taking vitamin C tablets, eating plenty of fruit and veg and trying to distress as much as possible. In the space of a month, it has gotten worse but parts are healing and fading now. 

?I will add a picture of the spots on my abdomen to show how they have spread out and faded more into my skin. The past week or so I have been showering with head and shoulders classic clean shampoo, and although it stung quite a bit and looked very inflamed after the shower, I have woken up today with it looking a lot less inflamed and it's flaking off. 

?The last month has been the longest month ever, and I know the whole of the rash will take another month or two at the very least to fade completely, but I have never been so happy to see my skin flaking and fading.

?I go on holiday in less than two months and I'm hoping the sun exposure will even things out, but I won't ever take my skin for granted that's for sure!

?I'm no guru on this condition, I've learnt pretty much everything from reading forum posts of other people's experiences, but feel free to ask any questions and I'll do my best to answer.

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  • Posted

    Hi,

    Literally the exact same thing has happened to me the last week or so. Convinced it was ringworm bought and used anti fungal cream... Doctor today said 'nope... It's this... Don't treat it don't do anything just leave it be' 

    Is that what you've done? Just left it alone and it starts to get better? 

    It's horrifying!

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    • Posted

      Hi Charlie,

      It is horrifying, it’s even worse to be told to leave it alone!

      I’ve been using head and shoulders shampoo for about a week now and I’ve noticed a huge difference! The rash is/was worse on my leg, it’s still visible but it’s turned from a red/pink colour to a pale pink/tan colour and it’s not as bumpy now, my skin feels a lot smoother, I’m hoping a few more weeks of this will fade it even more! When I first used the shampoo my legs felt like leather! They were very crusty and dry and I thought I had a bad reaction, but the next morning the crusting has subsided, it was just flaky but a LOT paler in colour, I have frequently been using coconut oil and aveeno moisturising lotion also when my skins been very dry, but only when needed, as for me letting it dry out has helped the most. Also, the newer spots on my hips and abdomen have been flaking a lot too!

      I have also been taking vitamin C, drinking a lot of orange juice and so much water every day to boost my immune system, so I’m hoping that has helped too!

      Tanning is supposed to be quite good too I’ve heard! I’m yet to try it though.

      It will get better I promise. I’ve had this for about 5-6 weeks and my herald patch a month longer (herald patch is almost invisible now). I swear I have taken a picture every day since I have had this horrid rash, and whilst it’s definiyely gotten worse, it’s also now getting better and it’s encouraging to see it!

      Don’t be disheartened if things don’t work at first, it is only temporary and it isn’t forever.

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    • Posted

      It will go away, for most people it lasts 6 to 12 weeks and it is just a nasty memory. I used a cream called Prreze that made it go away within a week. But you do not need to do that if you can live with it.
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    • Posted

      I usually just use my hands and work it into a lather, let it sit for two or three minutes and then wash it off, about half an hour later it really dries up my spots/patches and even though they are growing still, it seems to be slowly fading and flaking the skin from inside outwards, which I’m hoping is a positive sign of healing! Also, just to add I’ve been sitting in the sun as much as I can the past few days and this also seems to be helping to dry it up and fade!

      Let me know how you get on :-)

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