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my PMR

Posted , 10 users are following.

flydog
flydog

Hi all,

I hav'nt been on the forum for a while, the good news I have just been given is, I do not have PMR at all, I have now been diagnosed with arthritis and asteoperosis in shoulders, spine, hips, and knees.

thank the lord for this.

0 likes, 10 replies

10 Replies

  • mark9992
    mark9992 flydog

    Posted

    Well, all the best with that, but as good news goes it doesn't sound worth a party.

  • EileenH
    EileenH flydog

    Posted

    I'm glad you feel that is a better option - not quite sure why though. I really don't think PMR is that bad as chronic illnesses go, it isn't progressive, it doesn't cause organ damage or kill and for some 75% of patients it does go into remission in up to 6 or 7 years. 

    However - all the best for the future.

    • Tastyron
      Tastyron EileenH

      Posted

      I don't know if it's just me but I read that as if there was a hefty bit of tongue in cheek in there.

    • Juno-Irl-Dub
      Juno-Irl-Dub Tastyron

      Posted

      I agree.    Are we all having a bad  day, or what?  I've seen more optimism and positivity at funerals and in cancer units!!   Give the woman a break.    

      Or maybe we all need just a  sit down with a cup of tea . . . . J

    • mark9992
      mark9992 Juno-Irl-Dub

      Posted

      Well Juno, what I read was, "Hey guess what, its not a temporary illness that usually goes into remission, its a permanent illness that can't be cured!  Hand shakes all around, eh?"

      Granted PMR isn't a picnic, but my lotto ticket says 75% chance of a permanent sunny day, so I'll stick with this monster thanks very much.

  • iellen32
    iellen32 flydog

    Posted

    I am glad for you.

    Keep being careful though, aware of any change and in same time enjoying what'ever is good!t

    Take care.

  • tavidu
    tavidu flydog

    Posted

    Hi flydog. As you have probably guessed members on this forum would probably prefer PMR to arthritis and osteoporosis. I have had PMR for 2.5 years and still suffer from arthritic pain in my fingers despite taking pred which gives some relief. One of the things all of us fear by taking our medication (preds) is osteoporosis, hench keeping our daily dose of vitamin “D” up to scratch etc. If you feel that your new diagnosis is better for you than PMR then all I can say is good luck and all the very best, I know what I prefer.
  • Juno-Irl-Dub
    Juno-Irl-Dub flydog

    Posted

    Hi, good luck with your Osteoporosis treatment and  do engage with a specialist, not just with your GP.  . . . The NOF (Inspire)  has a great discussion forum as does this one. Loads of advice, information and sharing.  

    Remember one in two women over 50 have a fracture due to OP.  (and one in 5 men) . . .Most are undiagnosed until then. So the plan for you is to avoid fractures which will involve healthy diet, an exercise plan (from a physio.which will also help your arthritis) and maybe medication.  Good luck and kind thoughts - and no panic!     J.

     

  • flydog
    flydog

    Posted

    Hi all,

    Re the change from PMR to athritus, I am now off preds altogether and now manage the pain from athritis with 1 tramadol every 48 hours and 1 adcal daily for the asteoporosis which I think is better than the dreaded preds

    • EileenH
      EileenH flydog

      Posted

      If that is all you need then yes - I agree that probably is better. When you posted you had RA I wasn't expecting you to manage with so little - and you may not in the long term. My attitude is that RA doesn't go into remission, for most people PMR does - and then you don't need any medication. So it is preferable since there is no long term risk of joint damage.

      Good luck for the future.

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