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My PMR symptoms came out of no where when it attacked my pelvis/hip area so bad that I would scream initially when getting up,sitting down,or walking a few inches.My C Reactive Protein went from 50 to 90 to 94.8 which is off the charts since an 11 would have been bad. This went on for 3 1/2 months until my rheumatologist put me on Prednisone and in 2 days I could walk again but 6 months later I'm on 5mg in am & 2 1/2 at night.Even on steroids my tongue swells up with sores on the side 3 to 4 times a month,my teeth hurt like hell when I have anything cool or cold, my palms & 3 of my 5 fingers on both hands have tinglings & numbness several times a week & my friend said disease is attacking ulnar nerves which is what is causing the hand numbness.Once my C Reactive Protein finally went down months later to 6 my dr.told me to stay on 5mg in am but skip the 2 1/2mg at night. Overnight I could hardly walk & day 2 the disease attacked my shoulders for the 1st time so back on pm dose again but shoulder pain never went away on right side. I have gained 50 lbs. in 6 months & my feet & tree trunk ankles are gigantic. I eat less than ever but continue to gain a little every week ??Do any of you have so many weird symptoms & for those who also have the Giant Cell too, did you have the biopsy of the temporal arteries near the ear or did they just go by symptoms? It terrifies me that you can go blind from GCA. Thank you ! Tina
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