My poor Mum....shes 87 and has been in constant pain from a bout of shingles NINE years ago
Posted , 6 users are following.
My 87 year old mum had shingles 9 years ago and has been in constant pain ever since...some days she's in agony...i did not realise shingles could go on for this long...does anyone else have this problem and how are they managing the pain. She has it on the left side of her head and in her left ear
1 like, 7 replies
Srini trudi26484
Posted
Hi Trudi
So sorry to hear about your mum, that must be so difficult for her and indeed for you to watch her suffer! Post herpetic neuralgia is extremely distressing condition.
Get her GP to refer her to pain clinic for the management of her symptoms.
While awaiting referral, GP can prescribe lidocaine patches which can be cut to a small size to fit on the left side of her forehead, to be used 12 hrs on and 12hrs off. Some GPs not keen to prescribe to apply on face but pain consultants advocate that.
Possibly patch during her wake hours and at night, may be something to help her sleep like, Tramadol.
If there is no contraindication, Lyrica (pregabalin) will help in some, although you need to discuss the side effects with her doctor with respect to her other medical history.
Possibly Amitriptyline too added to above.
When u see pain consultant discuss Capsaicin patch. If agreed, it has to be applied after application of local anaesthetic gel and goggles to avoid contact with eyes. It can hurt otherwise, as it's made from chilli peppers. But it's known to control pain for weeks or months in those in whom it works. This is used more commonly in the US.
Final course would be possibly surgical like the ablation of the trigeminal nerve ganglia (this is the affected nerve if on the face). Again, pain consultant can discuss this.
Side effects are there with all medications and interventions, it's a balance between benefits and risks and at her age, I guess the prime importance must be to give her relief from pain
All the best.
xxx
rachel30365 Srini
Posted
many thanks
Merry19451 rachel30365
Posted
Rachel,
I believe your Aunt could use OTC lidocaine patches 4%. They are available in the States, at least, until she sees a pain specialist. Also, topical application of a combination of Lidocaine Gel with Aloe Vera and Vitamin E oil can be soothing to the area as it covers the skin with the nerve endings that are hyperexcitable. Go on David East-Church's
post on this forum this year and he has a recipe for making up a salve for itching.
I hope this helps. Unfortunately, too many physicians marginalize patients, until it is too late to help them.
Best Wishes
Merry Juliana
Srini trudi26484
Posted
Hi Trudi
So sorry to hear about your mum, that must be so difficult for her and indeed for you to watch her suffer! Post herpetic neuralgia is extremely distressing condition.
Get her GP to refer her to pain clinic for the management of her symptoms.
While awaiting referral, GP can prescribe lidocaine patches which can be cut to a small size to fit on the left side of her forehead, to be used 12 hrs on and 12hrs off. Some GPs not keen to prescribe to apply on face but pain consultants advocate that.
Possibly patch during her wake hours and at night, may be something to help her sleep like, Tramadol.
If there is no contraindication, Lyrica (pregabalin) will help in some, although you need to discuss the side effects with her doctor with respect to her other medical history.
Possibly Amitriptyline too added to above.
When u see pain consultant discuss Capsaicin patch. If agreed, it has to be applied after application of local anaesthetic gel and goggles to avoid contact with eyes. It can hurt otherwise, as it's made from chilli peppers. But it's known to control pain for weeks or months in those in whom it works. This is used more commonly in the US.
Final course would be possibly surgical like the ablation of the trigeminal nerve ganglia (this is the affected nerve if on the face). Again, pain consultant can discuss this.
Side effects are there with all medications and interventions, it's a balance between benefits and risks and at her age, I guess the prime importance must be to give her relief from pain
All the best.
xxx
Merry19451 trudi26484
Posted
Dear Trudi,
Your poor mum has Post Herpetic Neuralgia PHN. I have had
recurrent Herpes Zoster Shingles every three to five WEEKS in my Right Ear for the past twenty-one
YEARS and twice in my Right eye. She had Ramsey Hunt Syndrome if she had
a facial droop during her shingles episode. I have Ramsey Hunt Syndrome.
I am 65 years old. Unfortunately, I do not know your mum's medical history,
but here is how the PHN can be treated if your Mum does not have severe
contraindications
ie. Cardiac, Liver, Kidney Diseases. This should be done by an excellent
Neurologist,
FIRST, she can be placed on an anticonvulsant type of medication
Gabapentin-Neurontin
Pregabalin-Lyrica
These drugs are titrated up to maximize effect.
SECOND, the neurologist can try an antidepressant.
The ones used for shingles are Cymbalta and Venlafaxine.
There are older ones, as well.
THIRD, the neurologist could try Auroguard or Auralgon,
ear drops that contain Benzocaine to soothe the nerves topically.
I personally use Topiramate, an anticonvulsant, Venlafaxine-antidepressant, Auroguard topically,
and Oxycodone when I have an acute episode.
In any case, try to find a neurologist interested in pain control for shIngles.
There are also nerve blocks, which might be difficult to achieve for your mum.
I hope I have been of some help. I am a Nurse Practitioner in the States.
Best Wishes to your mum and you.
Please let me know how you make out.
Merry Juliana
joseph34465 trudi26484
Posted
hope4cure joseph34465
Posted
I was diagnosed with shingles 7 years ago. My doc gave me the shingles immunization even though I already had it. It has slowed down the duration and repeat breakouts are very few.
Its it's worth a try. Hope you get better soon. Take care what a awful disease isn't it. Just wanted to share my experience with everyone!