My Reflux Hell!!
Posted , 80 users are following.
I just wanted to let everyone know about my story and just how ill this reflux can make you feel. I gave birth to my second child and 4 months after began to feel tired and drained, general lack of appetite, shortness of breath, chronic rhinitis and sinus pain and an odd feeling down my upper left!
i began getting pains in my stomach, and my weight began to drop. It was difficult to say what was related to post baby weight loss and what was abnormal. I felt dreadful. Then i started suffering with a lump in my throat and difficulty swallowing. Food was getting stuck in my throat and I felt utterly dreadful.
After many visits to my Gp, who suggested I had post natal depression, followed by anxiety. Then the sickness began. I couldn't eat, felt nausea 24 hours a day! It was hell.
Despite my protests that I was happy it was just the feeling of lousiness everyday that was wearing me down, I ended up been put on diazepam tablets first. They over prescribed the dose, I couldn't get out of bed for weeks! I didn't actually know they were valium, and that they should not just be stopped. I stopped them and ended up in hospital for a week. I was vomitting daily. I had an endoscopy in hospital which I had begged for as I was feeling so ill. It showed nothing! They tried 12 different anti-sickness drugs to stop my vomitting....non of which worked! By this time, I had lost 2 stone in weight and was convinced I had cancer. All the blood works I had done showed nothing, apart from low calcium?
They sent me home from hospital and told me to take some more diazapam, I was horrified! I was so weak I could hardly walk from the weight loss and sickness.
I continued to be sick every day for four months, I laid in bed too weak to move around. I felt so utterly dreadful i cannot explain!
Finally, out of sympathy for me, my GP sent me to an ENT specialist to apparently 'prove' to me that there was nothing wrong with my throat and the difficulty in swallowing i was experiencing was 'all in my head'
I recall his 2 line letter to the ENT specialist. \"this woman is suffering from anxiety please reassure her there is nothing wrong with her throat\" He smirked at me, numbed my throat and shoved a camera down it. As a precaution he sent me for a barium swallow!
This swallow was the key to my diagnosis....the minute they laid me back on the bed...my whole stomach contents came straight back up on their screens. I was diagnosed with Gross Reflux and am now waiting to see the Consultant. I paid privately for the following:-
Ultrasound scan of stomach and pelvis
Colonoscopy
Ultrasound of Throat
Chest X Ray
I was put on diazapam, anti depressents (in the end I volunteered to see a pyschiatric nurse just to prove to them I wasn't suffering from PNDepression, Anxiety and anything else!)
I had a week in hospital where blood tests and endoscopy showed normal..therefore I was sent home suffering from anxiety - because their little minds could not stretch past test normal test results!
I actually began to doubt myself in the end, despite my screams that there was SOMETHING WRONG!
I am on 600mg Ranitidine daily and have Pharmeceutical Gaviscon. It helps but i'm still suffering! I also take Fortisip nutritional drinks daily to ensure vitamins are absorbed more readily. My GP hasn't apologised, but now at least he can't blame PND or Anxiety!
I sleep with my bed head raised 6 inches, and eat small regular meals. I drink copious amounts of bottled water only! I have more of an appetite now, haven't been sick for 3 months. I still get nausea, chest pain and problems with my throat and swallowing. I think back to how bad I felt and I can now manage in comparison.
Don't underestimate how bad this dreadful Reflux can make you feel. I was convinced i was going to die I was so weak and poorly!
10 likes, 113 replies
stev433 Guest
Posted
margaret39294 stev433
Posted
AngelsKiss stev433
Posted
I read your comment about feeling like a pin cushion and couldn't help but laugh because I went thru the samething.
I have done so many blood test this past 2 months that I told them that ppl are going to think I am a drug addict from all the needle marks but thankfully the marks disappeared ??
I have been to emergency about 5 times in 1 month, and did a bunch of EKGs lip, Echos, Stress Echos, Ultrasounds plus Endoscopy. Next test is a CT Scan and that's because on one of my emergency visit they think they saw possibly pulmonary edema. If I go by the echos I don't have PE, but my cardiologist is being cautious.
Last year I even did 2 types of pulmonary tests which were ok, so really hoping the CT Scan will be the same.
nico17641 Guest
Posted
caroline92252 Guest
Posted
may96047 Guest
Posted
marie66624 Guest
Posted
monty12345 Guest
Posted
I Ended up going to the Gastroenterologists. They performed various tests, I had-
1- 2 endoscopies- the first showed damage of the oesophagus because of acid and sliding hiatus hernia.
-the second showed damage of the oesophagus and an ulcer in the stomach but no hernia
2- CT scan of the abdomen- Came out to be normal
3- Colonoscopy- Came out to be normal
4- Most of my blood tests were normal
The final diagnosis was I had those symotoms because of ulcers and too much acid in my stomach. the hernia isnt that significant. Most people have a hiatus hernia but newer have any symptoms.
What really helped me-
-Avoiding gluten, milk( I have yogurt), Eating lots of vegetables, Meat. Basically gluten free diet.
- Pantoprazole, omeprazole. for 4 months. They start to show effects after you've been on them for atleast a month. Make sure you have enough calcium with these medications because they tend reduce the calcium absorption in your body.
- Probiotics- I used ALIGN probiotics. You can get it on Amazon
- Multivitamin, Omega 3
Basically cleaned out my diet. And I am fine now. Sometimes still get heartnurn but It only happens if I had some junk food.
I hope this helps.
jodie77731 monty12345
Posted
ella19927 monty12345
Posted
LindyMay monty12345
Posted
lindsey08696 monty12345
Posted
Hi Monty
Hope you are still better.
You said over a year ago that 4 months of pantoprozole and omeprazole?
We're you on both?
dianne59841 Guest
Posted
dianne59841 Guest
Posted
shamuu32 Guest
Posted
samantha40494 shamuu32
Posted
shamuu32 samantha40494
Posted
samantha40494 shamuu32
Posted
Have u had any luck ?
shamuu32 samantha40494
Posted