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I just wanted to say hi to any other Reiters or RA sufferers and share my experiences so far.
My story started in Nov, I got Salmonella from aeroplane food on my way back from Thailand, after 2 weeks of bad salmonella (nearly hospitalised twice) I started to have problems with my ankles, they swelled up and were hard to walk on... then my eyes went a bit wrong... and then the worst.. I got sores... down there. :-(
Luckily, I'd already come across Reiters when researching Salmonella online, I suggested it to my Doctor, who tested me for HBA-27 (I think that the correct thing) and agreed.
I've had courses of anti-biotics that cleared up all the other symptoms (thank god - no more sores... down there) and been on Diclofenac Pottassium for a couple of months while waiting for my referral to the Rheumatologist.
My symptoms got worse when they tried moving me to Tramadol (after some side effects from the Diclofenac) so I had an intra-muscular steroid injection... which worked wonders! Until it wore off a couple of weeks later, I'm better than I was though.
I got moved onto Diclofenac Sodium, which helped, finally saw the specialist who put me onto Prednisalone (steroids) on a reducing dose, this was like a new lease of life!!!
The swelling around my ankles has gone, they feel almost nomal now. My knee still feels stiff if I walk or stand up for too long.
My dose is down to 15mg and sadly my feet are now getting worse. My index toes are swollen so much they dont bend and its getting hard to walk, do I go back to my doctor or wait 3 weeks for my next rheumatologist appt?
I've had times when I felt quite down about it all.
Sadly my friends husband just got diagnosed with head and neck cancer - it all snapped into perspective for me.
Yes it sucks, yes I don't know when I'll be better... but it's not going to kill me.
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