My reoccurring pilonidal sinus story

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My story began in 2014 at the age of 18. I was working full time and I bent over at work to put away bottles of water and felt pain. At first I felt like I just bruised the area, but then I felt a lump which was very painful to touch. After finishing my shift my dad picked me up and when getting in the car I had to sit on my side due to the pain. My dad asked me what was wrong and I told him. He immediately knew what this was experiencing one himself and told me to see the doctor the next day. I went to the doctor and after some poking she sent me to get a ultra sound. A ultra sound on your anal cleft not the most comfortable thing but necessary. The ultra sound showed that I had a deep ingrown hair which caused the cyst that I had. My specialist appointment was booked for three weeks after I got my results of the ultrasound. Unfortunately for me I didn't make that specialist appointment a week after my diagnosis my cyst exploded. A lot of pus came out of it so I covered it and waited for my specialist appointment. Day by day my health steadily deteriorated I had a fever everyday and extreme pain. I was rushed to hospital after shaking uncontrollably and being unable to breathe normally and went for a emergency drainage. 3 days after I finally saw the specialist and he told me that I will need another surgery as they had only drained the cyst and he has to extract the hair from the root. But he said I had to wait two weeks for my first operation to heal first. All was fine until I was waking up from the surgery. I woke up having a fit with a oxygen mask on and I was told I lost too much blood in the procedure(I later found out I have thalassemia which makes my blood thinner which contributed to all the blood loss) and woke up 3hrs after what I was meant too. The pain I woke up in was excruciating. My surgery much like a lot of other people's was a open surgery however my nurses discribed it as one of the biggest wounds they have seen. In total I was on bed rest for 7months and I healed fully in a year and 3 months a lot of people are on bed rest for 2 weeks. It was a long and emotionally draining recovery. When I fully healed my nurses my mum and myself had all hoped that I will never have to go through this again. Unfortunately my hopes were not answered. This February I started getting pain again and went into quick action and went to the doctors got a ultra sound and was in hospital within two weeks of finding out. This time I went to a new surgeon and he told me that he was going to stitch it and I will be back at work working 3 weeks. I was actually healed in 3 weeks however once the wound healed the bottom of the wound reopened and closed from the top and not from the bottom so in i went for another surgery. It was only a small 1.5 cm surgery this time it was left opened and I was getting it packed every day at first then started getting it packed every second day. After 4 weeks of packing I felt pain and once again a lump and when I went to get it packed I got sent straight up to the emergency department. My surgeon was on holidays so his surgical partner took over my case and I went in for emergency surgery that day. This was six weeks ago I'm still currently on bed rest I have a vac machine which isn't common with pilonidal sinuses but it sucks any moisture from the wound which keeps it dry and is meant to heal it faster. Unfortunately for me it isn't, my wound started at 4.5 cm long 1.5 cm deep and 1cm wide it is currently 3.2cm long and the same deep and Wide. I'm going to see my specialist on Thursday and I'm hoping he has some answers. 5 surgeries later 3 being in a row I'm definitely over this.

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  • Posted

    Omg Poor you! I had one 21 years ago, sinus tract and abscess! Back then I was left open with a huge hole approx size of a golf ball deep!! (My mum saw it) I never looked! 21 years later, this time last year, had a niggle, which progressively got worse, however I'd had pain within that natal cleft area for nearly two years, each time I went to the doctors, I'd get, no nothing there!!! Hmm I knew something wasn't right, a few weeks later I'd book again, another doctor, nothing there!! Anyway last year they found a little split, not really a hole.. no abscess... so nearly one year on and I had surgery on 18/5.... currently still off of work, I was stitched, stitched area became infected and then stitches had to be removed over a period of twelve days!! I felt so poorly during that period, dropped a stone in weight!! Anyway hole is currently approx 1.5cm deep still and I have an area where only one stitch held that is causing me a lot of discomfort.... every time the nurses press that area if kills, so sore, they are now keeping an eye on that area incase something is going on under the stitched section!!! Really hope not!!! Cannot go through being cut open again... I Wish that one stitch hadn't of held now, as this area is the only part causing me pain!! The hole itself, touch wood is fine... It sucks!!!

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    • Posted

      yea my mum saw my open surgery and said it was the Diane of the orange... safe to say I freaked out. I hope you get better without another surgery. I found the stitches hurt until the were removed. When are you getting your last stitch removed?
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    • Posted

      Hi, I don't have anymore stitches but only one stitch had held together at the time, this is the bit that is causing me a lot of Discomfort! I didn't realise that a lot of ladies get

      this too, thought it was only men until I came on here!!

      Are you sitting or just standing around and laying on sides like I currently do!?? How are you feeling!?

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    • Posted

      In the past two weeks I have healed quiet a lot I have been having a orange seaweed and probiotics a day and it really helped with the wound healing so now I'm up and and about. But I was sitting on my sides before. Only problem now is my wound is swollenrolleyes

      Mine is actually hereditary my dad had one when he was my age now , they said there has been a increase in women getting them but before I had one I didn't even know they existed.

      Are you on any painkillers?

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