My Results After A PAE Procedure
Posted , 34 users are following.
I had a Prostatic Arterial Embolization (PAE) procedure done at the University of Miami on June 2, 2015 by Dr. Shivank Bhatia. Prior to the procedure I had completely lost my urinary function and was wearing an in dwelling Foley Catheter. I had been told by a prominent Urologist at UM that I would never urinate on my own again, I needed to learn how to self catheterize and that if I chose to have the PAE procedure I should expect it would not be successful. My prostate was over 100 grams, I was not a candidate for the TURP and I should go home and have a nice weekend.
My attitude was I had nothing to lose. If the PAE did not work I was no worse off than if I did not try. Dr. Bhatia was an expert in this procedure so I took a shot. My resutls have been nothing short of miraculous. The procedure was done on 6/2/15. I never had one ounce of pain, either during or after the PAE. I continued to wear the Foley, but it was horrible. I went for my first follow-up 10 days after the PAE. I still could not pee on my own. Dr. Bhatia wanted me to continue wearing the Foley for another week, but I just could not. He was understanding of my discomfort and I was shown how to self catheterize and went home without the Foley, thank God!
I used the catheters approx. every 6 hours or 4 times per day. Each time I used them, I would try to urinate on my own. On June 25th at around midnight I attempted to pee on my own and 6 drops came out. It was a revelation. I then used the catheter and went to bed, arising at 6 am. This time when I went to use the catheter 12 drops came out. Each time I went to use the catheter things would improve. From a weak stream to ultimately a regular pee. I reduced using the catheter from 4 times per day to 3, then 2, then I was comfortable knowing I did not need them at all. On July 1, 2015 I stopped using catheters. I never have looked back.
Three months post procedure I had an MRI. My prostate had shrunk from 0ver 100 grams to 72 grams. My PSA had gone from 8.7 to 2.5. I no longer had any symptoms that would indicate prostate or urinary issues. I sleep through the night. I pee when I have to go, but can go 6-8 hours in between bathroom breaks. I have no discomfort, no pain, my sex life is outstanding and I am 66 years old! Dr. Bhatia has given me my life back.
My suggestion to anyone who is having symptoms: Explore ALL OF YOUR OPTIONS!! I am certain the PAE will become Standard of Care in the future. Try and understand what the potential side effects are of the "traditional" surgical procedures. They may be acceptable for some, but they were not acceptable for me. I take no drugs or medications. The PAE had no side effects. There was no possibility of becoming incontinent or impotent or having an orgasm without an external ejaculation. Find a facility that is doing clinical trials with the PAE and a Dr. who is experienced. Peeing through a straw for the rest of my life was a real possibility. Now I function like I was 40 years old, not 66 years old. I highly recommend Dr. Shivank Bhatia of the University of Miam. He learned this procedure from the man who invented it and he trained with him in South America to perfect it. You have very little, if anything to lose, and you have getting the rest of your life back to normal to gain. Happy to answer any questions or inquiries. Good Luck to all.
8 likes, 75 replies
ChuckP latour1961
Posted
latour1961 ChuckP
Posted
The very best of luck to you. Do not give up as the options and expertise in this area are changing rapidly for the better. Keep fighting.
joe74831 latour1961
Posted
You really can not just blindly trust a doc to do what's truly best for you.
I am looking forward to having.the procedure on Jan 25. Even tho I am nowhere nearly as bad as you were it will still be a relief.
Keep us updated on your progress, it really helps those of us still yet to have it done.
latour1961 joe74831
Posted
joe74831 latour1961
Posted
Guest latour1961
Posted
latour1961 Guest
Posted
Guest latour1961
Posted
latour1961 Guest
Posted
mike588 latour1961
Posted
latour1961 mike588
Posted
Carry-on_CMDR latour1961
Posted
I've successfully used sel-cath for the past three or so years, now up to 4x per day, and combined with a new regime of 5mg Cialis daily, have seen my retention drop from about 450 cc (with occasional peaks of 550 cc) to about 375 cc (with occasional peaks of 450 cc).
I will stick with CIC for now, but am looking forward to expansion of PAE as a possible standard, and am ready to go with that route if/when my CIC results plateau.
Thanks for your well-written contribution, and good luck for your future.
frank27027 Carry-on_CMDR
Posted
Hi,latouri1961, I read you sucess on CIC, I also do CIC around 3 years. I have been in complete retention ,no NV.Are you also in complete retention?I have been thinking about PAE,however still in doubt.
frank
bill80656 latour1961
Posted
Also I do not like urologist at all. I will never go to one again. I have been lied to, that is, not being referred for the PAE (he knew about PAE's and only wanted to do the TURP for a second time because his first attemp failed. I have been tortured (not kidding) twice, that is having the tissue samples sniped off my prostate without any anesthesia and both times it was medically unjustified. I have also been maimed (peronies syndrome which is a bent penis) he stuck his camera aparatus up my penis and applied no external anesthesia nor slippery stuff and was incredibly rough. It was a killer. I had it done again a year later by a different doctor and I hardly felt it. Is that enough reason not to ever see one again! They are just out for money period.
latour1961 bill80656
Posted
We've been given our lives back on a silver platter. Let's make good use of this gift. Best of luck in the future.
Limn bill80656
Posted
Off of all drugs for 3 months now.
Flomax had so many really bad side effects - some serious.
My eye doctor told me I need cataract surgery but he said he does not operate on patients who have taken flomax because it’s too dangerous from IFIS that is a direct side effect of flomax.