My scs went on overdrive all of a sudden

I had the exact same thing happen the night after they replaced my IPG.  It had to be all set back up, but clearly it wasn't set to where I had it before and I noticed when I left the surgicenter that I had actual sensation of the burst stimulation in my right leg ( which you aren't supposed to have).  I also noticed that I didn't seem to have the same control of my right leg and foot all that day that I attributed to my sedation from the surgery.  When I went the bed that night I bent my right leg up towards my chest and I got an electrical shock that ran up my spine and shot down my right leg forcing it straight.  I turned the dang thing way down and called the reps the next morning.  It was an Abbott, so they could reprogram it.  As a physician, I personally think that my leads have been in now for a year and that there may be some break in the insulation so that when you have the stimulation up high enough the electricity is transferred to nearby spinal nerves passing by and that's what I felt.

Hello Faith!! Yes you are not alone, I've tried to explain this to several people alone with my rep and my Dr. They look at me as if I don't know what I'm speaking of, now it stopped stimulating the areas it was put in for and had that overdrive stimulation where it was only around my knees felt like I was on a race course for high speed. The only thing it( no truthfully ) I experience a wonderful 7 months with my stimulator but after that 7 months was when the overdrive started, so this far I feel the pain plus more because it was stimulating around my knees so fast it lifted my patella off the knee joint. Lucky me now another Dr bill trying to get my patella back in alignment where they are supposed to be. More pain than not, Don't no if I need to have it removed or not have read some post that the pain of having it removed can be horrible also. Now the Dr. want me back in pain management, well this was one of the reasons I really wanted the stimulator...to stay out or not knowing I'm in pain due to it supposed to block my brain from letting me know I'm in pain, to be able to stay off drugs and out of pain management, right back from the start I realize I'm in pain, I'm taking pain meds, and have gone back to pain management plus with an ortho Dr to save my knees, my hope for you is they can program you right for your needs, thanks for sharing be a use when I say it puts me in a place where I can't move and now with the knee situation maybe someone will believe me. Best of LUCK too you, Joy

You know, if you look on the internet, except for here, you don't find any medical reports about this phenomenon at all.  Even if it is just a patient here or there, it should be included in your possible side effects list you get before the procedure.  I also find it strange that none of the companies seem to be investigating it.

Hi Faith, I'm also in agreement with allaroundann why are these companies not doing some investigation on their products, seems as though they get your money and they are finished with you. Faith I also am in agreement with you why is there nothing about the possible side effect, even the video they send for you to watch makes it seem like this will be the best procedure ever understanding it's not a cure, but plz don't let me go in blind sided, If I was and thankfully I'm not a diabetic they have classes on possible things you could do to help your self with this NOTHING!!! I've also mentioned on a nother post my rep has told me not to contact the Dr's they only know how to put it in and take it out, WOW my feelings is when a foreign object is being put in your body they should know about it the function and possible problems. How are you check to see if things are going right thru the programmer only, a computer only knows what you put in it, way different than a Dr I think, but I hope the BEST for you, this is about your body your life. Best of LUCK too you Faith..... Joy

what a shocking experience.  

I  cannot believe that all your Rep said was  “ Interesting”.......they should have shown real concern and arranged an immediate appointment for you.  

Are you ok now, has it been adjusted?    as I said to another person on this site, these Neurostimulators cost around $40,000 so you are entitled to first class help.  Whoever your Rep is Faith, ensure they give you adequate help, they are being well paid too ..

i have had this experience just once.  It was similar to ALLAROUNDANNE who replied 5 days ago.  

I went to bed and was laying on my back and bent my leg up and I almost lifted off the bed.  I contacted my Rep first thing the next morning and he made me an appointment immediately...he completely re-programmed it and all has been well.  Actually no it actually hasnt though has it. I have other problems instead.  

I bave obviously missed a lot of your posts everyone  because I have just seen all the earlier ones...oh dear.  Have just written a really protracted reply to JOY19635 thinking she was asking how good the SCS was and I do think they work but tgere seem to be a lot of areas which need tweaking.  My issues are not really with the pain control but with pain in other areas CAUSED by the insertion of the device in the first place.  Apologies to everyone if I have confused you all.  I will read ALL of your posts  and start again.  Mind you, from what I have read in the last few minutes, I am seriously thinking about having “ET” removed and “sent home”..........I keep joking that “he” is trying to get out anyway