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My son has been diagnosed with OFG and I'm not sure what he can and can't eat. Any ideas pls he is o

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donna_80473
donna_80473

My son has been diagnosed with OFG TODAY I NEED HELP WITH THE DIET AND SUPPORT HE IS ONLY 15

0 likes, 4 replies

4 Replies

  • decndor
    decndor donna_80473

    Posted

    Hi, I asm sorry to hear that your son is not well. But I have to ask What is OFG i am afraid that I have not heard of this. I have suffered from crhons for 52yrs this year and as far diet, it appears that every one is different. I can eat certain things some times without any problems where as other times it will play me up. I do keep away from all spicey foods.  Hope that he gets sorted out soon
    • Bong1968
      Bong1968 decndor

      Posted

      I found this on Google...

      A cinnamon and benzoate free diet for orofacial granulomatosis:

      Orofacial granulomatosis (OFG) is a condition which affects mainly the mouth and lips. Swelling and redness are the most common symptoms but other symptoms such as mouth ulcers and cracked lips can occur too.

      The cause is not known but a cinnamon and benzoate free diet helps 70% of people with OFG.

      Avoiding foods which contain cinnamon and benzoates may help your oral symptoms.

      You should try and follow this diet for 12 weeks and monitor any improvements in your symptoms diary.

      Keep to fresh or home cooked food where possible.

      Hope me this Helps!

      If you are unsure whether a food or drink may contain cinnamon or benzoate, it is best to avoid it.

      It is important that you read the labels of any manufactured or prepared foods you consume.[page1image4596]

       

  • Bong1968
    Bong1968 donna_80473

    Posted

    Hi

    I managed to reply decndor about OFC..

    There's more information on the website below. Looks like a load of 'E' numbers can aggravate the condition. It lists which ones.

    Hope this helps.

    www.ucc.ie › patientinfoleaflets

  • patricia86015
    patricia86015 donna_80473

    Posted

    Hi Donna

    I have had OFG for the last 5 yrs and have been on a cinnamon and benzoate free diet given to me by Guys Hospital who research this condition. It has worked for me and it works for 70% of people. I attach screen shots of the diet. Benzoates are in most foods but you only need to avoid the ones mentioned. A lot of other diets are over prescriptive which makes them difficult to follow. Best of luck.

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